News & Events

Transposon Announces Results from Phase 2 PSP Trial, Interim Results for Phase 2 FTD/ALS Trial

The biotechnology company Transposon Therapeutics on February 12 released final results for its phase 2 clinical trial focusing on progressive supranuclear palsy (PSP) and interim results for its phase 2…

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Treat FTD Fund Grant Recipient Discusses FTD-GRN Gene Therapy in Newspaper Interview

Simon Ducharme, MD, MSc, FRCPC, of McGill University, a recent recipient of a grant through the Treat FTD Fund, discussed an experimental gene therapy for FTD-GRN in a December interview…

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Viewpoints of FTD: Addressing Barriers to Diagnosis, FTD Care, and Research Participation Faced by Black/African Americans

In 2011, researchers estimated there to be 50,000-60,000 cases of FTD in the United States. Today, however, researchers believe this figure to be an undercount. One reason for this is…

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FDA Grants Breakthrough Therapy Designation to Experimental FTD Therapy

The U.S. Food and Drug Administration (FDA) has granted a “breakthrough therapy designation” to latozinemab, an experimental treatment for FTD caused by a GRN genetic mutation. The drug is being…

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UK Researchers Discover How to Block Toxic Protein Associated with FTD and ALS

Researchers at the University of Sheffield have discovered how to prevent the production of toxic repeat proteins that cause the death of nerve cells in neurodegenerative diseases like FTD and…

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Dear HelpLine: What to Look for When Considering Facility Care for a Person with FTD

Dear HelpLine, We have reached the difficult decision to look for long-term facility care for my sister, and I feel overwhelmed because I don’t know what to look for or…

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“The Longest Goodbye”: Montana Woman Shares Family’s FTD Journey in Interview

Krista Payzant of Montana characterized FTD as a thief that “strips the person of who they are” in an interview published in November by the news station KRTV3. Sharing the…

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NY State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry

New York State Senator Michelle Hinchey introduced a bill on January 3 to create a statewide FTD registry that would document diagnoses. Senate Bill S7874 would require healthcare providers in…

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