AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: [email protected].
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
In Your State
Groups In Surrounding States
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
In Your State
Medical Centers In Surrounding States
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at [email protected]
(Click here to learn more about Jacqueline Butler-Gamble’s connection with AFTD)
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
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News & Events Near You
Tips & Advice: Documenting Changing Behavior
Many behaviors caused by FTD, such as aggression, disinhibition, delusions, and apathy, are challenging and distressing for…
Advancing Hope: Major Leaders in FTD and ALS Research Gather in Arizona for Summit on C9orf72 Gene
In March, prominent leaders in FTD and ALS research gathered in Scottsdale, Arizona, for the first-ever summit…
FTD Can Produce a Creative Spark in Some, Study Finds
Brain atrophy patterns specific to FTD can let loose previously suppressed creative abilities in some people diagnosed…
“What Do People with PPA Want from Speech-Language Therapy?” Recent Study Asks
A study published in the International Journal of Language and Communication Disorders explores the needs of people…
May’s Athlete of the Month: Dane Sundseth
AFTD’s May Charity Miles Athlete of the Month is Dane Sundseth from Southern California! After a friend…
May 25: 2023 Woodland Senior Resource Fair
AFTD volunteer Debby Scanlan will be representing AFTD at the 2023 Woodland Senior Resource Fair in Woodland,…
May 31: Aging Unbound Fair
AFTD will be hosting an information table at the Aging Unbound Fair on May 31 in Burke,…
June 1: In-Person Meet & Greet in Fredericksburg, VA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet…
Researchers Review Efficacy of Cognitive Exams in Recent Study
Researchers set out to evaluate the efficacy of three prominent cognitive exams used to screen people for…
Help & Support: What Should You Bring to a Doctor’s Appointment?
Going to any medical appointment can be overwhelming, from the stress of getting there on time to…