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Words of Encouragement #86: Golden Oldies, Golden Memories

Golden Oldies, Golden Memories by Chelsi Bisbey When we walked into my mom’s assisted living facility during their spring family carnival, I caught a glimpse of her on the patio before she saw us. She was listening to the live band and mouthing every word to the old Del Shannon song, “Runaway.” She was smiling and…

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Athlete of the Month #86: Debbie Fenoglio

AFTD’s Athlete of the Month for May is Debbie F. from Colorado. Debbie uses the Charity Miles app to track her miles as she walks in memory of her late husband Mike, who was diagnosed with FTD in 2007 and passed away in 2012. “Walking was something Mike and I shared after his diagnosis. He…

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Help & Support #86: Understanding an FTD-ALS Diagnosis

May is ALS Awareness Month, a month dedicated to increasing awareness of amyotrophic lateral sclerosis (ALS), and advocacy for those impacted by the disease. In conjunction with these efforts, AFTD is working to initiate conversation around the intersection of ALS and FTD, which share an overlapping disease pathology. The C9orf72 gene is the most common gene that causes…

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Help & Hope #86

Issue #86: May 2022 In this issue you can learn how to access 2022 Education Conference recordings on our YouTube channel, gain understanding about an FTD-ALS diagnosis, learn about upcoming Independent Events supporting AFTD’s mission, meet our AFTD-Team Athlete of the Month, get progress updates on projects we’ve co-funded with Target ALS, read words of…

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ALS Awareness Month: Understanding an ALS with FTD Diagnosis

May is ALS Awareness Month, a time to raise awareness about amyotrophic lateral sclerosis (ALS), and during this month, AFTD is raising awareness around an ALS with FTD diagnosis. ALS and FTD share an overlapping disease pathology. The C9orf72 gene is the most common gene that causes familial FTD, ALS, and ALS with FTD. As…

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Model Discusses FTD Advocacy in “Sports Illustrated” Article

Model and FTD caregiver Nicole Petrie discussed why she’s spreading FTD awareness in a recent Sports Illustrated article. “I have dreamed of shooting for [Sports Illustrated] since I started modeling, but the timing has never seemed more perfect to submit before than it did this year…after over one million people started following me and my…

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FTD Insights Survey Data Presented at Latinos & Alzheimer’s Symposium

FTD data focused on the perspectives of Latino Americans living with and impacted by FTD was presented at the third Latinos & Alzheimer’s Symposium. FTD Disorders Registry Director Dianna Wheaton, MS, PhD, CHES, virtually presented a poster titled “Perceptions of Frontotemporal Degeneration Among Latino Americans: A Sub-Cohort Assessment of the FTD Insights Survey” at the…

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Little-Known Protein May Play a Role in FTD Disease Pathology, Study Suggests

Researchers at the University of California, Los Angeles (UCLA) are gaining new insight into how the transmembrane protein 106B, or TMEM106B, plays a role in FTD disease pathology. In a study, published in Nature on March 28, UCLA scientists show that amyloid fibrils — potentially harmful fibrous, ropelike structures formed by closely linked protein molecules…

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“Simulation House” Lets Iowans Experience What It’s Like to Live with Dementia

The University of Northern Iowa (UNI) and the Northeast Iowa Area Agency on Aging have teamed up to create a dementia simulation house to educate people on what it’s like to live with dementia. Elaine Eshbaugh, a professor of gerontology at UNI, established the dementia simulation house, based on an idea she’s been wanting to…

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