What's New
Externally Led Patient-Focused Drug Development Meeting
On March 5, 2021 AFTD will host a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) meeting with representatives of the U.S. Food and Drug Administration. The FDA uses these meetings to better understand diseases like FTD, and it represents a…
Community Information Session: Learn More About AFTD’s March 5th Externally Led PFDD Meeting
On February 4, AFTD will host an online Community Information Session, providing information and answering questions about the upcoming AFTD-hosted virtual Externally Led Patient Focused Drug Development (EL-PFDD) meeting. The Externally Led PFDD meeting, to be held March 5, will…
N.Y. Couple Discuss Anticipatory Grief in FTD
Karin and Rudy Fuehrer, a married couple of 38 years, shared their story of managing the “anticipatory grief” associated with FTD in a December 24 article and radio segment on WSKG, the National Public Radio affiliate in Binghamton, New York….
RSVP to Help Inform Future FTD Treatments
On March 5, 2021 AFTD will host a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) meeting with representatives of the U.S. Food and Drug Administration. The FDA uses these meetings to better understand diseases like FTD, and it represents a…
Jan. 9 — West Coast Virtual Meet & Greet
Join AFTD Volunteer Maureen Stroka for a West Coast Virtual Meet & Greet for young adults, ages 20 – 45, who have a parent living with FTD. E-meet (via Zoom video conference) others in your area whose lives are affected…
Study Shows Apathy May Be Early Indicator of FTD
A recent study shows that apathy can be an early indicator of FTD, presenting itself long before other FTD symptoms emerge, Science Alert reported in a December 17 article. Apathy, a lack of interest or motivation, is a common symptom…
Persons with FTD Discuss “Lost” Pandemic Year
While the COVID-19 pandemic has forced everyone to postpone or cancel our most ambitious plans for 2020, persons diagnosed with FTD and other terminal diseases felt a more acute sense of loss during this most “bucket-list-shredding” of years, a Dec….
East Coast Virtual Meet & Greet
Join AFTD Volunteer Jen Hoar for an East Coast Virtual Meet & Greet for young adults, ages 20 – 45, who have a parent living with FTD. E-meet (via Zoom video conference) others in your area whose lives are affected…
Help & Hope #69
Issue #69: December 2020 In this issue you can get ideas for establishing new holiday traditions this year, find out how to get involved in the 10th anniversary of our With Love campaign, learn about an upcoming opportunity to make…
Ways to Support AFTD with a Year-End Gift
As we approach the end of 2020, AFTD is grateful for the dedication and generosity of the volunteers, donors and partners who are essential to our work. If you have the means, there are a number of ways to support…