What's New
AFTD’s 2021 Driving Hope Golf Tournament (NY)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, and spread FTD awareness by joining AFTD’s 2021 Driving Hope Golf Tournament taking place October 18th at the Seawane Club in Hewlett, NY! Tickets are available for single…
Food for Thought 2021
Food for Thought, AFTD’s flagship grassroots fundraising and awareness campaign, is back for its ninth year to help raise critical funds in support of AFTD’s mission. Held September 26 through October 10, Food for Thought encourages people across the country…
World FTD Awareness Week 2021
This World FTD Awareness Week, World FTD United is working to make sure that FTD stories from around the globe become part of a Global Conversation on FTD, designed to raise public awareness and foster connection and hope for all…
Central and Western New York Meet and Greet
Join AFTD volunteer Amy Canavan for a Virtual Meet & Greet for those in Central & Western New York. Connect via Zoom with others in your area whose lives are affected by FTD . Limited spots available. RSVP is…
Help & Hope #78
Issue #78: September 2021 In this issue you can get helpful tips and strategies for communicating with persons living with PPA, find out how to get involved in AFTD’s 9th annual Food for Thought campaign, the #FTDhotshotchallenge, or our 2021…
Webinar: The Role of Neuropalliative Care in FTD
How can neuropalliative care support individuals and families with FTD? This AFTD Educational Webinar will define neuropalliative care and its role in managing FTD symptoms and improving quality of life. Christina Vaughan, MD, of the University of Colorado, will discuss…
Not Too Young: The Most Common Dementia Under 60
Partners in FTD Care, Summer 2021 Download the full issue (pdf) While dementia is popularly seen as a condition exclusively impacting the elderly, people in their 50s, 40s, 30s and even younger can be diagnosed. The most common dementia affecting…
Daughter Writes Children’s Book in Honor of Father Who Had PSP
A newly published children’s book honors the author’s late father, who died from complications related to progressive supranuclear palsy (PSP), an article published on the website of the Today show said. Ginny Toman, author of Always in Your Heart, shared…
Communicating with Persons Living with PPA: Tips and Strategies
Compiled by Stacey Moeller, MSc, AFTD-affiliated PPA Support Group Volunteer Primary progressive aphasia (PPA) is characterized by a gradual loss of one’s ability to speak, read, write, and understand speech. The inability to communicate is troublesome for the person living…
Spotlight On…Mary Beth Wighton, Activist and Author
Finding a renewed sense of purpose amid an FTD journey can be challenging, but for Mary Beth Wighton, living in the moment is how she’s been able to find her footing. “My great niece gave me a painting that had…