
this journey alone.
and support for families facing FTD.

degeneration of the frontal
and/or temporal lobes of the brain.








What You Need to Know
that he has been diagnosed with FTD.

Statement

Statement

Resources

Action

provide a resource,
an outlet, and a place
to connect with others
who understand.



News & Events
Study Evaluates Brain-Atrophy Rates in Genetic FTD Carriers
A study published in the journal Neurology evaluates the brain degeneration or atrophy rates of presymptomatic carriers of mutations that can cause genetic FTD. Determining the relative age at which…
MOREAFTD Volunteer and Former FTD Care Partner Discusses Importance of Self-Care in Podcast Interview
Corey Esannason, a former AFTD Ambassador, emphasized the need for self-care for FTD care partners and shared her insights as a yoga practitioner, care partner, and AFTD volunteer in an…
MOREGuest Feature: Heal the Heart, Hold Up the Truths, and Find a Way
The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by moments of happiness, love, and connection. The following essay and poems by Sandy…
MOREPerspectives in FTD Research Webinar: Why PSP and CBS Clinical Trials Matter
Progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS) are FTD disorders that primarily affect movement and are sometimes called atypical parkinsonism. In this Perspectives in FTD Research Webinar, presented jointly…
MOREVolunteer Update: Hosting an Information Table Event
Hosting an information table on behalf of AFTD gives our volunteers a perfect way to bring awareness to their hometowns. AFTD volunteers can use information tables to engage, educate, and…
MOREPilot Study Evaluates Virtual Coaching’s Ability to Help FTD Care Partners with Self-Care
A pilot study published in the journal Alzheimer’s & Dementia: Translational Research and Clinical Interventions tests if the remote support program “Virtual Caregiver Coach for You” (ViCCY) was effective in…
MOREEmma Heming Willis Shares Insights from Her Family’s FTD Journey in Essay
In an essay published in Maria Shriver’s Sunday Paper, Emma Heming Willis shared some insights she has gathered while navigating the FTD journey following the diagnosis of her husband, the…
MOREDear HelpLine – Support for Veterans
Dear HelpLine, My loved one is a veteran. Do we qualify for any support? Navigating the Department of Veterans Affairs, and the benefits you or your loved one might be…
MORE