What's New
Author Archive
Giving a Hand to Our Helping Hands!
AFTD Volunteer Nanci Anderson As care partner for Gary, her husband of 38 years, AFTD Volunteer Nanci Anderson of Minnesota feels she has a renewed purpose – to support her husband, family and others on the FTD journey. She says…
Messages of Hope
#MessagesOfHope #FTD #DementiaUnder60 #ThinkFTD #endFTD #dementia #raredisease #AFTD #FindHelpShareHope #help #hope #time #quote #quoteoftheday #inspire #inspiration #inspirational #wise #wisdom #wordsofwisdom #JRRTolkien #Tolkien #TolkienQuote #TolkienQuotes
FTD and AFTD Now Included in Federal Research Portfolio
AFTD has been added to the International Alzheimer’s and Related Dementias Research Portfolio (IADRP), an online database of worldwide research projects supported by public and private funding. This represents the first time an organization focused on the study of a…
Alector Receives Orphan Drug Designation for FTD Therapy
In August, the U.S. Food and Drug Administration (FDA) granted orphan drug designation to Alector for the continued development of AL001, a human recombinant monoclonal antibody designed for the treatment of FTD caused by mutations in the progranulin gene. In…
Supporting Families from the Beginning
“For so long we wondered what was going on with Mom,” says Amber Dickson. Her mother’s behavior was changing in strange, uncharacteristic ways, yet a doctor told her that everything was normal. Then Amber’s sister saw a public service announcement…
Webinar: What You Should Know about Primary Progressive Aphasia (PPA)
Dr. Emily Rogalski from Northwestern University in Chicago explores aspects of primary progressive aphasia that all persons living with FTD, their families and their healthcare providers should know. Her presentation addresses PPA clinical syndromes and the latest in diagnosis and…
Help & Hope #45
Issue #45: December 2018 In this issue Marian Grems discusses the integral role that AFTD has played in her personal FTD journey. In addition, we provide an update on the 2019 Education Conference, break down the basics of Social Security…
Penn FTD Center Scientist Receives AFTD’s First Pilot Grant for Nonpharmacological Research
AFTD has awarded Lauren Massimo, Ph.D., CRNP, the inaugural AFTD Pilot Grant for Nonpharmacological Therapies and Tools. Dr. Massimo, an assistant professor in the University of Pennsylvania School of Nursing and a member of the Penn Frontotemporal Degeneration Center, will…
Messages of Hope
#MessagesOfHope #FTD #DementiaUnder60 #ThinkFTD #endFTD #dementia #raredisease #AFTD #FindHelpShareHope #help #hope #start #juststart #startwhereyouare #usewhatyouhave #dowhatyoucan #resourceful #resilient #resilience #quote #quoteoftheday #inspire #inspiration #inspirational #wise #wisdom #wordsofwisdom #arthurashe #arthurashequote
Spotlight on…David Pfeifer, AFTD Board of Directors
After experiencing FTD firsthand as a care partner for his wife Cathy, David Pfeifer felt compelled to help others facing a similar situation. The Colorado-based architect and father of three joined AFTD’s Board of Directors in April 2018, intent on…