Perspectives in FTD Research Webinar: Navigating Social and Legal Challenges in Familial FTD

Prof. Jalayne Arias, a researcher focused on policy, ethics, and law, and genetic counselor Laynie Dratch join this Perspectives in FTD Research Webinar to discuss important considerations for families impacted by familial FTD. They highlight some of the sociolegal challenges these families can face, and explain the protections provided by federal laws like the Genetic Information Nondiscrimination Act (GINA), Americans with Disabilities Act (ADA), and Health Insurance Portability and Accountability Act (HIPAA).

This Perspectives in FTD Research Webinar is presented jointly by AFTD and the FTD Disorders Registry. The webinar is sponsored by AviadoBio.

Viewers will be able to: 

  • Understand what protected health information is, and how to keep it safe
  • Review the concepts of privacy, confidentiality, and anti-discrimination
  • Learn how GINA, the ADA, and HIPAA do and do not protect against genetic discrimination
  • Develop a strategy to safeguard against future discrimination

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