What's New
Olympic Distance Triathlon
Jason Nagin is participating in an Olympic Distance Triathlon on June 26, 2021 in memory of his grandmother who passed away from FTD, in honor of his mother who is currently living with FTD and in support of AFTD’s mission….
2021 AFTD Education Conference
On May 13th and 14th, from 12 p.m. to 4 p.m. ET each day, AFTD will convene its 2021 Education Conference online. People and families affected by FTD will find help, support, and opportunities to connect. Researchers and experts will…
Rare Dementia Panel Discussion: When It’s Not Alzheimer’s Disease
The Young Professionals Alzheimer’s Council will host a thoughtful expert panel discussion about various types of dementia and the relation between Alzheimer’s and dementia followed by a Q&A session. AFTD Ambassador Corey Esannason will be among the panelist. Download this…
The Jackie Pang Fund – Virtual Wine Tasting
The Jackie Pang Fund is hosting a virtual wine tasting experience on May 7, 2021 at 8:00 pm ET with a portion of proceeds to benefit AFTD’s mission. Supporters can enjoy an interactive, one-hour guided wine and chocolate pairing from…
Gene Therapy Could Repair Brain Damage Caused by Dementia, Study Shows
A recent study by the University of Cambridge has shown “promising evidence” that gene therapy has the potential to repair brain damage caused by dementia and may improve short-term memory. The study, published in Science Advances, analyzed how gene therapy, or the process of replacing missing or defective…
Stories of FTD Genetics Featured in “Brain & Life” Magazine
Brain & Life magazine recently told the stories of two people whose lives have been affected by FTD, and who participated in the March 5 AFTD-hosted Externally Led Patient-Focused Drug Development (EL-PFDD) meeting. Hannah Mackay, a police officer from West Sussex, England, and Wanda Smith, who lives in San Diego, were…
AFTD Founding Board Member Talks about Creation of FTD Caregiver Resource Book
AFTD founding Board member Lisa Radin shared her journey of being an FTD caregiver during Massachusetts General Hospital’s “Community Forum Friday” conversation series. Radin was a guest on the March 24 livestream hosted by Katie Brandt, MM, Director of Caregiver Support Services…
Researchers Evaluate Current and Future Status of Clinical Trials at International FTD Conference
Alzforum’s coverage of the 2021 International Conference on Frontotemporal Dementia concludes with an update on FTD clinical trials. According to the final article in the series, trials for carriers of GRN mutations are the farthest along in clinical trial developments. Julio Rojas of the University of California,…
Cohort Studies Join Together in Preparation for FTD Clinical Trials
In the sixth part of Alzforum’s coverage series of the 2021 International Conference on Frontotemporal Dementias, researchers provide an overview of how studies from around the world are uniting as clinical trials are in development. One such initiative, the FTD Prevention Initiative (FPI), unites multicenter studies like GENFI and ALLFTD together. FPI is jointly led by…
Social-Emotional Tests in FTD Research Discussed at International FTD Conference
Alzforum’s coverage of the 2021 International Conference on Frontotemporal Dementias continues with a closer look into neuropsychological tests. During the conference, researchers described the different tests that examine deficits in social and emotional cognition. According to the Alzforum article, Katherine Rankin of the University of California, San Francisco and colleagues have been working to validate four socioemotional…