What's New
AFTD CEO Susan Dickinson Featured on Dementia Untangled Podcast
AFTD CEO Susan L-J Dickinson, MSGC, recently joined hosts Heather Mulder and Janice Greenough on the Dementia Untangled podcast to discuss FTD, sharing insights about diagnosis challenges, the impact on…
Dear HelpLine: Sharing the Diagnosis
Dear HelpLine, My wife was diagnosed with FTD this past year and we will be seeing family over the holidays. This will be the first time we will be seeing…
Bobby Kimball, Toto’s Original Lead Singer, Living with FTD
The FTD community extends its heartfelt support to Bobby Kimball, original lead vocalist of the band Toto, and his family as the world learns more about the singer’s journey with…
Understanding and Responding to FTD Behaviors
Behavioral symptoms associated with FTD often present significant challenges, not only for the individual diagnosed but also for their care partners. FTD behaviors, such as disinhibition, apathy, compulsivity, or loss…
AFTD Grantee Leads Basic Science Study Exploring Role of Protein in Tau-Based Disorders like CBD
A recent study examines the role of chromogranin A (CgA) in disorders caused by dysfunctional tau protein. The study expands our foundational knowledge of these forms of FTD and opens…
Pave the Path Forward This Giving Tuesday
AFTD Persons with FTD Advisory Council member Sandy Howe and her husband, Dirk, are sharing their story this Giving Tuesday to raise awareness about FTD and provide support for other…
Love Will End FTD: Katie Brandt on Caregiving, Loss, and Leading Change
Katie Brandt, an active and longtime AFTD volunteer, was interviewed on the podcast Navigating the World With Your Aging Loved One. She spoke with host Nicole Will about what it…
Finding Your Way Through the Holidays with FTD
The holidays can magnify everything about living with FTD, but can also become opportunities to adapt and create new ways for connection. For families navigating FTD, the key isn’t trying…
AFTD Webinar: Supporting FTD Care Partners with Individual Therapy
Caring for a family member with FTD can profoundly impact one’s emotional and mental well-being. Care partners are therefore often encouraged to prioritize self-care, including by seeking individual therapy. But…
Study Investigates if Clinical PSP Diagnoses Match Neuropathology in a National Dataset
A study published in the medical journal Alzheimer’s & Dementia finds disagreement between progressive supranuclear palsy (PSP) diagnoses made in-clinic and brain autopsies in the National Alzheimer’s Coordinating Center’s (NACC)…
