Resources

You don’t have to face the FTD journey without help. AFTD has created and compiled resources that you can use for support, as well as to educate yourself and others about this disease.

HelpLine

AFTD’s most important resource is its HelpLine. Call 866-507-7222 or send an email to [email protected] and our staff will respond with understanding and the most currently available information.

Comstock Grants

AFTD’s Comstock Grant program offers modest financial assistance to people with FTD and care partners to maximize their quality of life. Three grant programs are available for the person with FTD, full-time family care partners, and for travel to an FTD education conference. Visit page

Awareness Cards

These printable cards – available for both care partners and persons diagnosed – are an easy way to let others know what FTD is and how it may impact behavior in a public setting. Visit page

Provider Letter

This sample letter lets care partners and persons diagnosed inform healthcare professionals about FTD’s symptoms as well as ways they can help. It can also be given to other professionals whom you may deal with, including lawyers, family members, and law enforcement. AFTD offers letters written from the perspective of both persons diagnosed and care partners/caregivers.

Publications

This page contains information about publications from AFTD, a short documentary about FTD, and other recommended resources. Visit page

State-by-State, International, and Other Resources

For a list of state-by-state and international resources and ways to get involve — visit this page.

For a list of links to other resources that may provide useful FTD-related information to persons diagnosed, caregivers, healthcare professionals, and researchers, view this page.

Frequently Asked Questions

View our list of Frequently Asked Questions.