What's New
It’s OK Not to Be OK: Dealing with Grief and Loss Amid FTD and COVID
Partners in FTD Care, Summer 2020 Download the full issue (pdf) You have chosen an incredibly meaningful line of work, which not only supports persons diagnosed with FTD, but also their families. While it is truly an honor to be part…
COVID Preparedness and Facility Care
Partners in FTD Care, Summer 2020 Download the full issue (pdf) For families navigating an FTD diagnosis, the decision to move a loved one into a long-term care (LTC) facility can be made even more difficult by the COVID-19 pandemic, as…
What to Do About Managing Facility Care During COVID-19
Partners in FTD Care, Summer 2020 Download the full issue (pdf) The COVID-19 pandemic has upended everyone’s normal routine. Among the places with the most drastic changes are long-term care facilities. For people with FTD and their families, the coronavirus outbreak…
From a Caregiver’s Perspective: The Delicate Balance
Partners in FTD Care, Summer 2020 Download the full issue (pdf) By Rachael Martinez During the last few months, the world has largely stopped. Stores, churches, courtrooms, beaches, businesses and more all shut down to “flatten the curve” of the novel…
Employee Burnout and the Value of a Staff/Caregiver Partnership
Partners in FTD Care, Summer 2020 Download the full issue (pdf) For health care professionals providing FTD care during this time, it is important to recognize the difficulties COVID-19 poses for persons diagnosed and their families. Practicing open and honest communication…
Life During a Pandemic: FTD Facility Care Amidst COVID-19
Partners in FTD Care, Summer 2020 Download the full issue (pdf) Across the U.S., long-term care facilities have emerged as hotspots for the spread of the novel coronavirus, significantly disrupting their usual routines. For people living with FTD who are in…
“Hollywood Reporter” Goes Behind the Scenes with “Zoey’s Extraordinary Playlist”
The Hollywood Reporter recently went behind the scenes with the cast and crew of Zoey’s Extraordinary Playlist to talk about how the series, which concluded its first season earlier this summer, uses music to express emotion and foster a sense…
Process Typically Linked to Physics Helps Researchers Better Understand Neurodegeneration
The same process that causes dew drops to form on blades of grass appears to play an important role in FTD and other neurodegenerative diseases, according to new clues derived from physics. That process, known as phase transition, is used…
Everett, WA Virtual Meet & Greet
Join AFTD Ambassador Joanne Linerud for the first ever Virtual Meet & Greet for the Everett, WA area. E-meet (via Zoom video conference) others in your area whose lives are affected by FTD. RSVP is required to receive Zoom meeting…
German Researchers Identify Potential Biomarker to Improve PSP Diagnosis
Researchers in Germany have identified a potential biomarker that shows promise in helping to achieve earlier and more reliable diagnoses of progressive supranuclear palsy (PSP). Based on an observational study of 60 persons diagnosed with PSP, researchers from Munich and…