FTD wordt vaak verkeerd gediagnosticeerd als de ziekte van Alzheimer, depressie, de ziekte van Parkinson of een psychiatrische aandoening. Gemiddeld duurt het momenteel 3,6 jaar om een juiste diagnose te krijgen.

Partners in FTD Zorg

AFTD's Partners in FTD Care is ontwikkeld door een commissie van opleiders van klinische verpleegkundigen, maatschappelijk werkers en familie- en professionele zorgverleners, met bijdragen van externe specialisten om meer kennis en begrip van FTD te bevorderen en beste zorgpraktijken te delen.

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Care Approaches: Living Alone with CBD—Balancing Autonomy and Risk

by Mary O’Hara, LCSW While living alone in early corticobasal degeneration (CBD) may be possible, it will eventually stop being a safe option as the disease advances. Progressive impairments in walking, motor skills, thinking, language, balance, judgment, swallowing and the ability to plan and carry out activities combine to prevent persons diagnosed from adequately tending…

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Casestudie: Het hoeft geen Parkinson te zijn: een blik op corticobasale degeneratie (CBD)

Corticobasal degeneration (CBD) is a rare neurodegenerative disorder characterized by the loss of nerve cells, scarring, and atrophy of the deeper layers in the brain’s frontal and parietal lobes. (Corticobasal syndrome, meanwhile, is its most common presentation based on the pathological symptoms.) Due to their similar presentations, CBD often is initially diagnosed as Parkinson’s disease….

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AFTD-informatie: Wat te doen bij de behandeling van logopenische variant PPA (lvPPA)

The logopenic variant of primary progressive aphasia (lvPPA) presents a unique set of challenges for persons diagnosed, care partners, and health care professionals. As language skills decline, both the person diagnosed and those around them will need to exercise patience as they develop compensatory strategies. The AFTD Resource below can guide care professionals and others…

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Vanuit het perspectief van een verzorger: het belang van spraak- en taaltherapie in PPA

by Barb Murphy For people living with PPA, speech and language therapy can help slow the decline of language ability and compensate for losses over time. For my husband Gary, diagnosed with PPA five years ago, speech and language therapy has had a tremendous impact. Our decision to participate in Northwestern University’s Communication Bridge Clinical…

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From a Caregiver’s Perspective: Music Therapy and Language Retention in PPA

by Gary Eilrich Soon after retiring, I noticed my wife was having trouble expressing herself. Our primary care physician suggested an appointment with a behavioral neurologist, and after an evaluation and neuropsychological testing, she was diagnosed with primary progressive aphasia (PPA). She soon began attending speech therapy sessions, which she enjoyed; she was diligent about…

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Inzichten in de ziekte: PPA-subtypering – Helpt of belemmert het het begrip van PPA?

by Emily Rogalski, PhD One of the most confusing topics for PPA caregivers, clinicians, and researchers studying the condition has been the nomenclature associated with it. PPA subtyping—delineated as agrammatic, semantic, and logopenic subtypes—vary in clinical features and tend to have different patterns of brain atrophy, as well as different probabilistic relationships with underlying pathology….

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