What's New

AFTD Research Engagement Director Presents Findings on Latinos and FTD Diagnoses in Interview

AFTD Director of Research Engagement Shana Dodge, PhD, presented data suggesting that obtaining an FTD diagnosis can be more difficult for Latino Americans in a June 4 interview with KJZZ, a Phoenix-based National Public Radio member station. Drawing from data originally gathered for the FTD Insights Survey, conducted by AFTD and the FTD Disorders Registry…

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Unique FTD Caregiving Story Detailed in “Atavist” Article

The story of a literature professor who received FTD care in his last years from a previously incarcerated person he had befriended while co-running a prison arts program was recently recounted in the Atavist, an online publication focused on long-form journalism. The professor, Buzz Alexander, co-founded the University of Michigan’s Prison Creative Arts Project (PCAP)…

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Sodium Selenate Could Be Promising Treatment for bvFTD, Study Suggests

Scientists from Monash University in Australia are investigating whether the dietary supplement sodium selenate could be a useful treatment option for some persons living with behavioral variant FTD (bvFTD). In a recent study published in Alzheimer’s and Dementia: Translational Research and Clinical Interventions, researchers presented findings from a small, uncontrolled, preliminary clinical trial. Sodium selenate…

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FTD Care Partner Discusses Husband’s FTD Diagnosis, Finding Support on “Dementia Dialogue” Podcast

FTD care partner Jill Czuczman discussed finding a positive approach to living with a young-onset dementia diagnosis in a recent episode of the Dementia Dialogue podcast. Czuczman joined guest host Kathy Hickman to share how her family is navigating her husband’s FTD diagnosis, and the challenges they’ve faced on their journey. David Czuczman was diagnosed…

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AFTD Senior Director of Scientific Initiatives Discusses FTD and ALS at 2022 Target ALS Annual Meeting

AFTD Senior Director of Scientific Initiatives Penny Dacks, PhD, discussed the overlapping disease pathology between ALS and FTD during an interview conducted at the 2022 Target ALS Annual Meeting, held May 3-5 in Cambridge, Massachusetts. During the conversation with Target ALS Director of Communications Steve Schonberg, available to watch on the Target ALS YouTube channel,…

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Volunteer of the Month #86: Deb Millis

When Deb Millis’ husband was diagnosed with FTD five years ago, after showing signs of decline throughout the previous five years, her local support group became a vital resource for navigating their FTD journey. When the group’s leader moved on in 2020, Deb and another member, now her co-facilitator, volunteered to step in and keep…

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Community Connection #86: Raise Awareness by Hosting an AFTD Table Setting

Raise Awareness by Hosting an AFTD Table Setting Stimulating greater public awareness and understanding of FTD is a key aspect of AFTD’s mission. Join volunteers across the country in engaging, educating, and informing local communities about FTD and AFTD by hosting a table setting! From dementia conferences to wellness fairs to air shows, table settings…

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