What's New
Webinars
3/5/21: AFTD EL-PFDD Meeting with the FDA
On March 5, AFTD hosted a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) meeting focused on FTD. This meeting was designed to give all whose lives have been affected by FTD the chance to share their direct experience with representatives…
Webinar: Brain-Behavior Connections in Frontotemporal Degeneration
The cognitive and behavioral changes experienced in FTD are closely related to the loss of neurons in the frontal and temporal lobes of the brain. Understanding the connection between changes in the structure of the brain and behavioral symptoms is…
Perspectives in FTD Research Webinar: Gene Therapy in FTD
Gene therapy is showing promise for treating a wide range of diseases, and related clinical trials are emerging for FTD. This webinar, part of a new Perspectives in FTD Research series conducted in partnership between AFTD and the FTD Disorders…
Webinar: Living the Grief of FTD – The Winding Paths of Loss, Love, and Resilience
In FTD, losses begin with the first presenting symptoms. Even before a diagnosis, persons diagnosed and their families experience tremendous fear and worry — which, over time, develop into feelings of grief and loss as more about the diagnosis is…
Webinar: FTD and Genetic Testing – A Practical Approach
About 40% of people affected by FTD have a family history with at least one other relative diagnosed with some form of neurodegenerative disease. Knowing as much as you can about your own, or a loved one’s, FTD diagnosis can…
Webinar: FTD Care Planning with Essential Legal Documents
Navigating care after an FTD diagnosis can be like facing rough, uncharted waters. This webinar provides information on ways to prepare for this challenging journey, highlighting the use of two essential documents: power of attorney and advance directives. Please join…
Webinar: Building a Future Free of FTD – AFTD’s Mission in a Changing World
This webinar, the last in the AFTD Education Conference: Webinar Series, features Susan L-J Dickinson, MSGC, AFTD’s CEO, and David Pfeifer, who became our Board Chair in April 2020. David, the Denver-based President of Anderson Mason Dale Architects, shares personal…
Webinar: The Playlist of My Life – Building a Toolbox for FTD
Following the COVID-19 related cancellation of AFTD’s 2020 Education Conference, we are presenting a month-long 2020 Education Conference Webinar Series. In this webinar, the Very Rev. Tracey Lind, retired dean of Trinity Episcopal Cathedral in Cleveland, OH, explains the idea…
Webinar: Ask the Expert – FTD and COVID-19
Following the COVID-19 related cancellation of AFTD’s 2020 Education Conference, we are presenting a month-long 2020 Education Conference Webinar Series. In this webinar, AFTD’s CEO Susan L-J Dickinson speaks with Bruce Miller, MD, Director of the UCSF Memory and Aging…
Webinar: Self Care, Mindfulness and Remaining Positive
AFTD is presenting a series of webinars reflecting material originally developed for the 2020 AFTD Education Conference, which was canceled due to the COVID-19 pandemic. The material has been adapted to reflect the current climate. Caring for a loved one…