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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: [email protected].
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at [email protected].
Sign Up To Receive AFTD Alerts
News & Events Near You
World FTD Awareness Week Guest Feature: Advocating for the Future, Advocating for Love – Insights From a Lifelong FTD Journey
Despite the grief, frustration, and sadness that can affect families on the FTD journey, many have channeled…
Advancing Hope: AFTD Holds Inaugural Research Roundtable Conference to Convene Stakeholders in FTD Research
The FTD Research Roundtable is a new initiative at AFTD to enable discussion and shared problem-solving across…
Emma Heming Willis and AFTD CEO Susan L-J Dickinson Interviewed on NBC’s “Today Show”
Emma Heming Willis gave updates on her family’s FTD journey and discussed the disease alongside AFTD CEO…
Study Assesses Machine Learning in Classifying FTD and Alzheimer’s in Underrepresented Groups
A study published in the medical journal The Lancet assessed the use of machine learning and clinically…
New Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com
Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the…
Volunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research
FTD science has come far in the 21 years since AFTD began its mission, with scientists closer…
AFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD
A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a…
Research Paper Highlights Gaps in FTD Research, Calls for Greater Diversity in Studies
A comprehensive research paper published in the journal Alzheimer’s & Dementia highlights critical gaps in FTD research…
Help & Support: Sleep Issues in FTD
Changes to sleep routines are a common challenge for the person living with FTD and their care…
NIH Identifies Genetic Risk Factors for FTD, Offers Data to Researchers Online
Scientists at the National Institutes of Health (NIH) leveraged cutting-edge technology to identify genetic risk factors for…
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