Puerto Rico
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at volunteer@theaftd.org.
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News & Events Near You
AFTD Joins Nearly 150 Supporters in Letter Urging Congress to Reject Medicaid and SNAP Cuts
AFTD joined nearly 150 organizations and individuals in a letter penned by the Alliance for Aging Research…
The Lived Experience of FTD: Overeating and Other Temptations in FTD
By Anne Fargusson, RN, AFTD Persons with FTD Advisory Council Among the hallmark symptoms of FTD is…
Advancing Hope: AFTD Hosts 2025 Holloway Summit
Can the risk of developing FTD be changed by environmental exposures, lifestyle, diet, and other factors? Are…
Pair of Studies Make Significant Findings in Search for FTD Biomarkers
Two recent studies on proteins and FTD are helping to lay the foundation for the potential development…
Dear HelpLine: Looking for Support Options
Dear HelpLine, My brother was diagnosed with FTD. I see that AFTD offers support groups, but I’m…
Study Examines Nature of Criminal Risk Behaviors in Dementia
An Australian Study uses an experimental screening tool to examine the propensity and nature of criminal risk…
Guest Feature: The Story Behind the Story – Our Journey Through FTD and Why I Wrote “Welcome to the Honey B & B”
Novelist Melody Carlson drew from her family’s FTD story to write her latest book, Welcome to the…
Passage Bio Announces Interim Data for UpliFT-D Trial for FTD-GRN
Biotechnology company Passage Bio released interim data for its upliFT-D clinical trial for its gene replacement therapy…
Advocacy Update: Protect FTD Research Today!
Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your…
FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research
An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by…
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