What's New
Finding Your Way Through the Holidays with FTD
The holidays can magnify everything about living with FTD, but can also become opportunities to adapt and create new ways for connection. For families navigating FTD, the key isn’t trying…
AFTD Webinar: Supporting FTD Care Partners with Individual Therapy
Caring for a family member with FTD can profoundly impact one’s emotional and mental well-being. Care partners are therefore often encouraged to prioritize self-care, including by seeking individual therapy. But…
Study Investigates if Clinical PSP Diagnoses Match Neuropathology in a National Dataset
A study published in the medical journal Alzheimer’s & Dementia finds disagreement between progressive supranuclear palsy (PSP) diagnoses made in-clinic and brain autopsies in the National Alzheimer’s Coordinating Center’s (NACC)…
Rev. Jesse Jackson, Civil Rights Leader, Diagnosed with PSP
The FTD community extends its heartfelt support to Rev. Jesse Jackson and his family following the news today that the civil rights icon has been diagnosed with progressive supranuclear palsy…
Vanity Fair Features Soho Sessions AFTD Benefit in Honor of Bruce Willis
A Soho Sessions benefit concert for AFTD was the subject of an article in Vanity Fair this week. The event, held November 5, honored Bruce Willis, currently living with an…
Amylyx Pharmaceuticals Ends PSP Trial of AMX0035
Amylyx Pharmaceuticals announced recently that it would end its phase 2b trial of its drug AMX0035 for the treatment of progressive supranuclear palsy (PSP). The trial will not proceed to…
Tenacious AFTD Advocacy Gaining Momentum
With 2025’s FTD Awareness Week now behind us, AFTD’s Advocacy team is already gearing up its efforts for next year and beyond. The goal: to have official recognition of FTD…
Alector Clinical Trial Results Townhall
On October 21, 2025, results from Alector Therapeutics’ Phase 3 clinical trial for Latozinemab (AL001) were announced. This intervention, designed for people with FTD caused by variants in the GRN…
Dear Helpline: Look For the Helpers
Dear HelpLine, I’m caring for my husband who was diagnosed with FTD two years ago. Some days I feel like I’m doing okay, and others, I just feel lost and…
The New York FTD Registry: How Advocacy Drives Change
The International Business Times UK recently drew an important connection between FTD advocacy efforts and the new FTD Registry recently voted into law in New York state. The passage of…
