The Association for Frontotemporal Degeneration

September 24 - October 1

World FTD Awareness Week

Take action to #endFTD

Take Action Watch the TODAY Interview

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

September 24 – October 8

Get Started Today!

October 2, 2023 | 2 - 3 PM ET

AFTD HelpLine Webinar

Answering Questions and Providing Support:

A Q&A with AFTD HelpLine Staff

Stephanie Quigley, MSW, LSW, CDP

Ann Schoonover, MSW, LSW

Josephare Joseph, MSW

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

October 19, 2023 | 4 - 5 PM EDT

HEALTHCARE PROFESSIONAL WEBINAR

Grief, Loss, and Hope:

Helping Families Living with FTD

Mary O’Hara, LCSW

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

U.S. Rep. Jennifer Wexton Announces Progressive Supranuclear Palsy Diagnosis

Representative Jennifer Wexton of Virginia announced last week that she would not be seeking re-election after receiving a diagnosis of progressive supranuclear palsy (PSP). In April, Wexton announced that she…

World FTD Awareness Week Guest Feature: Advocating for the Future, Advocating for Love – Insights From a Lifelong FTD Journey

Despite the grief, frustration, and sadness that can affect families on the FTD journey, many have channeled those experiences positively, using them for motivation to create a better future for…

Picture of Emma Heming Willis, Susan Dickinson, and Hoda Kotb.

Emma Heming Willis and AFTD CEO Susan L-J Dickinson Interviewed on NBC’s “Today Show”

Emma Heming Willis gave updates on her family’s FTD journey and discussed the disease alongside AFTD CEO Susan L-J Dickinson, MSGC, in an interview broadcast on the Today show on…

Graphic: study assesses machine learning in classifying FTD and Alzheimer's disease in underrepresented groups

Study Assesses Machine Learning in Classifying FTD and Alzheimer’s in Underrepresented Groups

A study published in the medical journal The Lancet assessed the use of machine learning and clinically gathered data (such as cognitive and behavioral screening scores) to classify and discriminate…

New Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com

Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the short film Pedacito de Carne in an August 31 article published on NJ.com.…

Volunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research

FTD science has come far in the 21 years since AFTD began its mission, with scientists closer than ever to breakthroughs that could bring meaningful change to families facing the…

AFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD

A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a STELLA-FTD, a remote support program tailored to the needs of families affected by…

Research Paper Highlights Gaps in FTD Research, Calls for Greater Diversity in Studies

A comprehensive research paper published in the journal Alzheimer’s & Dementia highlights critical gaps in FTD research and calls on the international scientific community to incorporate greater diversity in future…

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