The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

December 7, 2023 | 3-4 p.m. ET

HEALTHCARE PROFESSIONAL WEBINAR

Approaching a Cure:

FTD Genetics and Clinical Trials

Dr. Peter Ljubenkov

Kim Jenny, MS, LCGC

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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an outlet, and a place
to connect with others
who understand.

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Resources for Diagnosis Support Groups

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News & Events

Advocacy Update: Federal Dementia Legislation Scheduled to Expire in 2025

The scientific understanding of FTD has increased more in the past 10 years than in the previous 100. At AFTD’s 2023 Education Conference in May, Dr. Bruce Miller of the…

Study Evaluates Brain-Atrophy Rates in Genetic FTD Carriers

A study published in the journal Neurology evaluates the brain degeneration or atrophy rates of presymptomatic carriers of mutations that can cause genetic FTD. Determining the relative age at which…

Graphic: AFTD volunteer and former FTD care partners discusses importance of self-care in podcast interview

AFTD Volunteer and Former FTD Care Partner Discusses Importance of Self-Care in Podcast Interview

Corey Esannason, a former AFTD Ambassador, emphasized the need for self-care for FTD care partners and shared her insights as a yoga practitioner, care partner, and AFTD volunteer in an…

Guest Feature: Heal the Heart, Hold Up the Truths, and Find a Way

The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by moments of happiness, love, and connection. The following essay and poems by Sandy…

FBLI November 2023 PSP and CBS Clinical Trials

Perspectives in FTD Research Webinar: Why PSP and CBS Clinical Trials Matter

Progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS) are FTD disorders that primarily affect movement and are sometimes called atypical parkinsonism. In this Perspectives in FTD Research Webinar, presented jointly…

Volunteer Update: Hosting an Information Table Event

Hosting an information table on behalf of AFTD gives our volunteers a perfect way to bring awareness to their hometowns. AFTD volunteers can use information tables to engage, educate, and…

Pilot Study Evaluates Virtual Coaching’s Ability to Help FTD Care Partners with Self-Care

A pilot study published in the journal Alzheimer’s & Dementia: Translational Research and Clinical Interventions tests if the remote support program “Virtual Caregiver Coach for You” (ViCCY) was effective in…

Emma Heming Willis Shares Insights from Her Family’s FTD Journey in Essay

In an essay published in Maria Shriver’s Sunday Paper, Emma Heming Willis shared some insights she has gathered while navigating the FTD journey following the diagnosis of her husband, the…

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