Words of Encouragement #87: Under a Pink Full Moon

Words of Encouragement by Lauren Massarella: Under a Pink Full Moon

Under a Pink Full Moon by Lauren Massarella, The Sister Project This past April 19 marked three years since the day that my mom, June, passed away from FTD at the age of 67 under a pink full moon. Something about this year’s anniversary was vastly different from years past. Just as my friends and family…

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Athlete of the Month #87: James Pearl

June Athlete of the Month James Pearl

Athlete of the Month AFTD’s June Athlete of the Month is James Pearl from North Carolina. An avid cyclist, James uses the Charity Miles app to track his daily bike rides, as well as when he trains for local races. James and his family have been lifelong friends of the Pang family – including AFTD Board…

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Advancing Hope #87: Participate in FTD Research

June Advancing Hope: Participate in FTD Research

Participate in FTD Research   PLEASE NOTE: A key aspect of AFTD’s mission is to stimulate participation in research. We do not take funding to publicize research opportunities, and we do not “endorse” or “approve” any study. Rather, we provide you with this information and encourage you to find out more as you consider whether these…

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Volunteer of the Month #87: Jerry Horn

June 2022 Volunteer of the Month Jerry Horn

Volunteer of the Month When Jerry’s wife Debbie was diagnosed with primary progressive aphasia (PPA) in 2014, he sought to learn as much about the disease as possible. In 2016, while attending a dementia conference, he was asked by another attendee if he had heard of any local FTD support groups. Since the nearest one…

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Help & Support #87: Understanding & Managing Agitation in FTD

Understanding & Managing Agitation in FTD One of FTD’s hallmark symptoms is difficulty communicating. FTD causes atrophy in the frontal lobe of the brain, which includes the area responsible for speech production and articulation. People with FTD can become agitated when trying – and struggling – to communicate the way they used to. When people…

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Help & Hope #87

Issue #87: June 2022 In this issue you can gain understanding about managing agitation in FTD, learn how to get involved in our 10th annual Food for Thought campaign, meet our AFTD-Team Athlete of the Month, find out how to participate in FTD research, read words of encouragement from a daughter who lost her mom…

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