What's New
AFTD Grantee Contributes to Study on Impact of Neuropsychiatric Symptoms in PSP
A study published in the European Journal of Neurology analyzes the impact of neuropsychiatric symptoms like depression and anxiety on the quality of life of people living with progressive supranuclear…
AFTD’s Esther Kane and Volunteer Liz Zadnik Interviewed on Podcast
In a recent episode of Honestly Aging by Friends Life Care VigR®, AFTD Support & Education Director Esther Kane, and AFTD Ambassador Liz Zadnik shared a mic with host Cheryl…
The Lived FTD Experience: FTD in the Arts
Science tells us that neurodegenerative disease can sometimes reveal unexplored creative talents, and that creating art can be a useful diversion from stress and grief. For those reasons, starting in…
AFTD Webinar: The Future of Neurodegenerative Advocacy: Collaboration, Science and Shared Goals
Scientific understanding of neurodegenerative diseases is rapidly evolving, revealing extensive overlap of both symptoms and biology among these disorders. Shared genetic factors behind both ALS and FTD are one example;…
Brain Donation is Final Gift of 24-Year-Old Diagnosed with FTD
Brain donation can be a selfless act born of tragedy. The story of Andre Yarham has captured the attention of media outlets across the United Kingdom, highlighting both the reach of FTD into young adulthood, and the…
Art as Hope: Emma Heming Willis Featured in CNN’s The Story Is with Elex Michaelson on FTD In the Arts
Art can reveal the “whole person” that lies beneath their infirmity or grief, said Emma Heming Willis, wife of Bruce Willis, last week. She was featured yesterday on CNN’s The…
Understanding the Path to an FTD Diagnosis
The FTD diagnostic journey currently averages 3.6 years. Being Patient recently highlighted the complexities surrounding FTD diagnosis, shedding light on why so many families face years of uncertainty before receiving…
Tips & Advice: Genetic Testing and FTD
A common question people may ask when a loved one is diagnosed with FTD, especially if there is a family history of dementia, is “Am I at risk too?” While…
AFTD Applauds House Appropriations Committees for Support of NIH, Dementia Research, and Family Caregivers in FY 2026 Labor-HHS Bill
The Association for Frontotemporal Degeneration (AFTD) thanks the House and Senate Appropriations Committees for its release of the Fiscal Year 2026 Labor, Health and Human Services, Education, and Related Agencies…
Genetic FTD News Drives an Artist to Pick Up Paintbrush Again
Genetic FTD can impact family members in sometimes beautiful ways. The Osage Oracle recently told the story of Iowan Alyssa Nash, a young artist who was found to have the…
