What's New
Dallas Marathon
Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Dallas area and raise funds to help people affected by FTD. The AFTD-Team will participate in the BMW Dallas Marathon on…
Philadelphia Marathon
Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Philadelphia area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Philadelphia Marathon on November 21-22,…
12th International Conference on Frontotemporal Dementias, Minnesota
The 12th International Conference on Frontotemporal Dementias (ICFTD) and the 1st International Society for Frontotemporal Dementias Congress 2020 will be held in Minneapolis, Minnesota on October 7 – 10. ICFTD provides the primary venue for the international synthesis, exchange and…
World FTD Awareness Week 2020
World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member. Stay tuned to this page for more details as World FTD Awareness…
Persons Living with FTD Discuss Challenges of COVID-19
As COVID-19 continues to constrain families to their homes throughout much of the world, BBC News highlights the profound impact the pandemic is having on people living with FTD and other forms of dementia. The article shares the unique perspective…
International Consortium Develops New Guidelines to Help Diagnose bvFTD
An international team of researchers has developed clinical recommendations that could make a diagnosis of behavioral variant FTD (bvFTD) easier by helping to distinguish the condition from psychiatric disorders. The guidelines are based on reviews of available medical literature and…
Actress Lara Jill Miller Shares FTD Journey
Actress Lara Jill Miller recently spoke about her mother’s journey with FTD and how she is fighting back against the disease. Best known for her role as Samantha “Sam” Kanisky in Gimme a Break!, Miller has also appeared in The…
Gut-Brain Connection Could Influence Outcomes of C9 Genetic Mutation
Scientists at Harvard University have discovered a new gut-brain connection that could help to explain why some individuals with the C9orf72 mutation develop ALS, FTD, or no symptoms at all. Published in the journal Nature, the study found that in…
“Zoey’s Extraordinary Playlist” Concludes with Emotional Finale
In an emotional and heartfelt finale, Zoey’s Extraordinary Playlist depicts the devastating role of grief and loss in FTD as the family at the center of the show says goodbye to their father, who has progressive supranuclear palsy (PSP). The…