What's New
CANCELED: 12th International Conference on Frontotemporal Dementias, Minnesota
The 12th International Conference on Frontotemporal Dementias (ICFTD) and the 1st International Society for Frontotemporal Dementias Congress 2020, scheduled for October 7 – 10, has been canceled in response to COVID-19 pandemic.
Alabama Family Shares FTD Journey, Speaks to Importance of Connection
Although FTD has robbed Gene Guy of the ability to talk, he still communicates with his daughter, Amber, every day. While he may be unable to tell her he loves her, she still knows. A computer programmer with a passion…
AFTD Highlights Mom’s Story in Latest N.Y. Times Awareness Ad
The Sunday, October 4 issue of the New York Times features the story of Jennifer Lee, a woman living with FTD, in the latest in a series of FTD awareness ads to run in the Times. The ad, which appears…
World FTD Marathon
On October 3, presenters from around the globe will provide the latest information on FTD research and support, and share about the lived experience of this disease during the daylong World FTD Marathon. AFTD is curating the North, Central and…
Cranking Up the Heat: #FTDhotshotchallenge
In its first week, the #FTDhotshotchallenge has raised over $22,000, as volunteers all over the world are raising FTD awareness by taking a shot of hot sauce and sharing the footage on social media. Today, we’re announcing that an anonymous…
Researchers Explore Mechanisms Behind TDP-43 Clumping, Test Investigational Drug
A team of researchers has shown for the first time how toxic proteins produced by the mutated C9orf72 gene stimulate protein clumps that can result in the neurological decline associated with FTD, and point to an investigative drug that may…
AFTD and ADDF Announce Major New Investments in FTD Research
AFTD and The Alzheimer’s Drug Discovery Foundation (ADDF) announced today four new research awards to scientists looking for novel ways to diagnose and treat FTD. The awards were announced this week to help mark World FTD Awareness Week 2020. “Our…
Members of AFTD Community Featured on Caregiver Solutions Show to Raise FTD Awareness
Members of the AFTD community, including staff and a volunteer, were featured on the Caregiver Solutions Info Show to shed light on FTD and current awareness events. Hosted by Marcia Teele, the show provides information, advice, and support related to…
AFTD Awareness Ads Featured in New York Times Introduce #FTDhotshotchallenge
A recent set of awareness ads featured in the New York Times highlights the stories of families touched by FTD and introduce the #FTDhotshotchallenge. On Sunday, September 27, the print edition of the Times included a full-page ad, seen above….
World FTD Marathon 2020
To mark World FTD Awareness Week 2020, AFTD and its fellow members of the World FTD United coalition will spread FTD awareness and information across the globe with the first-ever World FTD Marathon. AFTD is curating the North, Central and…