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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at volunteer@theaftd.org.
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News & Events Near You
Advancing Hope: FTD and ALS Joint Initiatives
Did you know that certain cellular changes that occur in FTD are also observed in Amyotrophic Lateral…
The Lived Experience of FTD: Managing Anxiety
The following article was written by Chris Tann, a member of AFTD’s Persons With FTD Advisory Council….
Two Drugs Selected for Evaluation in Platform Trial for PSP
A pair of drugs has been selected for evaluation in a platform trial that aims to accelerate…
Dear HelpLine: Hospice Care and FTD
Dear HelpLine, My sister has had FTD for a few years, and her doctor recently told us…
Study Evaluates PET Tracer and Explores How PSP Damages Brain Synapses
A study published in the journal Alzheimer’s & Dementia evaluates the potential utility of a novel PET…
Former Judge Gains Artistic Ability after PPA Diagnosis
A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis…
Volunteer Update: Thank You to Our Volunteers!
To all those who dedicate their time and energy with AFTD to making a difference within the…
Advancing Hope: AFTD Attends 2025 American Academy of Neurology (AAN) Meeting
Staff from AFTD and the FTD Disorders Registry attended the American Academy of Neurology’s Annual Meeting earlier…
PPA Telehealth Intervention Gets Positive Results in Phase 2 Clinical Trial
A phase 2 clinical trial evaluating a telehealth therapy intervention for primary progressive aphasia (PPA) published positive…
AFTD Ambassador Spencer Cline Delivers Moving Keynote Address at Hope Rising
“We are not a product of what has happened to us. We have the power of choice.”…
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