What's New
Helping from a Distance: Supporting Caregivers and People with FTD Who Are Self-Isolating
In situations where persons diagnosed with FTD and their primary care partners live together, the self-isolation necessitated by the COVID-19 pandemic has likely brought additional stress to an already challenging…
Communications Strategist Kristin Holloway Joins AFTD’s Board of Directors
Today, The Association for Frontotemporal Degeneration (AFTD) announced that Kristin Holloway has joined its Board of Directors. This appointment was made effective April 18. After experiencing a sequence of unexplained…
Communications Strategist Kristin Holloway Joins AFTD Board
AFTD announced today that Kristin Holloway has joined its Board of Directors, effective April 18. A communications professional with more than 10 years of experience as a strategist for high-growth…
Webinar: Ask the Expert – FTD and COVID-19
Following the COVID-19 related cancellation of AFTD’s 2020 Education Conference, we are presenting a month-long 2020 Education Conference Webinar Series. In this webinar, AFTD’s CEO Susan L-J Dickinson speaks…
Messages of Hope
Remember 💡 💛 #MessagesOfHope #FTD #DementiaUnder60 #ThinkFTD #endFTD #youngonset #earlyonset #dementia #youngonsetdementia #earlyonsetdementia #raredisease #NotRareEnough #AFTD #FindHelpShareHope #findhelp #sharehope #help #hope #quote #quoteoftheday #inspiration #inspirational #encourage #encouragement #encouraging #wise #wisdom…
NBC Drama “Zoey’s Extraordinary Playlist” Tackles Feelings of Loss, Grief in FTD
As depicted in the NBC show Zoey’s Extraordinary Playlist, feelings of loss and grief in FTD can manifest in waves, creating an intensely personal experience for those touched by this…
Lowering the Risk of COVID-19 While Living with FTD
We are living in an unprecedented time. We are all at some risk from COVID-19, but medical conditions – particularly those that arise for those of us who are aging…
Researchers Identify Mechanism by Which Tau Spreads, Advancing Hope for Future Treatments
As research into the connection between the protein tau and neurodegenerative diseases such as FTD continues to increase, a recent study into the mechanisms by which the protein spreads could…
“Zoey’s Extraordinary Playlist” Creator Shares Bringing Family’s Story to TV
In a personal interview that touches on the importance of connection, the creator of Zoey’s Extraordinary Playlist talks about bringing his family’s journey with progressive supranuclear palsy (PSP) to the…
AFTD’s 2020 Education Conference: Webinar Series
The COVID-19 pandemic has prevented AFTD from holding our annual Education Conference in person this year. But in the weeks since its cancellation, AFTD staff have worked with conference presenters…
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