What's New

March 23, 2024: In-Person Meet & Greet in Spring Valley, Minn.

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD Ambassador Deb Scharper, in Spring Valley, Minn., on Saturday,…

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A Note to the AFTD Community about Wendy Williams’s FTD Diagnosis

Since last week’s announcement that the former talk show host Wendy Williams has been diagnosed with FTD, combined with the premiere of the docuseries Where Is Wendy Williams? over the…

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AFTD Webinar: The Current State of FTD

Today, more people than ever know what FTD is and how it differs from other dementias, while clinical trials are actively testing therapies that could slow or halt disease progression.…

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Advocacy Update: Rare Disease Day and FTD

Rare Disease Day, which occurs annually on the last day of February, was established by the European Organization for Rare Diseases and first observed on February 29, 2008. Rare Disease…

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March 13, 2024 — There’s More Than Alzheimer’s: Sharing the Spotlight with Lewy Body Dementia and Frontotemporal Degeneration

AFTD Ambassador Jackie Shapiro will talk about FTD at this workshop presented by the Alzheimer’s Foundation of America (AFA) and taking place at the Apsley, an assisted living facility located…

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Magazine Editor Shares Legacy of Beloved Seattle Music Promoter Diagnosed with FTD

In an interview with NPR, Charles R. Cross, former editor of the music magazine The Rocket, shared the legacy of Seattle music promoter Susie Tennant, who died in January after…

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AFTD CEO Discusses Wendy Williams’s FTD Diagnosis

In an interview with The Daily Beast about Wendy Williams’s recent FTD diagnosis, AFTD CEO Susan L-J Dickinson spoke about the stigma surrounding FTD and the importance of getting an…

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Guest Feature: Somebody’s Sister

FTD is an aggressive disease that disrupts people’s lives and relationships, with families often unsure what they are up against at first because it isn’t widely known. As Deborah Dowdell Perry shares…

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Broadcaster Wendy Williams Diagnosed with FTD

The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement. “In 2023, after undergoing a battery of medical…

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AFTD Volunteer Shares Father’s FTD Journey to Promote Awareness in News Interviews

AFTD volunteer Scott Oxarart raised awareness of FTD throughout Nevada in interviews aired by 2 News Nevada and KOLO News Now on February 13 and 14. A former care partner…

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