What's New
Follow AFTD on TikTok and Contribute Your Own Stories
AFTD has launched a new social media account on TikTok to help spread awareness of FTD online and get more people to #AskAboutFTD. @theaftd debuted on TikTok during World FTD…
BBC to Air Documentary on Former Rugby Player with Motor Neuron Disease
The British Broadcasting Corporation (BBC) is set to air a documentary that highlights the experiences of a former professional rugby player who was diagnosed with motor neuron disease (MND). Rob…
Second Annual 5Keg Fun Run at Bill’s Best Brewery
Bill’s Best Brewery in Glenside, Pennsylvania — a long-time supporter of AFTD — is holding its second annual 5Keg Fun Run on October 8. All proceeds benefit AFTD’s mission. Registration…
FDA Announcement on ALS Drug Reflects Growing Hope for Treatments
The FDA’s recent approval of a new drug to treat ALS signals important and promising developments for our community. In clinical trials, the drug, which will be marketed as Relyvrio…
AFTD Pleased to Announce New Brand Ambassador Nicole Petrie
ADTD is pleased to announce an official partnership with Nicole Petrie, a social media influencer and AFTD volunteer who is also a care partner for her mother. Over the next…
AFTD Ambassador Shares FTD Information, Experiences on Facebook Live
AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts Alzheimer’s Center to talk about FTD and share his firsthand experiences as a…
Karate Black Belt Shares His Experiences with Motor Neuron Disease
A karate ace in the UK shared his experiences of wanting to help people and stay active after his motor neuron disease (MND) diagnosis. The first signs that Liam Blaney…
Haverford Township Day
AFTD is a sponsor of the 27th annual Haverford Township Day in Haverford, Pennsylvania. Members of the AFTD team will be staffing a booth from 10 a.m. to 4 p.m.…
Help & Hope #90
Issue #90 September 15, 2022: In this issue you can learn about navigating facility care options for FTD, meet the recipient of the inaugural Clinical Research Training Scholarship (CRTS), and…
Finding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community
An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when trying to find long-term care for FTD and other dementias. Care partner…
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