What's New
Volunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research
FTD science has come far in the 21 years since AFTD began its mission, with scientists closer than ever to breakthroughs that could bring meaningful change to families facing the…
AFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD
A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a STELLA-FTD, a remote support program tailored to the needs of families affected by…
Research Paper Highlights Gaps in FTD Research, Calls for Greater Diversity in Studies
A comprehensive research paper published in the journal Alzheimer’s & Dementia highlights critical gaps in FTD research and calls on the international scientific community to incorporate greater diversity in future…
Help & Support: Sleep Issues in FTD
Changes to sleep routines are a common challenge for the person living with FTD and their care partners. Sleep changes can come in many forms including: Waking frequently during the…
NIH Identifies Genetic Risk Factors for FTD, Offers Data to Researchers Online
Scientists at the National Institutes of Health (NIH) leveraged cutting-edge technology to identify genetic risk factors for FTD and Lewy body dementia in a study published earlier this year in…
Australian Journalist Running Sydney Marathon to Honor Late Mother
Journalist Daisy Dumas will be running the Sydney Marathon on September 17 to raise awareness of FTD, the disease her mother lived with until her death in 2020. On a…
Advancing Hope: AFTD Staff Present at the 2023 Alzheimer’s Association International Conference
Senior Director of Scientific Initiatives Penny Dacks, PhD, and Director of Research and Grants Debra Niehoff, PhD, represented AFTD at the 2023 Alzheimer’s Association International Conference held July 14-15 in…
September 13: Monthly Care Partner Training on Frontotemporal Dementia
AFTD Director of Support & Education Esther Kane, MSN, RN-CDP, will be speaking about FTD at the September edition of Insight Memory Care Center’s Monthly Care Partner Training series. The…
AFTD Ambassador Emphasizes Need for Better Dementia Care in Podcast
Melissa Fisher, AFTD Ambassador and a senior strategic marketing consultant at Kaiser Permanente Northwest, shared the realities of being an FTD care partner while emphasizing emphasized the need for better…
AFTD and Passage Bio Discuss Therapeutics Designed for FTD-GRN
AFTD recently spoke with Passage Bio Chief Executive Officer William Chou, M.D., about his colleagues’ work to develop an effective therapeutic designed to treat FTD-GRN. *Responses have been edited for…
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