Find Support Near You…
FTD is a complex disease. Upon a loved one’s diagnosis, care partners face emotional and practical challenges that can be overwhelming and isolating. Support groups provide a resource, an outlet, and a place to collect and share your thoughts with others who understand.
“I went to the FTD support group for the first time last night and came back feeling so much better…with so many answered questions. I now feel like I’m not alone…” Sandy, TX
What happens at an FTD support group?
In your journey as an FTD care partner, you will face difficult and uncomfortable scenarios, take on new roles in your relationship, and be forced to adjust to a life forever altered by this disease. Support groups can help you navigate through the many facets of caring for someone with FTD.
Groups typically meet once a month. When a support group is led by an AFTD trained volunteer (identified by red pins in the map below), the volunteer has been trained and empowered by AFTD to foster practical, supportive group discussions, around topics such as
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- Safety
- Symptom management
- Adapting to changes and changing relationships
- Local resources
- Activities for the person living with FTD
- Your own self-care
- Navigating grief that can arise throughout this journey.
- Topics presented by guest speakers at the request of the group (for example: an Elder Law Attorney).
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The map below shows support groups in your area: Click on the icons to learn more about each group.
PLEASE NOTE: In response to the COVID-19 pandemic, most support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
3rd Monday of each month, 6-7 p.m. ET
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Jill Goldman MS, MPhil, CGC 212-305-7382 [email protected] |
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Tanish Gupta [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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2nd Tuesday of each month, 6 p.m.
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Debbie Millis (612) 998-7332 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
2nd Mondays of the month, 7 p.m.
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Kathleen Keegan (516) 578-8737 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
First Monday of the month, 6 p.m.
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Ashley Collins [email protected] |
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Colton Sayers [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
2nd & 4th Mondays 6:00 - 8:00 p.m.
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Mallory Bushey (651) 232-2202 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Last Wednesday of the month, 5 p.m.
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Hayley Young [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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3rd Tuesday of the month 12:30 – 2:00 p.m.
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Daniela Saylor 602-406-9977 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Mt. Zion United Methodist Church
19600 Zion Avenue
Cornelius, NC 28031
3rd Monday of the month, 10:30 a.m. - 12 p.m.
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Charles Elligson 704-442-5594 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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LCC Wellington Center
151 Commerce Dr. #8947
Wellington, OH 44090
4th Thursdays of the month, 6-7 p.m.
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Carrie Benton [email protected] |
The Fleming Memory Center
17th and Chew St.
Allentown, PA 18106
4th Wednesdays of the month, 10-11am
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Wendy Scott 610-969-2278 [email protected] |
Ruth Keeler Memorial Library
276 Titicus Rd.
North Salem, NY 10560
Last Monday of the month, 4 p.m.
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Tanya Steel (914) 708-8801 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Alyssa Radcliff (866) 507-7222 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Matt Dineen (866) 507-7222 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Miki Paul 866-507-7222 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Bridget Moran-McCabe 866-507-7222 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Carol Lovett 866-507-7222 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Mary McLeod 866-507-7222 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Woodland Hills Branch Library
22200 Ventura Boulevard
Woodland Hills, CA 91364
1st & 3rd Tuesdays, 12-1:30pm
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Nayiri Yenikomshuyan 201-788-5107 [email protected] |
Griffith Park Bldg, Rm. 350
4755 SW Griffith Drive
Beaverton OR 97005
1st Tuesdays of the month, 6:00 – 7:30 p.m.
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Scott Rose (503) 312-5404 [email protected] |
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Amy Eissler Parker (503) 341-8866 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
University Congregational United Church of Christ (Library)
4515 16th Ave NE
Seattle, WA 98105
3rd Saturday of the month from 10:30 a.m.–12:30 p.m.
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Karin Miller (206) 384-0096 |
Kadlec Healthplex
Oak Room
1268 Lee Blvd.
Richland, WA 99352
2nd Monday of the month, 1 p.m.
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Carol Gurwell [email protected] |
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Cheryl Garvey [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Claim Jumper
5901 S. 180th St.
Tukwila, WA
(Corner of 180th and Southcenter Pkwy)
1st Saturday of the month from 11:30 a.m.-1 p.m.
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Steve Zamberlin (206) 380.2854 [email protected] |
MARC at UT San Antonio
8300 Floyd Curl Dr.
San Antonio, TX
4th Friday of the month, at 10:30 a.m.
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Dionne Coston 210-627-4726 [email protected] |
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Shana Nissen 210-787-9189 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Hope and Healing Center
717 Sage Road
Houston, TX 77056
Fourth Tuesday of each month from 7:00 p.m.–8:30 p.m.
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Chris Ward 713-253-5936 [email protected] |
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Asad Abbasi 281-710-7811 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Isle at Cedar Ridge, Club Rm
2200 S. Lakeline Blvd.
Cedar Park, TX 78613
*Respite available. Call 512-986-7202 to RSVP
1st Saturday of the month, 11 a.m.-1 p.m.
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Barbara Loewy 518-765-2198 [email protected] |
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Steph McLain (425) 686-5708 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Contact facilitator for details
1st Saturday of every month at 10 a.m.
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Brenda Geeslin 817-295-0858 [email protected] |
Conference Rm.
1960 Nantucket Dr.
Richardson, TX 75080
1st Monday of the month, from 4:00-5:30 p.m.
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Jane Kovacs 972 437-2940 [email protected] |
St. George Library
88 West 100 South St
St. George, UT
Contact facilitator for more information
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Bonnie Shepherd (801) 231-3442 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Celebration Restaurant
4503 West Lovers Lane Dallas, TX 75209
2nd Saturday of the month at 11:30 a.m.
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Doris Booth 214-802-9324 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
West Valley Library
2880 W 3650 S
West Valley City, UT 84119
1st Tuesday of the month from 7 p.m.–8:30 p.m.
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Jamie Gordon (801) 550-3563 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Austin Groups for the Elderly (AGE)
3710 Cedar St.
Austin, TX 78705
2nd Tuesday of the month from 1 p.m.–3 p.m.
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Stephen Fenoglio 512-347-9944 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Sandy Senior Center
9310 South, 1300 East
Sandy, UT
2nd Wednesday of the month from 10 a.m.–11:30 a.m.
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Bonnie Shepherd (801) 231-3442 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Swallowing & Neuro Rehab
2121 S. Columbia Ave.
Suite 470, Lower Level Conference Room
Tulsa, OK 74114
3rd Tues of each month at 6 p.m.
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Tiffany Turner 918-928-4700 [email protected] |
Lou Ruvo Center for Brain Health
888 West Bonneville Avenue
Las Vegas, NV 89106
1st and 3rd Wednesdays of each month, 6:30-8 p.m.
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Lisa Radin (702) 489-2344 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Alz. Assoc.
9370 Olive Blvd.
St. Louis, MO 63132
4th Wednesday of each month at 5:30-7:00 p.m.
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Sandy Cannon 314-313-0023 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Littleton Adventist Hospital
Conference Rm. CR1 or CR2 (next to each other)
7700 South Broadway
Littleton, CO 80122
3rd Thursday of the month, 6 p.m. to 7:30 p.m.
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Gretchen Samuels [email protected] |
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Mimi Moore [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Contact facilitator for details
1st Wednesday of the month from 2 p.m.–3:30 p.m.
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Amy Yeager, LMSW (913) 945-7663 [email protected] |
Daz Bog Coffee
401 Mason Ct
Fort Collins, 80524
3rd Tuesday of the month at 2:30 p.m.
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Missey Toomey (970) 484-2542 or (970) 689-6193 [email protected] |
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Andrea Maga (970) 226-1544 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Faith United Methodist Church
9820 W. Markham St.
Little Rock, AR 72005
Jan-Oct meets 4th Thurs. @ 11am Nov & Dec meets 3rd Thurs. @ 1pm
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Randi Halley 870-703-6417 |
Porter Adventist Hospital
Eagle Room
2525 S. Downing Street
Denver, CO
2nd Tuesday of the month at 5:30 p.m.
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Alzheimer’s Association Helpline 1-800-272-3900 |
George Reynolds Branch Library
3595 Table Mesa Dr.
Boulder, CO 80305
3rd Thursday of the month, 12:00-1:00 p.m.
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Alzheimer’s Association of Colorado 1-800-272-3900 |
Mimi’s Cafe
2208 Bridgepointe Parkway
San Mateo, CA 94404
Sundays, about every six weeks, from 5 p.m.–7 p.m. (call for schedule)
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Robin Riddle (650) 814-0848 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Sandler Neurosciences Center/UCSF Weill Institute for Neurosciences
Rm. 140A
675 Nelson Rising Lane
San Francisco, CA 94143
2nd Thursday of the month from 12:30 p.m.–2:00 p.m.
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Joanne Robinson-Teran [email protected] |
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Joanne Taylor [email protected] |
Contact facilitator for details
Contact facilitator for details
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Adriana Kipper-Smith, PhD [email protected] |
University of Tennessee Medical Center
1924 Alcoa Hwy, Knoxville, TN 37920
(Heart Health Elevators)
2nd Monday of the month, 5:30 p.m.–6:30 p.m.
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Linda Johnson 865-544-6288 [email protected] |
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Sallie Gentry [email protected] |
11549 Los Osos Valley Rd
Suite 109
San Luis Obispo, CA
(Parking is in the back of the building off of El Tigre St.)
4th Saturday of each month at 1:00 p.m.
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Liz Johnston (805) 471-8102 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Alzheimer’s Orange County
Suite 200
2515 McCabe Way
Irvine, CA
3rd Tuesday of the month from 1 p.m.–2:30 p.m.
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Donna Velarde, LCSW (949) 757-3759 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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This is a regional group for any family caregiver in South Carolina. Please contact facilitator for more information.
3rd Tuesday of the month, 7:00 p.m.
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Mary Revels 803-603-2056 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
In the conference room at the Shiley-Marcos Alzheimer’s Disease Research Center, University of California, San Diego (not on campus)
1st Wednesday of the month from 2 p.m.–3:30 p.m.
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Tracey Truscott (858) 822-4800 [email protected] |
Greenlawn Baptist Church
6612 Garners Ferry Road
Columbia, SC 29209
For more information, please contact the facilitator.
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Mary Revels 803-603-2056 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Banner Alzheimer’s Institute
901 E Willetta Street
Phoenix, Arizona 85006
(Meets in Third Floor Library)
2nd Tuesday of the month from 12:30 p.m.–2 p.m.
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Maribeth Gallagher, DNP Hospice of the Valley (602) 636-2220 |
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Michele Grigaitis [email protected] |
Alzheimer’s Association
620 S. 76th Street, Suite 160
Milwaukee, WI 53214
3rd Wednesday of the month, 6:00 p.m.–7:30 p.m.
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Jennifer McAlister (414) 479-8800 or (800) 272-3900 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Prairie West Branch Library
7630 W. 26th ST
Sioux Falls, SD
Please contact facilitator for more details
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Mike Dircksen (605) 201-2298 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
MemoryLane Care Services
2500 North Reynolds Road
Toledo, OH 43615
4th Saturday of the month, 11 a.m.-1 p.m.
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Marian Grems (419) 377-4981 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
John J. Gerlach Center for Senior Health
3830 Olentangy River Rd.
Columbus, OH 43214
Free parking
3rd Thursday of the month, 5:00-6:30 p.m.
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Megan Badaglia, LISW-S (614) 566-4868 [email protected] |
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Amy Weeks, LISW-S (614) 566-4264 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Alzheimer’s Association
23215 Commerce Park Drive, 300
Beachwood, OH 44122
2nd Saturday of the month, 1:30 p.m.–3:30 p.m.
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Lauren Zacharias, LISW, MSSA [email protected] |
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Marianne Sanders, RN (216) 464-6462 |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Neurology and Neuroscience
701 White Pond Dr.
Akron, OH 44320
2nd Wednesday of the month, 6 p.m.–7 p.m.
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Karen Elliott (800) 272-3900 [email protected] |
Bethlehem Lutheran Church
613 16th St. S.
Fargo, ND 58103
1st Monday of each month 4:30 p.m.
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Mary Karkela (218) 280-9953 [email protected] |
Temple Emanuel
201 Oakwood Drive
Winston-Salem, NC 27103
2nd Monday of the month, 7 p.m.–9 p.m.
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Rona Klein 336-399-6968 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Contact facilitator for details
2nd Sunday of the month, 3 p.m.–5 p.m.
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Charles Elligson 704-442-5594 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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SarahCare Adult Day Center
Suite 101
2245 Gateway Access Point
Raleigh, NC 27607
1st and 3rd Tuesdays of the month, 7 p.m.
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Paul Lester 919-538-4827 [email protected] |
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Chad Thomsen 919-946-0876 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Saint Mary’s Health Care
Lacks Center Grand Conference Room, lower level
250 Cherry Street
Grand Rapids, MI 49503
1st Wednesday of the month, 6:30 p.m.–8 p.m
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Laura DeWit 616.685.5845 [email protected] |
Contact facilitator for details
3rd Tuesday of the month, 6 p.m.-7:30 p.m.
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Kathy LaFone 919-632-8083 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Northside Forsyth Hospital
Cafeteria Meeting Room
1200 Northside Forsyth Dr, Cumming, GA 30041
1st Wednesday of the month from 7:00 p.m. -8:30 p.m.
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Sharon Hall (706) 974-0831 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
520 South Pierce
Suite 100
Mason City, Iowa
2nd Tuesday of the month, 6:30 p.m.
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Deb Scharper (641) 220-5701 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
AV Room of Emory’s Wesley Woods Geriatric Hospital
1821 Clifton Rd.
Atlanta, GA 30329
2nd Tuesday of each month , 6:30 p.m.–8:00 p.m.
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Cassy Sims [email protected] |
Plymouth Church
4126 Ingersoll Ave.
Des Moines, IA 50312
2nd Saturday of the month, 2-3:30 p.m.
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Al Papesh [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Mandel Public Library
Iris Conference Room, 3rd Floor
411 Clematis St.
West Palm Beach, FL
Contact facilitator for details
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Sandra Lutz (561) 202-1779 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Katz Cardiovascular
Conference Rm.
701 10th Street SE
Cedar Rapids, IA 52403
2nd Tuesday of the month, 5:15-6:30 p.m.
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Amanda Pins, RN, BSN [email protected] |
Arden Court Alzheimer’s Assisted Living
14950 Casey Rd.
Tampa, Florida, 33624
2nd Sunday of each month, 1 p.m.
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Mary Anne Upham [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
The Kane Center
900 S.E. Salerno Road
Stuart, FL 34997
1st and 3rd Wednesday of each month, 2:30-4:00 p.m.
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Madrienne Crow 772-382-9805 [email protected] |
Alvin A. Dubin Alzheimer's Resourse Center
12468 Brantley Commons Ct
Fort Myers, FL 33907
3rd Thursday of the month at 10:30am
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Dan Moser [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Redemption Christian Church
1 Loogootee Plaza
Loogootee, IN 47553
(Adult Class rm.)
2nd Tuesday of the month, 6 p.m.
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Barbara Hays (812) 899-0287 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Altrusa House of Gainesville
2002 N.W. 36th Ave.
Gainesville, FL 32605
2nd Wednesday of the month, 7 p.m.
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Charlie Sperrazza 352-339-0571 |
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Lee Johnson 352-377-7708 |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Joy’s House Adult Day Services
2028 E. Broad Ripple Avenue
Indianapolis, IN
1st Tuesday of the month, 6:30 p.m.–8:30 p.m.
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Donna Wert (317) 963-5500 [email protected] |
Tremont United Methodist Church
Church Parlor
101 S Sampson St
Tremont IL, 61568
Fourth Saturday of the month, from 10:00 – 11:30 a.m.
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Katrina Hellman (630) 650-7951 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Faith Family Fellowship
7100 Spanish Fort Boulevard
Spanish Fort, AL
Last Tuesday of the month, 6 p.m.
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Jerry Horn 251-626-5246 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Northwestern Memorial Hospital
251 E Huron St
Chicago, IL 60611
3rd Monday of the month, 6 p.m.–7:30 p.m.
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Darby Morhardt, PhD, LCSW (312) 908-9432 [email protected] |
Olive Garden
30 E. Anthony Drive
Champaign, IL
2nd Saturday of each month, 11:30 a.m.
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Janelle Drake (309) 830-0946 [email protected] |
Anchor Bay of East Providence
1440 Wampanoag Trail
East Providence, RI
3rd Tuesday of the month, 6:30 p.m.–8:00 p.m.
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Chuck Anastasia [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Easter Seals NH
555 Auburn Street
Manchester, NH 03103
2nd Wednesday of the month, 9:30-11:00am
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Shirley Gordon (603) 621-3569 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Rest.Stop.Ranch Caretaker’s Cottage
202 Haverhill Road
Topsfield, MA
2nd and 4th Thursdays of each month, 5:15 – 7:30pm
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Mary E MacDonald [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Holyoke Senior Center
291 Pine St.
Holyoke, MA
2nd Wednesday of each month, 4:30-6 p.m.
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Sandy Wallis [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Mount Auburn Hospital
330 Mount Auburn St.
Cambridge, MA 02138
(Clough Board Room)
2nd Tuesday of the month, 7 p.m.–9 p.m.
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Amy Almeida [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Newton Wellesley Hospital
2014 Washington St.
Newton, MA 02462
Last Tuesday of the month, 7 p.m.–9 p.m.
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Katie Brandt [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
The Acadia Hospital
268 Stillwater Ave.
Bangor, ME 04402
3rd Wednesday of the month, 2 p.m.–4 p.m.
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Dorian Bannister [email protected] |
Arden Courts of Farmington
45 South Rd.
Farmington, CT 06032
3rd Sunday of the month, 1 p.m.
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Meghan Roscoe [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Contact facilitator for details
3rd Thursday of the month, at 2:00 p.m.
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Angie Phelon (804) 343-3045 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Riverside Neurology Specialists
850 Enterprise Pkwy, Conference Room
Hampton, VA 23666
*Please call to pre-register*
3rd Tuesday of the month, at 12:30 p.m.
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Riverside Neurology Specialists 757.637.7500 |
3955 Pender Rd. Ste. 100
Fairfax, VA 22030
1st Tuesday of the month, 1-2:30 p.m.
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Lindsey Vajpeyi (703) 270.0043 [email protected] |
Christ Church-North Hills
5910 Babcock Blvd.
Library, lower level
Pittsburgh, PA 15237
3rd Thursday of the month, 6:30 p.m.–8 p.m.
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Doreen Putnam (401) 464-2372 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Main Line Reform Temple
410 Montgomery Avenue
Wynnewood, PA 19096
2nd Thursday of the month, 7 p.m.–9 p.m.
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Sandy Karger (610) 647-2842 [email protected] |
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Sylvia Gentry (267) 323-2089 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
The School House at Richland Friends Meeting House
Mill Road and Main Street
Quakertown, PA 18951
1st Thursday of the month, 7 p.m.–8:30 p.m.
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Susan Miller Abbott (610) 346-1937 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Hershey Medical Center
30 Hope Drive, Room 1019
Hershey, PA 17033
Contact facilitator for details
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Claire Flaherty Craig, PhD [email protected] |
4101 E. Genesee St
Syracuse, NY 13214
Last Wednesday of the month, 6:30 p.m.-7:30 p.m.
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Anne Flaherty (315) 247-9729 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Arden Courts
5151 Hamilton Blvd
Allentown, PA 18106
4th Thursday of the month, 7 p.m.–8:30 p.m.
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Dianne Howlett [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Midtown Manhattan
1st and 3rd Wednesday of the month
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Jill Goldman, MS, MPhil CGC 212-305-7382 [email protected] |
Ralston Penn Center
Rm 108
3615 Chestnut St.
Philadelphia, PA 19104
3rd Wednesday of the month, 6:30 p.m.–8:30 p.m.
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Gary Radin 215-205-3162 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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The Zion Episcopal Church of Douglaston
24301 Northern Blvd.
Little Neck, NY 11362
In the Guild Room
(Park in lot on Orient Ave & Church St.)
4th Saturday of the month, 11:45 a.m.
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Barbara Hala [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
6215 Sheridan Dr., Ste. 100
Amherst, NY 14221
2nd Wednesday of the month, 6:00 p.m.–7:00 p.m.
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Andrea Koch 716-626-0600 xt.313 [email protected] |
Eddy’s Alzheimer’s Services
Bldg. 300 (Below House 24)
421 Columbia Street
Cohoes, NY
3rd Tuesday of the month, 5:30 p.m.–7:00 p.m.
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Nancy A. Cummings 518-262-0800 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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Brightview Senior Living
170 Greentree Road
Marlton NJ 08053
4th Thursday of the month, 6 p.m.–7:45 p.m
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Katie Hartman [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
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The Center for Hope,
1900 Raritan Rd
Scotch Plains, NJ
3rd Wednesday of the month, 6:00-7:45 p.m.
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Barbara Todd 732 208-1340 [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Christ United Methodist Church
6 N. Clifton Street
Wilmington, DE
Last Friday of the month, 12 p.m.
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Carol Lovett 302-345-4932 |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
57 Tiffany Drive
Rehoboth Beach, DE 19971
Every other Tuesday, 4 p.m.–5:30 p.m.
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Dr. Judith E. Pierson (302) 519-9771 [email protected] |
Arden Courts Kensington
4301 Knowles Court
Kensington, MD 20895
4th Monday of the month from 6:30 p.m.–8:00 p.m.
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Elaine Rose [email protected] |
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This group is led by an AFTD affiliated leader who has participated in additional FTD training. Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change. |
Loyola Graduate Center
8890 McGaw Rd
Columbia, MD 21045
Rm. 210/230
4th Wednesday of the month, at 1:00 p.m.
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Cindy Nichols, SLP (410) 617-7717 [email protected] |
Alzheimer’s Association
1850 York Road, Suite D
Timonium, MD 21093-5143
2nd Wednesday of the month, 11 a.m.–12:30 p.m.
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Johns Hopkins FTD Clinic 410-955-5147 |
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Paula Notorangelo 410-294-2409 [email protected] |
Select your state below for more details about support groups and resources near you:
Have Questions?
We include commonly asked questions about support groups below. Support group volunteers can also be excellent guides to the value their groups provide.
I can’t find a group that’s accessible in my area. Are there national groups that I can connect with virtually?
AFTD sponsors national support groups for people who are not able to access a group in their area. These groups meet either by phone or through Zoom, and blend emotional support with education on FTD and caregiving. We limit the number of active participants to 10-12 maximum, so it may take some time before space in a group is available. Due to the COVID-19 pandemic, many local support groups are now meeting via Zoom, so this may offer you another accessible option at this time.
National Zoom Support: Adult Children Caregivers (18+)
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Jill Goldman MS, MPhil, CGC 212-305-7382 [email protected] Tanish Gupta [email protected] |
National Zoom Support: Behavior Group 1
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Mary McLeod 866-507-7222 [email protected] |
National Zoom Support: Behavior Group 2
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Carol Lovett 866-507-7222 [email protected] |
National Zoom Support: Language Group
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Bridget Moran-McCabe 866-507-7222 [email protected] |
National Zoom Support: Men’s Caregiver Group
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Matt Dineen (866) 507-7222 [email protected] |
National Zoom Support: Parent Group
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Alyssa Radcliff (866) 507-7222 [email protected] |
Phone Support: ALS with FTD
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Miki Paul 866-507-7222 [email protected] |
UCSF Phone Support: Adult Children Affected by FTD
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Jamie Fong 415-570-2442 [email protected] |
Note: there are also groups for people diagnosed with FTD that meet by video conference — please see our Support for People with FTD page for more information.
Are there other options for support?
AFTD’s main Facebook page keeps followers up to date on events, research, and the latest news. AFTD also has a private or “closed” Facebook group where members are invited to post their experiences and respond to discussion items on the page. Finally, AFTD offers a young adult Facebook group for people in their 20s and 30s who have a loved one with FTD; to join, email [email protected] and include the email address you used to open your Facebook account.
AFTD can also sometimes match FTD care partners in a particular city or region through information they share when they register with us. When there are no in-person support groups close by, these informal connections can be extremely helpful. If both parties agree to meet, AFTD shares a name and a contact number or email, but no other personal information. You take it from there. To request an informal connection, contact AFTD’s HelpLine at 866-507-7222 or [email protected].
These resources may also be of interest:
- The FTD Support Forum: An online forum open to caregivers and persons diagnosed with FTD or a related disorder.
- FTD Spouse Caregiver Support Facebook Group: An independent peer support group for spouses of people with FTD.
- The Well Spouse Association: A volunteer-based nonprofit organization that provides peer emotional support and information to the husbands, wives and partners of people with chronic illnesses and/or disabilities.
- Caregiving.com: An online community of supportive individuals who provide care for a family member or friend. Caregiving.com hosts an informal weekly chat for FTD caregivers and a monthly podcast on FTD care organized by an FTD care partner.
- Publications on FTD produced by AFTD or with AFTD input.
Want to learn more about how to become a support group volunteer? Please visit our Take Action and Volunteer page for more information.
I am living with an FTD diagnosis — are there groups tailored to support persons with FTD?
Finding mutual support from others diagnosed with FTD can be valuable but there are still far too few options. AFTD runs two support groups for persons diagnosed with FTD. The groups meet for an hour once per month via Zoom, an easy to use computer application that uses webcams so we can see each other. It is a small group led by AFTD staff. The focus is on shared experiences, strategies for keeping a positive outlook and adjusting to life with FTD. Please see our Support for People with FTD page for more information.
Can I start my own support group?
Not seeing a support group in your local community and want to learn more about how to become a support group volunteer? Please visit our Take Action and Volunteer page for more information.