Posts by Julie Sullivan
Tips & Advice: Incontinence – A Troubling Symptom
Incontinence is a common symptom of FTD and other dementias. But for both care partners and persons diagnosed, incontinence can be one of the more difficult symptoms to manage or even…
Read MoreOhio Care Partner Shares Story to Help Others on the FTD Journey
Mary Kay Verhoff, a former FTD care partner from Ohio, recently published a book that tells the story of coming to terms with and navigating her husband’s decline from FTD.…
Read MoreJanuary 25, 2025: Virtual Meet & Greet for MT, WY, ND, and SD
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota. The event…
Read MoreHelp & Hope in Review: The Top Articles of 2024
AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease your family’s FTD journey. Each year, we look back through our archives to see which features…
Read MoreDear HelpLine: The Differences Between Clinical Research and Clinical Medical Care
Dear HelpLine, I have FTD and have enrolled in a research study at a major medical center. My care partner and I travel to the site twice a year and…
Read MoreAFTD Ambassador Advocates on Behalf of the Older Americans Act
AFTD Ambassador Judy Bearer advocated for the reauthorization of the Older Americans Act (OAA) in a December 8 opinion article published on the website Cleveland.com. Ms. Bearer, who has been…
Read MoreNew York Software Company Awards AFTD Gift to Honor Employee’s Late Cousin
AFTD has been selected as one of three organizations to receive a gift from Mindex, a software-development company in Rochester, N.Y., in honor of the latter’s 30th anniversary charity initiative.…
Read MoreAviadoBio CEO Emphasizes Collaborative Approach for Treating FTD
In October, U.K.-based gene therapy company AviadoBio, Ltd., and pharmaceutical company Astellas announced an exclusive option and license agreement for an investigational therapeutic, AVB-101, which is currently in a Phase…
Read MorePersons with FTD Advisory Council Special Article: Holiday Madness
This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can…
Read MoreAll in the Family to end FTD: Colonial Electric’s Food for Thought Event Clears More than $1 Million Since Inception
AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD…
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