Puerto Rico
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at volunteer@theaftd.org.
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News & Events Near You
Lessons From a Caregiver
Like a new parent, Linda Osmundson set out on her caregiving journey with no experience, she said…
Fundraising On The Run: 7 Marathons in 7 Days on 7 Continents
Fundraising really doesn’t have to be this hard. Bryan Metoyer has just finished the World Marathon Challenge—an…
US FDA Accepts Investigational New Drug Application for Coya Therapeutics’ Experimental Therapy for FTD
Biotechnology company Coya Therapeutics announced that the United States Food and Drug Administration had accepted its investigational…
Recognizing the Easily Mistaken Signs of Young-Onset Dementia
Signs of young-onset dementias such as FTD are difficult to diagnose, according to an article on The…
Advancing Hope: FTD Staff attend the Amyotrophic Lateral Sclerosis Motor Neuron Disease Annual Symposium
Shana Dodge, PhD, AFTD’s Director of Research Engagement, and Kim Jenny, MS, LCGC, AFTD’s Manager of Genetic…
Dear HelpLine: Compulsive Sexual Behavior
Dear HelpLine, My spouse with bvFTD has some behaviors that are difficult to talk about. He is…
Prevail Therapeutics Discontinues PR006 Trial
On February 4, Prevail Therapeutics, a wholly owned subsidiary of Eli Lilly & Co., announced the discontinuation…
FTD Call To Action Featured In Canadian Media
In an opinion piece published recently in the Edmonton (Alberta, CA) Journal, Naomi Mison called for reform of the…
AARP Highlights What FTD Caregivers Need to Know
It’s subtle changes in speech and behavior, not memory loss, that is often the first sign of…
AFTD Grantee Contributes to Study on Impact of Neuropsychiatric Symptoms in PSP
A study published in the European Journal of Neurology analyzes the impact of neuropsychiatric symptoms like depression…
