


this journey alone.
and support for families facing FTD.

degeneration of the frontal
and/or temporal lobes of the brain.












What You Need to Know
that he has been diagnosed with FTD.

Statement

Statement

Resources

Action

provide a resource,
an outlet, and a place
to connect with others
who understand.







News & Events
U.S. Rep. Jennifer Wexton Announces Progressive Supranuclear Palsy Diagnosis
Representative Jennifer Wexton of Virginia announced last week that she would not be seeking re-election after receiving a diagnosis of progressive supranuclear palsy (PSP). In April, Wexton announced that she…
MOREWorld FTD Awareness Week Guest Feature: Advocating for the Future, Advocating for Love – Insights From a Lifelong FTD Journey
Despite the grief, frustration, and sadness that can affect families on the FTD journey, many have channeled those experiences positively, using them for motivation to create a better future for…
MOREEmma Heming Willis and AFTD CEO Susan L-J Dickinson Interviewed on NBC’s “Today Show”
Emma Heming Willis gave updates on her family’s FTD journey and discussed the disease alongside AFTD CEO Susan L-J Dickinson, MSGC, in an interview broadcast on the Today show on…
MOREStudy Assesses Machine Learning in Classifying FTD and Alzheimer’s in Underrepresented Groups
A study published in the medical journal The Lancet assessed the use of machine learning and clinically gathered data (such as cognitive and behavioral screening scores) to classify and discriminate…
MORENew Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com
Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the short film Pedacito de Carne in an August 31 article published on NJ.com.…
MOREVolunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research
FTD science has come far in the 21 years since AFTD began its mission, with scientists closer than ever to breakthroughs that could bring meaningful change to families facing the…
MOREAFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD
A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a STELLA-FTD, a remote support program tailored to the needs of families affected by…
MOREResearch Paper Highlights Gaps in FTD Research, Calls for Greater Diversity in Studies
A comprehensive research paper published in the journal Alzheimer’s & Dementia highlights critical gaps in FTD research and calls on the international scientific community to incorporate greater diversity in future…
MORE