Support for Kids and Teens
As FTD progresses, it creates ever-changing obstacles and unique challenges for families to manage. Meanwhile, children grow and change. What your kids can understand about the disease, and what it will mean for their lives will evolve over the years.
Children and teens can become resilient and confident adults despite—and often as a result of—adversity. Your strength will help your children feel safe and will show them how people who love each other help one another in tough times. No one welcomes the changes that FTD brings. Yet hidden within the loss is the potential for unexpected positive growth.
AFTD has resources available for parents and children that can offer support:
What About the Kids?
Talking with Children and Teens About FTD
This document provides an overview of some things to keep in mind as you plan how to talk with children about FTD. Download PDF
What to Tell the Children?
This document provides another perspective on helping children and teens cope with a parent who has FTD. Download PDF
Telephone Support Group
AFTD sponsors a telephone support group for parents who manage care for a spouse or partner with FTD and have school-aged children at home. For more information, contact the AFTD HelpLine at firstname.lastname@example.org or 866-507-7221.
For Kids and Teens
AFTD Kids and Teens Website
This website provides a place where children and teenagers can ask questions, find answers and share experiences with peers who are on the FTD journey. There are two separate sections of this site, aimed at both kids (aged 4-12) and teenagers (aged 13 and up). Visit website
Frank and Tess – Detectives!
In this friendly activity book, FTD stands for Frank and Tess, Detectives! Frank and Tess are trying to help their mother, who is affected with FTD. There are plenty of coloring and puzzle activities that can also involve the patient. Sponsored by the Ontario Ministry of Health and Baycrest Alternative Funding Plan Innovation Grants. Download PDF