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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: [email protected].
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at [email protected].
Sign Up To Receive AFTD Alerts
News & Events Near You
March’s Athlete of the Month: Lynne Lewis
Our Charity Miles Athlete of the Month for March is Lynne Lewis from Pennsylvania. Lynne uses the…
Advocacy Update: AFTD Ambassador Corey Esannason Meets with Staff from State Senator Andrea Stewart-Cousins’ Office
On March 3 AFTD Ambassador Corey Esannason met with staff from New York State Senator Andrea Stewart-Cousins’ office….
Study Highlights Importance in Differentiating Varying Types of Disinhibition in bvFTD
A study published in the medical journal Cortex highlights the importance of differentiating between the various types…
AFTD Staff and Volunteers Featured in Domestic and International News Stories
Members of AFTD’s staff, Board, and Medical Advisory Council (MAC), as well as AFTD volunteers, were featured…
New Book on Atypical Dementias Explains FTD with Case Studies and Lived Experiences
A recently published book, Atypical Dementias: Understanding Midlife Language, Visual, Behavioral & Cognitive Changes, provides insight into…
Study Recommends New Approach to Paying for Dementia Care
A study recently published in Health Affairs highlights the high costs of dementia care and the need…
Tips & Advice: Aggressive Behavior and FTD
One of FTD’s more troubling symptoms is the emergence of uncharacteristically aggressive behavior. Every case of FTD…
Tips & Advice: Dealing with Feelings of Grief Following the Bruce Willis Diagnosis
The news last week that beloved actor Bruce Willis is living with FTD has sparked a surge…
Family of Bruce Willis Announces Actor Has Been Diagnosed with FTD
Bruce Willis has been diagnosed with frontotemporal dementia (FTD), the actor’s family said in a statement released…
What Is Frontotemporal Dementia, the Disease Bruce Willis Is Diagnosed With?
Today, the family of Bruce Willis announced that the 67-year-old actor has been diagnosed with frontotemporal dementia…
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