
this journey alone.
and support for families facing FTD.

degeneration of the frontal
and/or temporal lobes of the brain.








What You Need to Know
that he has been diagnosed with FTD.

Statement

Statement

Resources

Action

provide a resource,
an outlet, and a place
to connect with others
who understand.



News & Events
U.S. Justice System Stumbles When Faced with FTD and Other Dementias, Article Finds
An article published in a recent issue of Scientific American examines the ways that the U.S. justice system often stumbles when confronted with cases that involve FTD or another form…
MOREOpen Hand Foundation Provides AFTD $600K for FTD Research
AFTD is pleased to announce that we have received a gift of $600,000 from the Open Hand Foundation to further its mission to hasten a cure for FTD and improve…
MOREAdvocacy Update: Federal Dementia Legislation Scheduled to Expire in 2025
The scientific understanding of FTD has increased more in the past 10 years than in the previous 100. At AFTD’s 2023 Education Conference in May, Dr. Bruce Miller of the…
MOREStudy Evaluates Brain-Atrophy Rates in Genetic FTD Carriers
A study published in the journal Neurology evaluates the brain degeneration or atrophy rates of presymptomatic carriers of mutations that can cause genetic FTD. Determining the relative age at which…
MOREAFTD Volunteer and Former FTD Care Partner Discusses Importance of Self-Care in Podcast Interview
Corey Esannason, a former AFTD Ambassador, emphasized the need for self-care for FTD care partners and shared her insights as a yoga practitioner, care partner, and AFTD volunteer in an…
MOREGuest Feature: Heal the Heart, Hold Up the Truths, and Find a Way
The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by moments of happiness, love, and connection. The following essay and poems by Sandy…
MOREPerspectives in FTD Research Webinar: Why PSP and CBS Clinical Trials Matter
Progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS) are FTD disorders that primarily affect movement and are sometimes called atypical parkinsonism. In this Perspectives in FTD Research Webinar, presented jointly…
MOREVolunteer Update: Hosting an Information Table Event
Hosting an information table on behalf of AFTD gives our volunteers a perfect way to bring awareness to their hometowns. AFTD volunteers can use information tables to engage, educate, and…
MORE