Con frecuencia, la FTD se diagnostica erróneamente como enfermedad de Alzheimer, depresión, enfermedad de Parkinson o una afección psiquiátrica. En promedio, actualmente se necesitan 3,6 años para obtener un diagnóstico preciso.

Socios en el cuidado de FTD

Socios de AFTD en el cuidado de FTD es desarrollado por un comité de educadores de enfermería clínica, trabajadores sociales y cuidadores familiares y profesionales, con contribuciones de especialistas externos para promover un mayor conocimiento y comprensión de FTD y compartir las mejores prácticas de cuidado.

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Recurso de AFTD: Qué hacer con los cuidados paliativos para la DFT

Palliative care is specialized medical care for people facing serious illnesses and can be particularly valuable for people with FTD and their families. Its goals are the assessment, management, and, when possible, prevention of illness-related distress, whether physical, spiritual or psychological. Palliative approaches emphasize effective communication and multidisciplinary treatment of symptoms throughout the illness. AFTD…

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Perspectivas sobre los síntomas: aplicación de enfoques de cuidados paliativos

Palliative care has its roots in hospice care, which emerged in the 1960s and primarily focused on the needs of patients with cancer.1 In 1990, the World Health Organization recognized palliative care as a distinct specialty focused on relieving suffering and improving quality of life for people with life-limiting illnesses or serious injuries. It identified the…

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Enfoques de atención: Mejores prácticas para cuidados paliativos

The University of Colorado’s Neurology Supportive and Palliative Care Clinic is another innovative model of palliative care for individuals living with incurable neurological diseases, like FTD and PPA, and their families. This outpatient clinic was founded in 2012 by Dr. Benzie Kluger, an assistant professor of neurology and the chief of the Neurology Supportive and…

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La perspectiva de un socio de cuidado: FTD Care Takes a Village

By Sharon Hall, FTD Care Partner “You have frontotemporal degeneration, or FTD. It is a progressive disease, and there are currently no treatments. Get your legal affairs in order.” Hearing these words from a doctor is a gut punch, and it does not get easier from there—I call the first year after my husband’s FTD…

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Enfoques de atención: Cuidados paliativos: elegibilidad y acceso

Palliative care is specialized and individualized care for people living with a serious medical condition. In FTD, it can be pursued at diagnosis or any point thereafter—unlike hospice, which can only be pursued at the end of life. One can receive palliative care while being treated for other coexisting conditions, and its availability does not…

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Estudio de caso: Replanteamiento de los cuidados paliativos: un nuevo enfoque para el manejo de la DFT

Palliative care is specialized medical care for people facing serious illnesses. It can be used at any stage of the disease to promote quality of life for both individuals living with FTD and their care partners. (Palliative care during the final stages of a progressive disease is known as hospice care.) Because the use of…

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Trastornos específicos de FTD
Manejo de síntomas de FTD
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