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ALS Awareness Month: Understanding an ALS with FTD Diagnosis
May is ALS Awareness Month, a time to raise awareness about amyotrophic lateral sclerosis (ALS), and during this month, AFTD is raising awareness around an ALS with FTD diagnosis. ALS and FTD share an overlapping disease pathology. The C9orf72 gene is the most common gene that causes familial FTD, ALS, and ALS with FTD. As…
Model Discusses FTD Advocacy in “Sports Illustrated” Article
Model and FTD caregiver Nicole Petrie discussed why she’s spreading FTD awareness in a recent Sports Illustrated article. “I have dreamed of shooting for [Sports Illustrated] since I started modeling, but the timing has never seemed more perfect to submit before than it did this year…after over one million people started following me and my…
FTD Insights Survey Data Presented at Latinos & Alzheimer’s Symposium
FTD data focused on the perspectives of Latino Americans living with and impacted by FTD was presented at the third Latinos & Alzheimer’s Symposium. FTD Disorders Registry Director Dianna Wheaton, MS, PhD, CHES, virtually presented a poster titled “Perceptions of Frontotemporal Degeneration Among Latino Americans: A Sub-Cohort Assessment of the FTD Insights Survey” at the…
Little-Known Protein May Play a Role in FTD Disease Pathology, Study Suggests
Researchers at the University of California, Los Angeles (UCLA) are gaining new insight into how the transmembrane protein 106B, or TMEM106B, plays a role in FTD disease pathology. In a study, published in Nature on March 28, UCLA scientists show that amyloid fibrils — potentially harmful fibrous, ropelike structures formed by closely linked protein molecules…
“Simulation House” Lets Iowans Experience What It’s Like to Live with Dementia
The University of Northern Iowa (UNI) and the Northeast Iowa Area Agency on Aging have teamed up to create a dementia simulation house to educate people on what it’s like to live with dementia. Elaine Eshbaugh, a professor of gerontology at UNI, established the dementia simulation house, based on an idea she’s been wanting to…