What's New
Dallas Marathon
Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Dallas area and raise funds to help people affected by FTD. The AFTD-Team will participate in the BMW Dallas Marathon on…
CANCELED: Philadelphia Marathon
The Philadelphia Marathon has been canceled in response to the COVID-19 pandemic. The event has been rescheduled for November 2021. Note: Anyone who was registered on the AFTD-Team for this race, and/or anyone who fundraised for AFTD through this event,…
Webinar: FTD and Genetic Testing – A Practical Approach
About 40% of people affected by FTD have a family history with at least one other relative diagnosed with some form of neurodegenerative disease. Knowing as much as you can about your own, or a loved one’s, FTD diagnosis can…
AFTD-Backed Research Offers Insights into C9orf72 Protein Structure
New AFTD-funded research published in Nature provides important insights into the structure of the C9orf72 protein, which when mutated, is recognized as the most common genetic cause of both FTD and ALS. While the C9orf72 mutation is genetically implicated in…
AFTD Volunteer Talks #FTDhotshotchallenge in Canadian Newspaper
AFTD volunteer Amanda Dawson explains how the #FTDhotshotchallenge is helping to raise awareness of FTD — and increase hope for a future without this disease — in an article published in the Minden Times on October 13. Dawson’s father, Dr….
Jersey Shore Area Meet & Greet
Join AFTD Volunteer Stuart Waldman for a Virtual Meet & Greet for the Central NJ and Jersey Shore areas. E-meet (via Zoom video conference) others in your area whose lives are affected by FTD. RSVP is required to receive Zoom…
The Shawnee 50 Mile Trail Run
Paul Petras will be participating in the Shawnee 50 Mile Trail Run on October 10, 2020 in honor of his girlfriend, Serina Cline’s, father, who was diagnosed with FTD and passed away in 2012 after a 10-year journey with the…
AFTD Seeking Community Input Ahead of Patient-Focused Drug Development Meeting
On March 5, 2021, AFTD will host a Patient-Focused Drug Development meeting with representatives of the U.S. Food and Drug Administration. The meeting presents a unique chance to speak directly to the federal agency that regulates every prescription drug that…
Washington Post Details Impacts of COVID Isolation on Families Facing Dementia
As families facing FTD continue to also contend with the challenges of navigating the COVID-19 pandemic, the Washington Post sheds light on the devastating effects of care facility isolation during this difficult and unprecedented time. In a heartbreaking account of one family’s…
CANCELED: 12th International Conference on Frontotemporal Dementias, Minnesota
The 12th International Conference on Frontotemporal Dementias (ICFTD) and the 1st International Society for Frontotemporal Dementias Congress 2020, scheduled for October 7 – 10, has been canceled in response to COVID-19 pandemic.