Director of Advocacy and Volunteer Engagement
The Director of Advocacy and Volunteer Engagement is responsible for developing and executing a federal and state public policy agenda to advance priority issues in frontotemporal degeneration (FTD), the most common form of dementia in people under age 60. Together with AFTD leadership they will coordinate a strategic advocacy agenda and initiatives to advance it. They will represent AFTD externally in coalitions, with legislators, and in professional meetings and conferences related to advancing AFTD's agenda. Click here to learn more and to apply.
The Education Coordinator assists the Education Programs Manager to implement initiatives that increase outreach, education, and support to healthcare professionals (HCPs) serving people impacted by FTD. The Education Coordinator is responsible for maintaining HCP contact information in AFTD's database, serving as the primary contact for HCP volunteer outreach activities, and assisting with HCP education resource and program development. Click here to learn more and to apply.
Gift Processing Assistant
The Gift Processing Assistant supports the representation of AFTD’s fundraising team both internally and externally, maintaining a strong focus on the administration of all donation processing and acknowledgement. They are directly responsible for supporting the Development team to drive vital donor engagement programs and donor relationships. Click here to learn more and to apply.
FTD Disorders Registry Positions
The FTD Disorders Registry Director is responsible for the scientific leadership and overall management of the FTD Disorders Registry. This role requires both strategic thinking and strong implementation skills and is critical to the successful execution and management of the Registry's mission and initiatives. This remote-based position will preferably be located near King of Prussia, PA and will report to the Registry President. Click here to learn more and to apply.
The FTD Disorders Registry Communications Manager will manage a portfolio of content for print and electronic communication channels, crafting materials targeted to varied segments of our audience. S/he will develop, maintain, and update content (text, images) for the FTDDR website (FTDregistry.org). S/he will develop/manage outreach campaigns, support colleagues in creating visual representations (charts, graphs) of basic demographics and research data, and assist with hosting webinars. Click here to learn more and to apply.