What's New
Dallas Marathon
Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Dallas area and raise funds to help people affected by FTD. The AFTD-Team will participate in the BMW Dallas Marathon on…
CANCELED: Philadelphia Marathon
The Philadelphia Marathon has been canceled in response to the COVID-19 pandemic. The event has been rescheduled for November 2021. Note: Anyone who was registered on the AFTD-Team for this race, and/or anyone who fundraised for AFTD through this event,…
CANCELED: 12th International Conference on Frontotemporal Dementias, Minnesota
The 12th International Conference on Frontotemporal Dementias (ICFTD) and the 1st International Society for Frontotemporal Dementias Congress 2020, scheduled for October 7 – 10, has been canceled in response to COVID-19 pandemic.
World FTD Awareness Week 2020
World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member. Stay tuned to this page for more details as World FTD Awareness…
Food for Thought 2020
Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…
4th Annual Crusade for a Cure Golf Tournament
AFTD Ambassador Deb Scharper will host the 4th Annual Crusade for a Cure Golf Tournament on September 5, 2020, with proceeds benefiting AFTD research initiatives. The tournament will be held at Sunny Brae Golf Course (Osage, IA) and will feature…
NIH National Institute on Aging: Summit Virtual Meeting Series #3
2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers The National Institute on Aging (NIA), in conjunction with the Department of Health and Human Services as part of the National Alzheimer’s Project…
Separated Due to COVID-19, Family Facing FTD Celebrates Socially Distanced 80th Birthday
Although unable to physically be with her family on her 80th birthday, Sandra Beltz, who has FTD and lives in a continuing care facility, was recently able to celebrate from a distance. Due to safety measures meant to curb the…
Biotech Company Alector Announces Promising Data in FTD-GRN Treatment Study
Alector has dosed the first participant in a pivotal Phase 3 clinical trial evaluating the efficacy of its investigational therapy AL001, a human recombinant monoclonal antibody designed for the treatment of FTD caused by mutations in the progranulin gene (GRN)….
Research Points to Caregiver Concerns Surrounding Gun Safety and Dementia
New research raises concerns about firearm access for people with dementia, with a focus on the ability of caregivers to address related safety issues as neurodegeneration progresses. The study, conducted by researchers at the University of Colorado School of Medicine,…