West Virginia

AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.

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Contact AFTD’s HelpLine

AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.

Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.

Find a Support Group for Care Partners Near You

Support groups are a resource and a place to connect and share with others who understand.

PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, info@theaftd.org).

Groups In Surrounding States

Virtual & National Groups

AFTD Telephone Support Group - Adult Children (40+) Caring for a Parent w/ FTD

2nd Tuesday of the month,
7:00 p.m. - 8:30 p.m. ET

Gary Radin
gary@garyradin.com

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AFTD Telephone Support Group - Behavior I -

3rd Wednesday of the month,
starting at 8:00 p.m. ET

Mary McLeod
(866) 507-7222
info@theaftd.org

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AFTD Telephone Support Group - Behavior II

2nd Wednesday of the month,
starting at 6:30 p.m. ET

Carol Lovett
(866) 507-7222
info@theaftd.org

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AFTD Telephone Support Group - FTD/ALS

2nd Tuesday of the month,
starting at 3:00 p.m. ET

Miki Paul
(866) 507-7222
info@theaftd.org

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AFTD Telephone Support Group - Language

2nd Monday of the month,
starting at 7:30 p.m. ET

Stacey Juthapan
(866) 507-7222
info@theaftd.org

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AFTD Telephone Support Group - Mens

3rd Wednesday of the month,
starting at 8:00 p.m. ET

Matt Dineen
(866) 507-7222
info@theaftd.org

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AFTD Virtual Support Group - Parents

2nd and 4th Tuesdays of the month:
2nd Tuesday starting at 4:00 p.m. ET,  and 4th Tuesdays starting at 8:00 p.m. ET

Alyssa Radcliff and Frank Rzomp
(866) 507-7222
info@theaftd.org

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CA - UCSF Adult Children Phone Group

3rd Thursday of the month,
5:00 p.m. - 6:30 p.m. PT

Jamie Fong
(415) 570-2442
jamie.fong@bcm.edu

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Young Adult Caregivers

1st and 3rd Thursday of the month,

Tanisha Gupta
tgupta2017@gmail.com
(214) 732-3047

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Contact a Medical Center

FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.

Medical Centers In Surrounding States

University of Kentucky Memory & Aging Program, Memory Disorders Clinic

UK Medical Center
224 Charles T. Wethington Bldg.
800 South Limestone St.
Lexington, KY 40536-0284

Candace Bear
859-218-5047
csjord0@email.uky.edu

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University of Louisville School of Medicine, Div. of Movement Disorders

Division of Movement Disorders, University of Louisville School of Medicine,
Frazier Rehab Neuroscience Building
220 Abraham Flexner Way, Suite 1503
Louisville, KY 40202

Casey Shepherd, coordinator
502-852-3655
cashep02@louisville.edu

View Link

University of Pittsburgh Alzheimer Disease Research Center

UPMC Montefiore
4th Floor (Suite W-421)
3459 Fifth Avenue
Oakland, PA 15213

412-692-2700

View Link

University of Virginia Memory and Aging Care Clinic

1221 Lee Street, 4th Floor
Charlottesville, VA 22903

Julie Illjevich, RN
434-924-5306

View Link

Do you need more assistance?
Please contact the HelpLine staff at 1-866-507-7222 or info@theaftd.org.

Get Involved

Take charge of your FTD journey -- and make things easier for the next family -- by becoming an AFTD volunteer. Contact a AFTD Volunteer Coordinator at volunteer@theaftd.org.

Sign Up To Receive AFTD Alerts

News & Events Near You

Dr. M.-Marsel Mesulam appeared on an episode of the Brain podcast to discuss a recent study on PPA

AFTD Advisor M.-Marsel Mesulam Appears in Podcast to Discuss Recent PPA Study

October 7, 2022

Medical Advisory Council member M.-Marsel Mesulam, MD, recently appeared in an episode of The Brain Podcast to…

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The BBC will air a documentary about former rugby player Rob Burrow, who was diagnosed with motor neuron disease

BBC to Air Documentary on Former Rugby Player with Motor Neuron Disease

October 5, 2022

The British Broadcasting Corporation (BBC) is set to air a documentary that highlights the experiences of a…

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Second Annual 5Keg Fun Run at Bill’s Best Brewery

October 4, 2022

Bill’s Best Brewery in Glenside, Pennsylvania — a long-time supporter of AFTD — is holding its second…

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FDA Announcement on ALS Drug Reflects Growing Hope for Treatments

October 1, 2022

The FDA’s recent approval of a new drug to treat ALS signals important and promising developments for…

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AFTD Ambassador Jerry Horn shared facts about FTD and his own personal experiences with it on Facebook Live

AFTD Ambassador Shares FTD Information, Experiences on Facebook Live

September 27, 2022

AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts…

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Karate ace Liam Blaney shared his experiences with his recent motor neuron disease diagnosis

Karate Black Belt Shares His Experiences with Motor Neuron Disease

September 23, 2022

A karate ace in the UK shared his experiences of wanting to help people and stay active…

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Haverford Township Day

September 23, 2022

AFTD is a sponsor of the 27th annual Haverford Township Day in Haverford, Pennsylvania. Members of the…

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Help & Hope #90

September 23, 2022

Issue #90 September 15, 2022: In this issue you can learn about navigating facility care options for…

Read More >

An article shares how dementia care is made more difficult for members of the LGBTQIA+ community by systemic problems

Finding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community

September 22, 2022

An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when…

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Volunteer of the Month Nicole DeLeve hosting an AFTD table setting in her local community

Volunteer of the Month #90: Nicole DeLeve

September 22, 2022

When Nicole DeLeve’s father was diagnosed with ALS with bvFTD in 2016, she found herself exhausted from…

Read More >

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West Virginia

Contact AFTD’s HelpLine

Find a Support Group for Care Partners Near You

Groups In Surrounding States

Virtual & National Groups

Contact a Medical Center

Medical Centers In Surrounding States

Get Involved

Sign Up To Receive AFTD Alerts

News & Events Near You

Have Questions?