AFTD Educational Webinar: Person-Centered Care for Behavioral Variant FTD

The symptoms of behavioral variant FTD (bvFTD), the most common FTD disorder, include impaired executive functioning and social comportment. Caregivers of persons with bvFTD face a unique set of challenges, including young age, competing life demands such as work and raising children, lack of public awareness about FTD, and limited supportive resources. After a diagnosis,…

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Unique FTD Caregiving Story Detailed in “Atavist” Article

Unique FTD Caregiving Story Detailed in “Atavist” Article

The story of a literature professor who received FTD care in his last years from a previously incarcerated person he had befriended while co-running a prison arts program was recently recounted in the Atavist, an online publication focused on long-form journalism. The professor, Buzz Alexander, co-founded the University of Michigan’s Prison Creative Arts Project (PCAP)…

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Sodium Selenate Could Be Promising Treatment for bvFTD, Study Suggests

Sodium Selenate Could Be Promising Treatment for bvFTD, Study Suggests

Scientists from Monash University in Australia are investigating whether the dietary supplement sodium selenate could be a useful treatment option for some persons living with behavioral variant FTD (bvFTD). In a recent study published in Alzheimer’s and Dementia: Translational Research and Clinical Interventions, researchers presented findings from a small, uncontrolled, preliminary clinical trial. Sodium selenate…

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FTD Care Partner Discusses Husband’s FTD Diagnosis, Finding Support on “Dementia Dialogue” Podcast

FTD Care Partner Discusses Husband’s FTD Diagnosis, Finding Support on “Dementia Dialogue” Podcast

FTD care partner Jill Czuczman discussed finding a positive approach to living with a young-onset dementia diagnosis in a recent episode of the Dementia Dialogue podcast. Czuczman joined guest host Kathy Hickman to share how her family is navigating her husband’s FTD diagnosis, and the challenges they’ve faced on their journey. David Czuczman was diagnosed…

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AFTD CEO Discusses FTD and ALS at 2022 Target ALS Annual Meeting

AFTD CEO Susan L-J Dickinson, MSGC, talked about FTD and its connection to ALS during an interview conducted at the 2022 Target ALS Annual Meeting, held May 3-5 in Cambridge, Massachusetts. During the conversation with Target ALS Director of Communications Steve Schonberg, available to watch on the Target ALS YouTube channel, Dickinson defines FTD and…

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1,200+ People Impacted by Young-Onset Dementia Gather for AFTD’s Annual Education Conference

More than one thousand people impacted by frontotemporal degeneration (FTD), the most common dementia under 60, came together to connect, learn, and engage with a community that understands the disease at the Association for Frontotemporal Degeneration’s (AFTD) first-ever hybrid Education Conference, on Friday, April 8. Persons diagnosed with FTD, care partners, caregivers, researchers, health care…

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AFTD News: Spring 2022, Vol. 19, Issue 1

In this issue: 2021 FTSG Meeting Sees Development of FTD Treatments Gaining Ground; Remembering John Q. Trojanowski, Founding AFTD Medical Advisory Council Member; Spotlight on… Dr. Halima Amjad, AFTD Board of Directors; AFTD and FTD Disorders Registry Co-Presenting Special Webinar Series; AFTD Medical Advisor Awarded Million-Dollar Grant for FTD-FUS Research; Persons with FTD Advisory Council…

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Hope to Make a Difference

Matthews Family

“Hope can bring you together with others, and lead you to make a difference. Hope can help you find ways to honor those you love.” – Liz Matthews, AFTD volunteer Liz Matthews is driven by hope and resolve, shaped by her experience as a child of someone who lived with FTD. Growing up in a…

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