AFTD-Webinar: Vom Symptombeginn bis zur Diagnose: Verbesserung des FTD-Diagnoseprozesses
From Symptom Onset to Diagnosis: Improving the FTD Diagnostic Journey FTD’s complex symptomology means it is often misdiagnosed. This webinar will explore what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early symptoms, barriers to timely diagnosis, and opportunities to improve detection and referral pathways. A…
WeiterlesenDetroit Marathon
Two participants in the Detroit Marathon will be adding onto their marathon experiences by fundraising for AFTD’s mission while they train and run in the race. Glenna Sikdar Creek is running in honor of her mother Carla who is currently living with FTD and Kelly Collins is also running in honor of her mother who…
WeiterlesenLife Time Chicago Halbmarathon
Ana Gaither and some members of her family will be running in the 2025 Life Time Chicago Half Marathon this fall in memory of Ana’s aunt Erin Lynch- McNulty who was diagnosed with FTD and recently passed away.
WeiterlesenHood-to-Coast-Staffellauf
Elica Sharifnia und ihr Staffelteam nehmen am Rennen teil und sammeln Spenden im Gedenken an Elicas Vater Hamid Sharifnia.
WeiterlesenJersey Freeze Eiscreme-Party
AFTD Advocacy Coordinator Lauren Pelaia is hosting a sweet fundraiser at Jersey Freeze on July 10th. A portion of the sales that day from the ice cream parlor and restaurant will be donated to AFTD’s mission in memory of Lauren’s mother. Make sure to mention the event when you order to get a portion of…
WeiterlesenSehr geehrte HelpLine: Comstock Grants
Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more? Living with FTD brings significant changes for both persons diagnosed and their care partners. As symptoms emerge — behavioral changes, language challenges, cognitive shifts —…
WeiterlesenFörderung der Hoffnung; AFTD nimmt an der Tau Global Conference teil
In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS), MAPT Frontotemporal Degeneration, Alzheimer’s Disease, and other neurodegenerative disorders. This conference was co-hosted by the Alzheimer’s Association, CurePSP, and the Rainwater Charitable Foundation. It brought…
WeiterlesenAktuelle Studie: Hirnpathologien, die mit FTD vereinbar sind, wurden bei etwa 351 TP3T-Fällen der Motoneuron-Krankheit gefunden
According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes diseases like ALS. Abnormal protein clumps were detected in 90% of the samples studied, with participants classified as having both FTD and motor neuron disease…
WeiterlesenVielversprechende FTD-Gentherapie von AviadoBio im britischen Guardian vorgestellt
In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101, targets the specific genetic form FTD-GRN, caused by mutations that create a deficiency in progranulin, a protein essential for healthy brain cells. The treatment represents…
WeiterlesenFTD Science Digest: Helfen Sie mit, die Wissenschaft voranzubringen, indem Sie sich am aktualisierten FTD-Störungsregister beteiligen
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
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