What's New

U.S. Rep. Jennifer Wexton Announces Progressive Supranuclear Palsy Diagnosis

Representative Jennifer Wexton of Virginia announced last week that she would not be seeking re-election after receiving a diagnosis of progressive supranuclear palsy (PSP). In April, Wexton announced that she…

Read More

World FTD Awareness Week Guest Feature: Advocating for the Future, Advocating for Love – Insights From a Lifelong FTD Journey

Despite the grief, frustration, and sadness that can affect families on the FTD journey, many have channeled those experiences positively, using them for motivation to create a better future for…

Read More

Advancing Hope: AFTD Holds Inaugural Research Roundtable Conference to Convene Stakeholders in FTD Research

The FTD Research Roundtable is a new initiative at AFTD to enable discussion and shared problem-solving across the biopharma companies developing treatments for FTD and the regulatory agencies that evaluate…

Read More

Emma Heming Willis and AFTD CEO Susan L-J Dickinson Interviewed on NBC’s “Today Show”

Emma Heming Willis gave updates on her family’s FTD journey and discussed the disease alongside AFTD CEO Susan L-J Dickinson, MSGC, in an interview broadcast on the Today show on…

Read More

Study Assesses Machine Learning in Classifying FTD and Alzheimer’s in Underrepresented Groups

A study published in the medical journal The Lancet assessed the use of machine learning and clinically gathered data (such as cognitive and behavioral screening scores) to classify and discriminate…

Read More

Celebrate and Remember Loved Ones to Cap Off World FTD Awareness Week

Today is the final day of World FTD Awareness Week. All week, we’ve been sharing interviews on different aspects of the FTD journey, and highlighting actions you can take to…

Read More

Find and Give Support This World FTD Awareness Week

Today is the second day of World FTD Awareness Week, a global week of action to #endFTD. All week, we’ll be sharing different ways you can show the world you…

Read More

Start World FTD Awareness Week 2023 Off with Steps Towards Self-Care

Today is the start of World FTD Awareness Week 2023 – a global week of action to #endFTD. All week, we’ll be sharing different actions you can take to show…

Read More

October 13: 12th Annual Caregivers Conference in Richland, WA

AFTD volunteer Cheryl Garvey will be sharing FTD educational and awareness materials at the 12th Annual Caregivers Conference at the Richland Community Center in Washington State, taking place on October…

Read More

New Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com

Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the short film Pedacito de Carne in an August 31 article published on NJ.com.…

Read More