What's New

Follow AFTD on TikTok and Contribute Your Own Stories 

AFTD has launched a new social media account on TikTok to help spread awareness of FTD online and get more people to #AskAboutFTD.  @theaftd debuted on TikTok during World FTD…

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BBC to Air Documentary on Former Rugby Player with Motor Neuron Disease 

The British Broadcasting Corporation (BBC) is set to air a documentary that highlights the experiences of a former professional rugby player who was diagnosed with motor neuron disease (MND).   Rob…

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Second Annual 5Keg Fun Run at Bill’s Best Brewery

Bill’s Best Brewery in Glenside, Pennsylvania — a long-time supporter of AFTD — is holding its second annual 5Keg Fun Run on October 8. All proceeds benefit AFTD’s mission. Registration…

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FDA Announcement on ALS Drug Reflects Growing Hope for Treatments

The FDA’s recent approval of a new drug to treat ALS signals important and promising developments for our community. In clinical trials, the drug, which will be marketed as Relyvrio…

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AFTD Pleased to Announce New Brand Ambassador Nicole Petrie

ADTD is pleased to announce an official partnership with Nicole Petrie, a social media influencer and AFTD volunteer who is also a care partner for her mother. Over the next…

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AFTD Ambassador Shares FTD Information, Experiences on Facebook Live 

AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts Alzheimer’s Center to talk about FTD and share his firsthand experiences as a…

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Karate Black Belt Shares His Experiences with Motor Neuron Disease 

A karate ace in the UK shared his experiences of wanting to help people and stay active after his motor neuron disease (MND) diagnosis.   The first signs that Liam Blaney…

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Haverford Township Day

AFTD is a sponsor of the 27th annual Haverford Township Day in Haverford, Pennsylvania. Members of the AFTD team will be staffing a booth from 10 a.m. to 4 p.m.…

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Help & Hope #90

Issue #90 September 15, 2022: In this issue you can learn about navigating facility care options for FTD, meet the recipient of  the inaugural Clinical Research Training Scholarship (CRTS), and…

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Finding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community 

An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when trying to find long-term care for FTD and other dementias.   Care partner…

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