American Samoa
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: [email protected].
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at [email protected].
Sign Up To Receive AFTD Alerts
Advocacy Update: Federal Dementia Legislation Scheduled to Expire in 2025
The scientific understanding of FTD has increased more in the past 10 years than in the previous…
Study Evaluates Brain-Atrophy Rates in Genetic FTD Carriers
A study published in the journal Neurology evaluates the brain degeneration or atrophy rates of presymptomatic carriers…
AFTD Volunteer and Former FTD Care Partner Discusses Importance of Self-Care in Podcast Interview
Corey Esannason, a former AFTD Ambassador, emphasized the need for self-care for FTD care partners and shared…
Guest Feature: Heal the Heart, Hold Up the Truths, and Find a Way
The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by…
Volunteer Update: Hosting an Information Table Event
Hosting an information table on behalf of AFTD gives our volunteers a perfect way to bring awareness…
Pilot Study Evaluates Virtual Coaching’s Ability to Help FTD Care Partners with Self-Care
A pilot study published in the journal Alzheimer’s & Dementia: Translational Research and Clinical Interventions tests if…
Emma Heming Willis Shares Insights from Her Family’s FTD Journey in Essay
In an essay published in Maria Shriver’s Sunday Paper, Emma Heming Willis shared some insights she has…
Dear HelpLine – Support for Veterans
Dear HelpLine, My loved one is a veteran. Do we qualify for any support? Navigating the Department…
AFTD Ambassador Shares Challenges of Being a Long-Distance Care Partner in Interview
AFTD Ambassador Melissa Fisher shared the realities of being a long-distance care partner in an interview published…
FDA Clears Way for Clinical Trial for AviadoBio Therapy That Could Halt FTD Progression
AviadoBio will soon open U.S. clinical trial sites for an experimental gene therapy that could halt the…
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