New York
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: [email protected].
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
In Your State
Groups In Surrounding States
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
In Your State
Medical Centers In Surrounding States
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at [email protected]
Jacqueline Butler-Gamble
[email protected]
(Click here to learn more about Jacqueline Butler-Gamble’s connection with AFTD)
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
Sandra Gonzalez-Morett
[email protected]
(Click here to learn more about Sandra Gonzalez-Morett’s connection with FTD)
Sign Up To Receive AFTD Alerts
News & Events Near You
October 13: 12th Annual Caregivers Conference in Richland, WA
AFTD volunteer Cheryl Garvey will be sharing FTD educational and awareness materials at the 12th Annual Caregivers…
New Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com
Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the…
October 5: Virtual Meet & Greet for Syracuse, New York Area
AFTD Volunteer Molly Secrest is interested in helping to bring FTD awareness and resources to the Syracuse,…
Volunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research
FTD science has come far in the 21 years since AFTD began its mission, with scientists closer…
AFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD
A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a…
Research Paper Highlights Gaps in FTD Research, Calls for Greater Diversity in Studies
A comprehensive research paper published in the journal Alzheimer’s & Dementia highlights critical gaps in FTD research…
Help & Support: Sleep Issues in FTD
Changes to sleep routines are a common challenge for the person living with FTD and their care…
NIH Identifies Genetic Risk Factors for FTD, Offers Data to Researchers Online
Scientists at the National Institutes of Health (NIH) leveraged cutting-edge technology to identify genetic risk factors for…
Australian Journalist Running Sydney Marathon to Honor Late Mother
Journalist Daisy Dumas will be running the Sydney Marathon on September 17 to raise awareness of FTD,…
Advancing Hope: AFTD Staff Present at the 2023 Alzheimer’s Association International Conference
Senior Director of Scientific Initiatives Penny Dacks, PhD, and Director of Research and Grants Debra Niehoff, PhD,…
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