FTD diagnostiseras ofta som Alzheimers, depression, Parkinsons sjukdom eller ett psykiatriskt tillstånd. I genomsnitt tar det för närvarande 3,6 år att få en korrekt diagnos.

Partners i FTD Care

AFTD:s Partners in FTD Care är utvecklad av en kommitté av kliniska sjuksköterskeutbildare, socialarbetare och familje- och professionella vårdgivare, med bidrag från externa specialister för att främja större kunskap och förståelse för FTD och dela bästa vårdpraxis.

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Care Approaches: Creating Well-Being with Person-Centered FTD Care

José G., the subject of this issue’s case study, had a rich social and family life, marked by accomplishments and meaningful connections. But soon after his diagnosis, he lost his job, his elected appointment, his car, his hobbies, his financial independence, and many of his relationships. Consequently, while receiving FTD care, José lost his sense…

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Disease Insights: FTD Overview

Frontotemporal degeneration (FTD), which refers to a group of progressive neurological diseases affecting the brain’s frontal and temporal lobes, is the most common cause of dementia for people under age 60. The FTD disorders are characterized by gradual deterioration in behavior, personality, language, and/or movement, with memory usually relatively preserved. FTD may also be referred…

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Case Study: Not Too Young—The Most Common Dementia Under 60

While dementia is popularly seen as a condition exclusively impacting the elderly, people in their 50s, 40s, 30s and even younger can be diagnosed. The most common dementia under 60 is frontotemporal degeneration (FTD), which can cause drastic behavioral and personality changes that can negatively disrupt one’s family life, employment situation, and sense of self….

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AFTD Resource: What to Do About Corticobasal Degeneration (CBD)

While often misdiagnosed as Parkinson’s disease based on their similar pathological symptoms, corticobasal degeneration (CBD) is a distinct condition that can cause muscle rigidity, spasms, and contractions, often on just one side of the body. (Corticobasal syndrome, or CBS, is its most common presentation.) Its largely movement-based symptoms can make for an especially frustrating experience…

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Från en Caregiver's Perspective: A Guide to Apraxia in CBS

by Janet Edmunson Apraxia is considered a core feature of CBS. However, people living with CBS and their families often find it hard to understand. Neurological textbooks provided the best summaries for my husband and me, but even with my master’s degree in health promotion, many of the neurological terms they used were foreign to…

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Ask an Expert: “Corticobasal Degeneration” (CBD) Or “Corticobasal Syndrome”? (CBS)

by Ece Bayram, MD, PhD Corticobasal degeneration can be difficult to diagnose at the clinical setting due to heterogeneity or variability in clinical presentation and lack of reliable predictors for underlying pathology. The terms “corticobasal syndrome” (CBS) and “corticobasal degeneration” (CBD) are sometimes used interchangeably, but these terms represent different entities. In CBD, an assessment…

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