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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, info@theaftd.org).
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at volunteer@theaftd.org.
Sign Up To Receive AFTD Alerts
News & Events Near You
Volunteer Update: How Can a Meet & Greet Help?
Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family…
AFTD announces 2023 Pathways for Hope Pilot Grant recipients
AFTD’s Pilot Grant program – our longest running funding opportunity – provides seed funding for innovative FTD…
Tips & Advice: Dealing With the Loss of Empathy
One of the most distressing symptoms of FTD is a loss of empathy, which can cause persons…
U.K. Researchers to Conduct Nationwide Trial Evaluating Blood Test for Dementia
Researchers in the United Kingdom are preparing to conduct a nationwide trial evaluating blood tests for biomarkers…
Dear HelpLine: Brain Donation
Dear HelpLine, How do we learn more and start the process of arranging a brain donation for…
Case Report Discusses Symptoms and Diagnosis of Progressive Supranuclear Palsy
A case report published earlier this year in the journal Radiology Case Reports discusses the symptoms and…
Advancing Hope: AFTD and Registry Staff attend Neurology Meeting
AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April…
The Lived Experience of FTD: Frustrations of FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…
FTD Advocate Discusses Isolation and Housing Concerns Faced by Family Care Partners
In a column published by the digital periodical Next Avenue, FTD advocate Aisha Adkins, MPA, CNP, discusses…
First Participant Treated in AviadoBio Phase 1/2 Clinical Trial for FTD-GRN Gene Therapy
AviadoBio announced on April 15 that the first participant has been treated in its Phase 1/2 ASPIRE-FTD…