What's New
Tips & Advice: Documenting Changing Behavior
Many behaviors caused by FTD, such as aggression, disinhibition, delusions, and apathy, are challenging and distressing for people diagnosed and care partners. Such behaviors often result from an unmet need,…
Wave Life Sciences Ends FTD/ALS Trial of WVE-004
Yesterday, Wave Life Sciences announced that it ended its FOCUS-C9 clinical trial for the drug WVE-004, which was being evaluated as a potential treatment for FTD and amyotrophic lateral sclerosis…
Advancing Hope: Major Leaders in FTD and ALS Research Gather in Arizona for Summit on C9orf72 Gene
In March, prominent leaders in FTD and ALS research gathered in Scottsdale, Arizona, for the first-ever summit on the C9orf72 gene, variations of which constitute the most common cause of…
FTD Can Produce a Creative Spark in Some, Study Finds
Brain atrophy patterns specific to FTD can let loose previously suppressed creative abilities in some people diagnosed with the disease, according to a study published earlier this year in JAMA…
“What Do People with PPA Want from Speech-Language Therapy?” Recent Study Asks
A study published in the International Journal of Language and Communication Disorders explores the needs of people affected by primary progressive aphasia (PPA) and how speech-language therapy (SLT) can be…
May’s Athlete of the Month: Dane Sundseth
AFTD’s May Charity Miles Athlete of the Month is Dane Sundseth from Southern California! After a friend of his family member was diagnosed with FTD, Dane made a choice to…
May 25: 2023 Woodland Senior Resource Fair
AFTD volunteer Debby Scanlan will be representing AFTD at the 2023 Woodland Senior Resource Fair in Woodland, California. She will be hosting an information table to bring awareness of FTD…
May 31: Aging Unbound Fair
AFTD will be hosting an information table at the Aging Unbound Fair on May 31 in Burke, Virginia, near Washington, DC. Additionally, AFTD volunteer Sarah Beil will speak about how…
AFTD and ALS Association Launch Funding Opportunity for Digital Tool Development in ALS and Frontotemporal Dementia
AFTD and The ALS Association are launching a funding opportunity to support collaborative development of digital assessment tools across two overlapping neurodegenerative disorders: frontotemporal degeneration (FTD) and amyotrophic lateral sclerosis…
June 1: In-Person Meet & Greet in Fredericksburg, VA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Fredericksburg, Virginia on June 1, starting at 5 p.m. Download this…
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