The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Tuesday, July 30, 2024 | 3-4 p.m. ET

Working with Lawmakers to Highlight FTD

AFTD advocacy webinar

Advocate for Awareness:

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

AFTD Ambassador Spencer Cline and his future brother-in-law Paul are biking across America from Astoria, Oregon to Charleston, South Carolina to help support AFTD's mission and spread Help and Hope.

Spencer & Paul's Bike Across America for AFTD

Donate to Spencer & Paul's Fundraiser

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Tips & Advice: Finding Answers – FTD Research and You

When Damian McNamara, a staff writer for WebMD, learned that his cousin had been diagnosed with ALS and FTD due to a C9orf72 genetic variant, he began to wonder if…

Title: Advancing Hope - AFTD Staff Attends C9orf72 FTD/ALS Prevention Trial Workshop Background: Photos of Drs Michael Benatar and Adam Boxer

Advancing Hope: AFTD Attends C9orf72 FTD/ALS Prevention Trial Workshop

A one-day C9orf72 FTD/ALS Prevention Trial Workshop was held in June 2024. The workshop was led by Dr. Adam Boxer (UCSF) and Dr. Michael Benatar (University of Miami) and enabled…

Care Partner Emphasizes the Benefits of Support from Others Who Understand FTD

Navigating the FTD journey is much less daunting when you have support from others who have lived with the disease themselves, Canadian care partner Mardi Denis said in an article…

Opinion Column Highlights Racial Disparities in Dementia Care and Need for Support

An opinion column published in the Los Angeles Daily News highlights healthcare-based racial disparities that often leave the Latino and Black/African American communities without proper dementia care. Author Patricia A.…

Graphic: Volunteer Update - AFTD Welcomes New Ambassadors. Photos of Shirley Gordon and Zoy Kocian.

Volunteer Update: AFTD Welcomes New AFTD Ambassadors

Since the AFTD Ambassador Program began in 2019, our initial cohort of volunteer leaders has grown into an enthusiastic and highly motivated group working toward a future free from FTD. AFTD is…

A Conversation with Olga Uspenskaya, MD, PhD, of Prevail Therapeutics

Recently, Prevail Therapeutics presented interim results from their Phase 1/2 open-label clinical trial assessing the safety and efficacy of their gene therapy to raise progranulin levels in people with FTD-GRN.…

Passage Bio Receives Positive Feedback from FDA on Expanding Gene Therapy to C9orf72

Biopharmaceutical company Passage Bio announced on July 16 that it has received positive feedback from the U.S. Food and Drug Administration (FDA) regarding a proposal to expand its clinical trial…

Graphic: Research Explains the Role of Genetics in FTD, Discusses Avenues for Treatment.

Researcher Explains the Role of Genetics in FTD, Discusses Avenues for Treatment

In an article written for The Conversation, Fen-Biao Gao, PhD, professor and founding director of the FTD Research Center at the University of Massachusetts Chan Medical School, discusses how research…

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