What's New
AFTD Webinar: Approaching a Cure — FTD Genetics and Clinical Trials
The landscape of FTD research has evolved tremendously over the last decade. FTD-causing genetic variants, and the mechanisms they disturb, offer a window to developing disease-modifying medications that target those…
Dear HelpLine: Connecting During Facility Visits
Dear HelpLine, My mom has FTD and lives in a facility, and I am struggling to find ways to connect with her when I visit. How can I make our…
U.S. Justice System Stumbles When Faced with FTD and Other Dementias, Article Finds
An article published in a recent issue of Scientific American examines the ways that the U.S. justice system often stumbles when confronted with cases that involve FTD or another form…
AFTD Receives $600,000 Gift for Vital Research and Family Support
Today, AFTD announced that it has received a $600,000 gift from the Open Hand Foundation, which is committed to finding a cure for FTD. Received on Wednesday, November 29th, this…
Open Hand Foundation Provides AFTD $600K for FTD Research
AFTD is pleased to announce that we have received a gift of $600,000 from the Open Hand Foundation to further its mission to hasten a cure for FTD and improve…
Advocacy Update: Federal Dementia Legislation Scheduled to Expire in 2025
The scientific understanding of FTD has increased more in the past 10 years than in the previous 100. At AFTD’s 2023 Education Conference in May, Dr. Bruce Miller of the…
Study Evaluates Brain-Atrophy Rates in Genetic FTD Carriers
A study published in the journal Neurology evaluates the brain degeneration or atrophy rates of presymptomatic carriers of mutations that can cause genetic FTD. Determining the relative age at which…
December 16: In-Person Meet & Greet in Boulder, CO
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Boulder, Colorado on December 16, starting at 2 p.m. MT. Download…
AFTD Volunteer and Former FTD Care Partner Discusses Importance of Self-Care in Podcast Interview
Corey Esannason, a former AFTD Ambassador, emphasized the need for self-care for FTD care partners and shared her insights as a yoga practitioner, care partner, and AFTD volunteer in an…
Guest Feature: Heal the Heart, Hold Up the Truths, and Find a Way
The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by moments of happiness, love, and connection. The following essay and poems by Sandy…
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