FTD is frequently misdiagnosed as Alzheimer’s, depression, Parkinson’s disease, or a psychiatric condition. On average, it currently takes 3.6 years to get an accurate diagnosis.

Partners in FTD Care

AFTD’s Partners in FTD Care education initiative is a multi-pronged approach designed to provide a detailed resource for FTD education and support. It will be of value both to family care partners who support loved ones, as well as health professionals working with people living with FTD in residential facilities, day programs and other community-based settings. Developed by a committee of clinical nurse educators, social workers, and family and professional caregivers, with contributions from outside specialists, Partners in FTD Care promotes greater knowledge and understanding of FTD and the development of best care practices.

Two main elements comprise Partners in FTD Care: a regularly published e-newsletter highlighting specific challenges and issues related to FTD care, along with discussion questions and suggested interventions; and additional educational materials that can be used to guide healthcare professional staff in their FTD-specific training.

Partners in FTD Care Newsletters

Each issue of the Partners in FTD Care newsletter presents a case scenario that can be used in staff training.

Educational Materials

Additional educational materials are provided through Partners in FTD Care. Click the links below to download:

Video: It Is What It Is

A documentary short is also a part of Partners in FTD Care. It Is What It Is shows the impact that FTD has on four families. Watch the video here, or order a DVD version, which comes with an information booklet, discussion questions, a special version for trainers, and all of the materials listed above.