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Apathy Highlighted as FTD Symptom in U.S. News & World Report Article
U.S. News & World Report published an article on September 7 highlighting apathy as a symptom of and warning sign for FTD and other forms of dementia, often developing months or years before a diagnosis is made. The article highlights…
AFTD Regional Coordinator Volunteer Speaks at NAPA Meeting
On July 30, Sarah Sozansky Beil, an AFTD Regional Coordinator Volunteer for the Middle Atlantic region, delivered remarks before a meeting of the National Alzheimer’s Project Act (NAPA) Advisory Council. She spoke about her personal experiences with FTD — her…
2019 AFTD Education Conference: May 3, 2019
The 2019 AFTD Education Conference will be held on May 3, 2019 in Los Angeles. Mark your calendars now for a day filled with learning, sharing and making connections with others who understand FTD. More details on the day’s programming…
Messages of Hope
Invite hope. #MessagesOfHope #FTD #ThinkFTD #endFTD #dementia #raredisease #AFTD #hope #fear #invite #invitation #choosehope #mayaangelou #mayaangelouquotes #wordsofwisdom #quoteoftheday
Partners in FTD Care #24: An Evolving Understanding of ALS with Frontotemporal Degeneration
This AFTD publication focuses on ALS with FTD, an especially complicated and challenging form of FTD. It tells the story of Cathy R., a woman in her 60s, who increasingly shows symptoms of both conditions; her husband Michael, however, is…
A Genetic Perspective on ALS and Frontotemporal Degeneration
Partners in FTD Care Spring 2018 Approximately 40% of affected individuals with FTD have a family history that includes at least one other relative diagnosed with a neurodegenerative disease. Their FTD is said to be familial, or hereditary. Hereditary FTD…
Common Presentations of ALS with FTD
Partners in FTD Care Spring 2018 ALS can present in myriad ways, with weakness in any segment of the body. Roughly 75% of patients present with limb weakness, 25% present with bulbar weakness (trouble speaking or swallowing), and a small…
A Shared Genetic Mutation
Partners in FTD Care Spring 2018 The discovery in 2011 that the C9orf72 gene mutation can cause both frontotemporal degeneration (FTD) and amyotrophic lateral sclerosis (ALS) has transformed a long-held belief that ALS is purely a neuromuscular disorder and that…
What to Do About… ALS with FTD
Partners in FTD Care Spring 2018 Over the last ten years, there has been increasing recognition of a continuum between ALS and frontotemporal degeneration (FTD). Up to half of people with ALS also show symptoms of FTD, while up to…
A Caregiver’s Perspective…on Slow-Developing ALS with FTD
Partners in FTD Care Spring 2018 by Miki Paul, PhD, psychologist, former caregiver of husband who had ALS with FTD, and facilitator of the AFTD phone support group for caregivers of loved ones who have ALS with FTD I lost…