AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: [email protected].
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
In Your State
Groups In Surrounding States
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
In Your State
Medical Centers In Surrounding States
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at [email protected]
(Click here to learn more about Jacqueline Butler-Gamble’s connection with AFTD)
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
(Click here to learn more about Corey Esannason’s connection with FTD)
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News & Events Near You
The Lived Experience: Brain Donation
By Cindy Odell I was diagnosed with bvFTD more than ten years ago. My immediate reaction was…
Guest Feature: “Until We Knew, Twice: Life With MND/ALS and FTD” Shares a Story of Love and Grief on the FTD Journey
The FTD journey can be an isolating experience; it can often feel like nobody knows what you…
March’s Athlete of the Month: Lynne Lewis
Our Charity Miles Athlete of the Month for March is Lynne Lewis from Pennsylvania. Lynne uses the…
Advocacy Update: AFTD Ambassador Corey Esannason Meets with Staff from State Senator Andrea Stewart-Cousins’ Office
On March 3 AFTD Ambassador Corey Esannason met with staff from New York State Senator Andrea Stewart-Cousins’ office….
Annual AFTD Hope Rising Benefit Raises Crucial Funds for Fight Against FTD
(L-R: Hope Rising Benefit Co-Chair David Zaslav, AFTD CEO Susan L-J Dickinson, AFTD Board member Kristin Holloway,…
Study Highlights Importance in Differentiating Varying Types of Disinhibition in bvFTD
A study published in the medical journal Cortex highlights the importance of differentiating between the various types…
AFTD Staff and Volunteers Featured in Domestic and International News Stories
Members of AFTD’s staff, Board, and Medical Advisory Council (MAC), as well as AFTD volunteers, were featured…
New Book on Atypical Dementias Explains FTD with Case Studies and Lived Experiences
A recently published book, Atypical Dementias: Understanding Midlife Language, Visual, Behavioral & Cognitive Changes, provides insight into…
Duke Health Asking for People with FTD to Participate in Non-Invasive Study
AFTD does not “endorse” or “approve” any study or take funding to publicize research opportunities. We provide…
Study Recommends New Approach to Paying for Dementia Care
A study recently published in Health Affairs highlights the high costs of dementia care and the need…