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When One Voice Sounds Like a Chorus: Dawn Kirby’s Relentless Campaign to Raise FTD Awareness
Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked…
October 26, 2024: In-Person Meet & Greet in Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jeanne Cestone, taking place from 10:30-11:30 a.m. on…
AFTD Volunteer Secures 3 FTD Awareness Week Proclamations in Ohio
Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith…
Advancing Hope: AFTD Hosts Industry Advisory Panel
On August 8 and 9, AFTD hosted an industry advisory panel in which a group of people whose lives have been touched by FTD shared their experiences and perspectives with…
Guest Feature: One Woman’s Journey – from Getting Diagnosed to Attempting Suicide to Embracing Life
September is Suicide Prevention Month. Below, Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and…
October 4, 2024: In-Person Meet & Greet in Midlothian, VA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Midlothian, Virginia, near Richmond, hosted by AFTD volunteer Carrie Edwards. The…
Medical Technology CEO Discusses Using EEG to Differentiate FTD and Alzheimer’s
In an interview with Neurology Live, Advanced Brain Monitoring CEO Chris Berka shares insights from a pilot study that found how electroencephalography (EEG) can be used to differentiate between FTD,…
A Conversation with Juan Chavez, MD, of Passage Bio
AFTD recently spoke with Passage Bio Vice President of Clinical Development Juan Chavez, MD, about the company’s work to develop a therapy addressing FTD. Here, Dr. Chavez shares where he…
Acurastem Receives CIRM Grant for Targeted Therapeutic Program for ALS/FTD
Biotechnology company AcuraStem announced that it has received a $4 million grant from the California Institute for Regenerative Medicine (CIRM) for its targeted therapeutic program for ALS and FTD. The…
Dear HelpLine: Social Security Benefits for People with FTD
Dear HelpLine, My dad is 55 and had to leave his job after he was diagnosed with FTD. Are there Social Security benefits that we are eligible for? As a…