What's New
AFTD Receives $600,000 Gift for Vital Research and Family Support
Today, AFTD announced that it has received a $600,000 gift from the Open Hand Foundation, which is committed to finding a cure for FTD. Received on Wednesday, November 29th, this…
Open Hand Foundation Provides AFTD $600K for FTD Research
AFTD is pleased to announce that we have received a gift of $600,000 from the Open Hand Foundation to further its mission to hasten a cure for FTD and improve…
Advocacy Update: Federal Dementia Legislation Scheduled to Expire in 2025
The scientific understanding of FTD has increased more in the past 10 years than in the previous 100. At AFTD’s 2023 Education Conference in May, Dr. Bruce Miller of the…
Study Evaluates Brain-Atrophy Rates in Genetic FTD Carriers
A study published in the journal Neurology evaluates the brain degeneration or atrophy rates of presymptomatic carriers of mutations that can cause genetic FTD. Determining the relative age at which…
December 16: In-Person Meet & Greet in Boulder, CO
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Boulder, Colorado on December 16, starting at 2 p.m. MT. Download…
AFTD Volunteer and Former FTD Care Partner Discusses Importance of Self-Care in Podcast Interview
Corey Esannason, a former AFTD Ambassador, emphasized the need for self-care for FTD care partners and shared her insights as a yoga practitioner, care partner, and AFTD volunteer in an…
Guest Feature: Heal the Heart, Hold Up the Truths, and Find a Way
The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by moments of happiness, love, and connection. The following essay and poems by Sandy…
Perspectives in FTD Research Webinar: Why PSP and CBS Clinical Trials Matter
Progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS) are FTD disorders that primarily affect movement and are sometimes called atypical parkinsonism. In this Perspectives in FTD Research Webinar, presented jointly…
Volunteer Update: Hosting an Information Table Event
Hosting an information table on behalf of AFTD gives our volunteers a perfect way to bring awareness to their hometowns. AFTD volunteers can use information tables to engage, educate, and…
Pilot Study Evaluates Virtual Coaching’s Ability to Help FTD Care Partners with Self-Care
A pilot study published in the journal Alzheimer’s & Dementia: Translational Research and Clinical Interventions tests if the remote support program “Virtual Caregiver Coach for You” (ViCCY) was effective in…
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