What's New
U.S. Rep. Jennifer Wexton Announces Progressive Supranuclear Palsy Diagnosis
Representative Jennifer Wexton of Virginia announced last week that she would not be seeking re-election after receiving a diagnosis of progressive supranuclear palsy (PSP). In April, Wexton announced that she…
World FTD Awareness Week Guest Feature: Advocating for the Future, Advocating for Love – Insights From a Lifelong FTD Journey
Despite the grief, frustration, and sadness that can affect families on the FTD journey, many have channeled those experiences positively, using them for motivation to create a better future for…
Advancing Hope: AFTD Holds Inaugural Research Roundtable Conference to Convene Stakeholders in FTD Research
The FTD Research Roundtable is a new initiative at AFTD to enable discussion and shared problem-solving across the biopharma companies developing treatments for FTD and the regulatory agencies that evaluate…
Emma Heming Willis and AFTD CEO Susan L-J Dickinson Interviewed on NBC’s “Today Show”
Emma Heming Willis gave updates on her family’s FTD journey and discussed the disease alongside AFTD CEO Susan L-J Dickinson, MSGC, in an interview broadcast on the Today show on…
Study Assesses Machine Learning in Classifying FTD and Alzheimer’s in Underrepresented Groups
A study published in the medical journal The Lancet assessed the use of machine learning and clinically gathered data (such as cognitive and behavioral screening scores) to classify and discriminate…
Celebrate and Remember Loved Ones to Cap Off World FTD Awareness Week
Today is the final day of World FTD Awareness Week. All week, we’ve been sharing interviews on different aspects of the FTD journey, and highlighting actions you can take to…
Find and Give Support This World FTD Awareness Week
Today is the second day of World FTD Awareness Week, a global week of action to #endFTD. All week, we’ll be sharing different ways you can show the world you…
Start World FTD Awareness Week 2023 Off with Steps Towards Self-Care
Today is the start of World FTD Awareness Week 2023 – a global week of action to #endFTD. All week, we’ll be sharing different actions you can take to show…
October 13: 12th Annual Caregivers Conference in Richland, WA
AFTD volunteer Cheryl Garvey will be sharing FTD educational and awareness materials at the 12th Annual Caregivers Conference at the Richland Community Center in Washington State, taking place on October…
New Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com
Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the short film Pedacito de Carne in an August 31 article published on NJ.com.…