News & Events

Emma Heming Willis and AFTD CEO Susan L-J Dickinson Interviewed on NBC’s “Today Show”

Emma Heming Willis gave updates on her family’s FTD journey and discussed the disease alongside AFTD CEO Susan L-J Dickinson, MSGC, in an interview broadcast on the Today show on…

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Study Assesses Machine Learning in Classifying FTD and Alzheimer’s in Underrepresented Groups

A study published in the medical journal The Lancet assessed the use of machine learning and clinically gathered data (such as cognitive and behavioral screening scores) to classify and discriminate…

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New Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com

Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the short film Pedacito de Carne in an August 31 article published on NJ.com.…

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Volunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research

FTD science has come far in the 21 years since AFTD began its mission, with scientists closer than ever to breakthroughs that could bring meaningful change to families facing the…

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AFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD

A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a STELLA-FTD, a remote support program tailored to the needs of families affected by…

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Research Paper Highlights Gaps in FTD Research, Calls for Greater Diversity in Studies

A comprehensive research paper published in the journal Alzheimer’s & Dementia highlights critical gaps in FTD research and calls on the international scientific community to incorporate greater diversity in future…

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Help & Support: Sleep Issues in FTD

Changes to sleep routines are a common challenge for the person living with FTD and their care partners.  Sleep changes can come in many forms including: Waking frequently during the…

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NIH Identifies Genetic Risk Factors for FTD, Offers Data to Researchers Online

Scientists at the National Institutes of Health (NIH) leveraged cutting-edge technology to identify genetic risk factors for FTD and Lewy body dementia in a study published earlier this year in…

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