AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, as of March 13th AFTD suspended all face-to-face volunteer activities, including support group meetings. AFTD support group volunteers are providing remote options as they are able. Please contact the group leader closest to where you live (see below) to learn more. AFTD continues to provide information and resources about COVID-19 and FTD on our main page. If you have questions about support in general, please contact AFTD's HelpLine at 1-866-507-7222, or by email at [email protected]
View Support Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
View Medical Centers
Take charge of your FTD journey -- and make things easier for the next family -- by becoming an AFTD volunteer. Contact your AFTD Volunteer Coordinator to find out how:
Sign Up To Receive AFTD Alerts
News & Events Near You
World FTD Marathon
On October 3, presenters from around the globe will provide the latest information on FTD research and...
Help & Hope #66
Issue #66: September 2020 In this issue you can find out what's in the works for World...
Community Forum Friday: “Connecting As Caregivers – The Power of Support Groups
Have you ever thought about attending a caregiver support group? Do you have a loved one who...
Washington, DC Virtual Meet & Greet
Join AFTD Volunteer Jen Hoar for a Virtual Meet & Greet in Washington DC. E-meet (via Zoom...
Webinar: FTD Care Planning with Essential Legal Documents
Navigating care after an FTD diagnosis can be like facing rough, uncharted waters. This webinar provides information...
Ellie's Butterflies is a children's picture book written by Alecia Smith, described as a "loving story about...
Defending Against Scams During COVID-19
As COVID-19 continues to impact the country, scammers are taking advantage of the situation by playing into...
Biotech Company Alector Announces Promising Data in FTD-GRN Treatment Study
Alector has dosed the first participant in a pivotal Phase 3 clinical trial evaluating the efficacy of...