La FTD viene spesso diagnosticata erroneamente come Alzheimer, depressione, morbo di Parkinson o una condizione psichiatrica. In media, attualmente occorrono 3,6 anni per ottenere una diagnosi accurata.

Partner nella cura dell'FTD

AFTD's Partners in FTD Care è sviluppato da un comitato di educatori di infermieri clinici, assistenti sociali e assistenti familiari e professionali, con il contributo di specialisti esterni per promuovere una maggiore conoscenza e comprensione dell'FTD e condividere le migliori pratiche di assistenza.

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Risorsa AFTD: cosa fare riguardo alle cure palliative per la FTD

Palliative care is specialized medical care for people facing serious illnesses and can be particularly valuable for people with FTD and their families. Its goals are the assessment, management, and, when possible, prevention of illness-related distress, whether physical, spiritual or psychological. Palliative approaches emphasize effective communication and multidisciplinary treatment of symptoms throughout the illness. AFTD…

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Approfondimenti sui sintomi: applicazione degli approcci di cure palliative

Palliative care has its roots in hospice care, which emerged in the 1960s and primarily focused on the needs of patients with cancer.1 In 1990, the World Health Organization recognized palliative care as a distinct specialty focused on relieving suffering and improving quality of life for people with life-limiting illnesses or serious injuries. It identified the…

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Approcci di cura: migliori pratiche per le cure palliative

The University of Colorado’s Neurology Supportive and Palliative Care Clinic is another innovative model of palliative care for individuals living with incurable neurological diseases, like FTD and PPA, and their families. This outpatient clinic was founded in 2012 by Dr. Benzie Kluger, an assistant professor of neurology and the chief of the Neurology Supportive and…

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Il punto di vista di un partner di assistenza: l'assistenza FTD prende un villaggio

By Sharon Hall, FTD Care Partner “You have frontotemporal degeneration, or FTD. It is a progressive disease, and there are currently no treatments. Get your legal affairs in order.” Hearing these words from a doctor is a gut punch, and it does not get easier from there—I call the first year after my husband’s FTD…

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Approcci di cura: cure palliative: idoneità e accesso

Palliative care is specialized and individualized care for people living with a serious medical condition. In FTD, it can be pursued at diagnosis or any point thereafter—unlike hospice, which can only be pursued at the end of life. One can receive palliative care while being treated for other coexisting conditions, and its availability does not…

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Caso di studio: Ripensare le cure palliative: un nuovo approccio alla gestione della DFT

Palliative care is specialized medical care for people facing serious illnesses. It can be used at any stage of the disease to promote quality of life for both individuals living with FTD and their care partners. (Palliative care during the final stages of a progressive disease is known as hospice care.) Because the use of…

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