Rhode Island
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone:Â 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
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Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at hgruen@theaftd.org
Hannah Gruen
Volunteer Engagement Coordinator
hgruen@theaftd.org
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News & Events Near You
Volunteer Update: Celebrating the Growth of FTD Awareness
It is not often that the community comes together in person, so it was extra special when…
Advancing Hope – AFTD Attends 2024 International Society for FTD Conference
The AFTD was proud to have ten staff members, and four Board members attend the International Society…
Study Finds That FTD and ALS Have Similar Cellular and Molecular Characteristics
A study by MIT and Mayo Clinic researchers published in the Cell journal finds that FTD and…
The Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD….
Dear HelpLine: Medication and FTD
Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like…
Psilera Announces Positive Preclinical Data for FTD Intervention Candidate
Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards…
Guest Feature: “Yes, and…” by Catherine Savini
Navigating the symptoms of FTD can be difficult for loved ones, especially when someone living with the…
When One Voice Sounds Like a Chorus: Dawn Kirby’s Relentless Campaign to Raise FTD Awareness
Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently…
October 26, 2024: In-Person Meet & Greet in Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet…
AFTD Volunteer Secures 3 FTD Awareness Week Proclamations in Ohio
Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident…