La FTD viene spesso diagnosticata erroneamente come Alzheimer, depressione, morbo di Parkinson o una condizione psichiatrica. In media, attualmente occorrono 3,6 anni per ottenere una diagnosi accurata.

Partner nella cura dell'FTD

AFTD's Partners in FTD Care è sviluppato da un comitato di educatori di infermieri clinici, assistenti sociali e assistenti familiari e professionali, con il contributo di specialisti esterni per promuovere una maggiore conoscenza e comprensione dell'FTD e condividere le migliori pratiche di assistenza.

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Case Study: When the Conversation Stops—Logopenic Variant Primary Progressive Aphasia (lvPPA)

Primary progressive aphasia (PPA) is a neurodegenerative disorder that affects the areas of the brain responsible for speech and language, resulting in the gradual loss of the ability to speak, read, write, or comprehend what others are saying. Researchers divide PPA into three subtypes, including logopenic variant PPA (lvPPA), which is mainly characterized by difficulty…

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Symptom Insights: PPA and Depression

People with PPA experience progressive language loss, but often retain memory, personality, reasoning, and insight into their condition until the advanced stages (Mesulam, 2001; Banks SJ, Weintraub S. 2009). Engaging socially and participating in language-focused activities becomes more challenging because of their difficulties with word-finding. Combined with the awareness of their condition, those living with…

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Ask an Expert: Is Logopenic PPA (lvPPA) an FTD Disorder or Alzheimer’s Disease?

by Emily Rogalski, PhD One of the biggest challenges with PPA is understanding which type of neuropathology is causing a person’s symptoms: a form of FTD or Alzheimer’s disease (AD)? One reason for this challenge is there is no one-to-one correspondence between the symptoms one experiences and the type of pathology. A neurodegenerative disorder whose…

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Risorsa AFTD: cosa fare per gestire l'assistenza in struttura durante il COVID-19

The COVID-19 pandemic has upended everyone’s normal routine. Among the places with the most drastic changes are long-term care facilities. For people with FTD and their families, the coronavirus outbreak has compounded an already stressful situation; meanwhile, healthcare professionals in facilities are also struggling with the pandemic while continuing to provide necessary care to persons…

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Risorsa AFTD: cosa fare per gestire l'assistenza in struttura durante il COVID-19

The COVID-19 pandemic has upended everyone’s normal routine. Among those facing the most drastic changes are those in facility care. For people with FTD and their families, the coronavirus outbreak has compounded an already stressful situation; meanwhile, healthcare professionals in facilities are also struggling with the pandemic while continuing to provide necessary care to persons…

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Dal punto di vista di un caregiver: il delicato equilibrio

By caregiver Rachael Martinez During the last few months, the world has largely stopped. Stores, churches, courtrooms, beaches, businesses and more all shut down to “flatten the curve” of the novel coronavirus. Both individuals and families sheltered in place, being told it was safer at home—but what about the people for whom it wasn’t? Members…

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