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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, info@theaftd.org).
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
Get Involved
Take charge of your FTD journey -- and make things easier for the next family -- by becoming an AFTD volunteer. Contact a AFTD Volunteer Coordinator at volunteer@theaftd.org.
Sign Up To Receive AFTD Alerts
News & Events Near You
BBC to Air Documentary on Former Rugby Player with Motor Neuron Disease
The British Broadcasting Corporation (BBC) is set to air a documentary that highlights the experiences of a…
FDA Announcement on ALS Drug Reflects Growing Hope for Treatments
The FDA’s recent approval of a new drug to treat ALS signals important and promising developments for…
AFTD Ambassador Shares FTD Information, Experiences on Facebook Live
AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts…
Karate Black Belt Shares His Experiences with Motor Neuron Disease
A karate ace in the UK shared his experiences of wanting to help people and stay active…
Help & Hope #90
Issue #90 September 15, 2022: In this issue you can learn about navigating facility care options for…
Finding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community
An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when…
Volunteer of the Month #90: Nicole DeLeve
When Nicole DeLeve’s father was diagnosed with ALS with bvFTD in 2016, she found herself exhausted from…
At International Dementia Conference, Panelists Call for More Funding and Training for Specialized Dementia Care
Panelists at the International Dementia Conference in Sydney called for increased funding and training to address the need…
Care Partner Shares How Cultural Disconnect Makes Dementia Care Harder for AAPI Community
A recent article in Northwest Asian Weekly highlights how a disconnection between care infrastructure and culture can…
Advocate Talks About Experience with Isolation and FTD in the LGBTQIA+ Community
Dementia advocate Patrick Ettenes recently shared his experience with FTD with the Times of Malta, and underscored…
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