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AFTD News: Fall 2018, Vol. 15, Issue 3
In this issue: World FTD Awareness Week 2018 Observed Around the Globe; Hope Rising 2018 Draws Record Crowd to Show Support for AFTD’s Mission; Spotlight on… David Pfeifer, AFTD Board of Directors; Congress Increases Funding for NIH Dementia Research in…
Consider Supporting AFTD This #GivingTuesday…
November 27th marks the seventh annual Giving Tuesday, a day to recognize and support the important work done by philanthropic organizations across the United States. It’s clear that you have choices to make in considering nonprofits for support; know that…
Support AFTD Through AmazonSmile This Holiday Season
As you do your holiday shopping this Black Friday, Cyber Monday and beyond, please consider using AmazonSmile and designating AFTD as your preferred charitable organization. You will enjoy the prices (and special offers) as Amazon.com, but the AmazonSmile Foundation will…
Former FTD Caregiver Nancy Carlson Profiled in Minn. Star Tribune
November is National Family Caregivers Month, an opportunity to recognize the spouses, children, family members and friends who help loved ones living with disabilities and long-term illnesses to maintain their highest possible quality of life. But caregivers need to sustain…
Photo Essay Captures Couple’s FTD Journey
A photo essay published on October 30 in The Guardian chronicled an Australian couple’s FTD journey and ongoing devotion to one other, even as the disease progresses. Gladys Saroli began displaying FTD symptoms, including combativeness and aggression, during a 2013…
Third Annual AFTD Benefit Draws Largest Attendance to Date, Raises over $1.9 Million, in Support of Frontotemporal Degeneration Research, Support and Awareness
AFTD held its annual Hope Rising Benefit on Wednesday, October 17. The benefit drew its highest attendance since the first gala in 2016, and raised more than $1.9MM to fuel AFTD’s mission of advancing FTD research and improving quality of…
2018 Hope Rising Benefit Draws Record Attendance to Support AFTD’s Mission
More than 500 people gathered in New York City for the third annual AFTD Hope Rising Benefit on October 17, raising more than $1.9 million to further AFTD’s mission of advancing FTD research and improving quality of life for everyone…
Carol Hall, Acclaimed Musician and Songwriter, Dies of PPA
Carol Hall, a classically trained pianist and successful Broadway composer, died of logopenic primary progressive aphasia (PPA) on October 11. She was 82. Her obituary in The New York Times confirmed the rare dementia, a form of frontotemporal degeneration, as…
N.Y. Times Profiles Person with FTD in Article about Living with Dementia
An article published by The New York Times on October 5 highlights the ways in which persons diagnosed with dementia continue to live active lives following diagnosis. It chronicles the steps taken by Laurie Scherrer, a 60-year-old Pennsylvania woman with…
New AFTD PSA Produced with Discovery, Inc. Will Bring Awareness of Young-Onset Dementia
A new PSA released by AFTD in partnership with Discovery highlights the challenges faced by families in the wake of an FTD diagnosis. The 30-second video features firsthand testimonials from three individuals whose lives have been touched by FTD; it…