AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.

AFTD Volunteers -- Colfax Marathon
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Contact AFTD’s HelpLine

AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.

Contact our HelpLine by Phone1-866-507-7222 | Contact our HelpLine by Email: [email protected].



Find a Support Group for Care Partners Near You

Support groups are a resource and a place to connect and share with others who understand.

PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).

In Your State

Groups In Surrounding States

Virtual & National Groups


Contact a Medical Center

FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.

In Your State

Medical Centers In Surrounding States

Image of the HelpLine staffDo you need more assistance?
Please contact the HelpLine staff at 1-866-507-7222 or [email protected].

Get Involved

Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.

Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at [email protected]

Carrie Johnson

Carrie Johnson
[email protected]

(Click here to learn more about Carrie Johnson’s connection with AFTD)

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