What's New

AFTD Volunteer Speaks about Trading Career for New “Vocation” as Caregiver

Alma Valencia, an AFTD volunteer in California, shared the challenges, stresses, and “moments of joy” she experiences as her mother’s caregiver in an as-told-to essay published recently in Business Insider.…

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Transposon Therapeutics Receives Fast Track Designation for PSP Treatment

Biotechnology company Transposon Therapeutics announced on May 21 that it has received Fast Track designation from the U.S. Food and Drug Administration (FDA) for an intervention developed to treat progressive…

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Biomarkers Consortium Letter of Intent to Qualify FTD Biomarker accepted by FDA

The Foundation for the National Institutes of Health (FNIH) Biomarkers Consortium announced in May that the US Food and Drug Administration (FDA) has accepted its letter of intent to apply…

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June 24, 2024: VA Caregiver Support Annual Summit

AFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled “Beyond…

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Aprinoia Therapeutics Receives Fast Track Designation for PET Tracer for PSP Diagnosis

Biopharmaceutical company Aprionoia Therapeutics announced that it has received an FDA Fast Track Designation for an imaging tracer used to diagnose progressive supranuclear palsy (PSP), an FTD disorder that primarily…

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Dear HelpLine – Support for Young Adults

Dear HelpLine, My mom was diagnosed with FTD and I’m looking to connect with other young adults caring for a parent with FTD. Without support, I am overwhelmed and feel…

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Advancing Hope: AFTD Joins National Institutes of Health AMP ALS Initiative as Partner

AFTD is joining fellow nonprofits, biopharmaceutical companies, and the U.S. Food and Drug Administration (FDA) as partners in the Accelerating Medicines Partnership for ALS (AMP ALS) initiative. AFTD’s participation in…

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New York FTD Registry Bill Passes State Senate

A bill establishing a registry of FTD diagnoses in New York State unanimously passed the state Senate on June 5. Sponsored by Sen. Michelle Hinchey, Senate Bill 7874 requires healthcare…

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AFTD Board Member Kristin Holloway Tells Her FTD Story to Self Magazine

AFTD Board member Kristin Holloway shared her experiences as a care partner for her husband, Lee, in an article published by Self magazine on May 17. Holloway began noticing alarming…

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July 15, 2024: Virtual Meet & Greet for Pittsburgh, Pa. Area

Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15, beginning…

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