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Celebrate and Remember Loved Ones to Cap Off World FTD Awareness Week

Today is the final day of World FTD Awareness Week. All week, we’ve been sharing interviews on different aspects of the FTD journey, and highlighting actions you can take to…

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Find and Give Support This World FTD Awareness Week

Today is the second day of World FTD Awareness Week, a global week of action to #endFTD. All week, we’ll be sharing different ways you can show the world you…

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Start World FTD Awareness Week 2023 Off with Steps Towards Self-Care

Today is the start of World FTD Awareness Week 2023 – a global week of action to #endFTD. All week, we’ll be sharing different actions you can take to show…

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October 13: 12th Annual Caregivers Conference in Richland, WA

AFTD volunteer Cheryl Garvey will be sharing FTD educational and awareness materials at the 12th Annual Caregivers Conference at the Richland Community Center in Washington State, taking place on October…

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New Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com

Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the short film Pedacito de Carne in an August 31 article published on NJ.com.…

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October 5: Virtual Meet & Greet for Syracuse, New York Area

AFTD Volunteer Molly Secrest is interested in helping to bring FTD awareness and resources to the Syracuse, New York area. More information about an upcoming new virtual support group in…

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Volunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research

FTD science has come far in the 21 years since AFTD began its mission, with scientists closer than ever to breakthroughs that could bring meaningful change to families facing the…

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AFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD

A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a STELLA-FTD, a remote support program tailored to the needs of families affected by…

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Research Paper Highlights Gaps in FTD Research, Calls for Greater Diversity in Studies

A comprehensive research paper published in the journal Alzheimer’s & Dementia highlights critical gaps in FTD research and calls on the international scientific community to incorporate greater diversity in future…

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Help & Support: Sleep Issues in FTD

Changes to sleep routines are a common challenge for the person living with FTD and their care partners.  Sleep changes can come in many forms including: Waking frequently during the…

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