FTD wordt vaak verkeerd gediagnosticeerd als de ziekte van Alzheimer, depressie, de ziekte van Parkinson of een psychiatrische aandoening. Gemiddeld duurt het momenteel 3,6 jaar om een juiste diagnose te krijgen.

Partners in FTD Zorg

AFTD's Partners in FTD Care is ontwikkeld door een commissie van opleiders van klinische verpleegkundigen, maatschappelijk werkers en familie- en professionele zorgverleners, met bijdragen van externe specialisten om meer kennis en begrip van FTD te bevorderen en beste zorgpraktijken te delen.

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Symptoominzichten: financiële zekerheid en anosognosie

Financial supervision early in FTD care is extremely important, particularly when anosognosia is a factor. Mary is a registered nurse and a single mother to two high school sons. After her 50th birthday, she began showing personality changes – formerly helpful and attentive on the job, she became critical and difficult to work with; once…

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Zorgbenaderingen: De unieke ondersteuningsbehoeften van mantelzorgers

An FTD diagnosis presents an overwhelming and ever-changing list of new priorities, limitations, and responsibilities for family caregivers. Research shows that caring for someone with FTD is more expensive and is associated with more health risks than other forms of dementia. (See “The Social and Economic Burden of Frontotemporal Degeneration,” James E. Galvin, et al., Neurology,…

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Zorgbenaderingen: Positieve benaderingen en anosognosie in residentiële zorginstellingen

Without adequate staff preparation, transitioning a person with FTD and anosognosia symptoms into a residential care community can be challenging. Persons with FTD are often young, physically healthy and active, and exhibit a range of cognitive abilities and limitations. Staff familiar with the symptoms of Alzheimer’s disease will meet little success and increased frustration if…

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Casestudie: Alles is gewoon in orde – Anosognosie bij frontotemporale degeneratie (FTD)

Caring for people with FTD presents challenges no matter what. Anosognosia can make it even more difficult. Anosognosia is the inability to recognize or perceive one’s illness and its associated limitations. Also referred to as “lack of insight,” anosognosia is a hallmark symptom of FTD, especially in behavioral variant FTD. People who present with anosognosia…

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Symptoominzichten: Psychiatrische opnames bij anosognosie

“There is nothing wrong with me.” This is a common response by persons with FTD and anosognosia symptoms after being presented with the possibility of an evaluation or care intervention. They can further become angry and disinhibited, which, combined with impaired judgment, presents a potential safety risk to family members, health professionals, and themselves. Admission…

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Inzicht in symptomen: Gedragsanosognosie bemoeilijkt diagnose, zorg en familierelaties

People with FTD will vary in their capacity for self-awareness or insight. Some people may experience cognitive unawareness, reflected in difficulties with memory, language, spatial and temporal orientation, calculation, abstract reasoning, and applying abstract ideas in practice. People with behavioral unawareness, meanwhile, become impulsive, have little understanding of safety, and tend to be more narcissistic….

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