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  • WHAT IS FTD?
    • Disease Overview
      • Behavioral Variant FTD
      • Primary Progressive Aphasia (PPA)
      • FTD-ALS
      • Progressive Supranuclear Palsy
      • Corticobasal Syndrome
    • FTD & Genetics
    • Find a Medical Center
    • FAQs
    • Glossary of FTD Terms
  • FIND SUPPORT
    • AFTD HelpLine
    • Find Support Near You
    • Newly Diagnosed
    • Managing FTD
      • Coordinating Care
      • Support for People with FTD
      • Support for Kids and Teens
    • Planning for Legal, Financial, and Health Insurance Issues
    • Resources
  • RESEARCH
    • Ways to Participate
    • Studies Seeking Participants
    • FTD Disorders Registry
    • For Researchers
  • GET INVOLVED
    • Ways to Give
    • Host an Event
    • Volunteer With Us
    • Be an Advocate
    • Calendar of Events
  • HEALTH PROFESSIONALS
    • Diagnosing FTD
    • Treating FTD
    • Partners in FTD Care
    • Healthcare Webinars
  • ABOUT US
    • Mission, Vision & Values
    • AFTD is Hiring
    • Our History
    • Staff
    • Board of Directors
    • Medical Advisory Council
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    • AFTD Ambassadors
    • Strategic Plan
    • Financial and Impact Reports
  • NEWSROOM
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Posts by Julie Sullivan

Tips & Advice: Incontinence – A Troubling Symptom

By Julie Sullivan | January 10, 2025 | 0
Tips & Advice: FTD and Incontinence - A Troubling Symptom

Incontinence is a common symptom of FTD and other dementias. But for both care partners and persons diagnosed, incontinence can be one of the more difficult symptoms to manage or even…

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Ohio Care Partner Shares Story to Help Others on the FTD Journey

By Julie Sullivan | January 9, 2025 | 0
Ohio Care Partner Shares Story to Help Others on the FTD Journey

Mary Kay Verhoff, a former FTD care partner from Ohio, recently published a book that tells the story of coming to terms with and navigating her husband’s decline from FTD.…

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January 25, 2025: Virtual Meet & Greet for MT, WY, ND, and SD

By Julie Sullivan | January 2, 2025 | 0
Virtual Meet & Greet for MT, WY, ND, and SD

Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota. The event…

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Help & Hope in Review: The Top Articles of 2024

By Julie Sullivan | December 28, 2024 | 0
Help & Hope: The Top Articles of 2024 FTD

AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease your family’s FTD journey. Each year, we look back through our archives to see which features…

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Dear HelpLine: The Differences Between Clinical Research and Clinical Medical Care

By Julie Sullivan | December 27, 2024 | 0
Dear HelpLine: Difference Between Clinical Care and Clinical Research for FTD

Dear HelpLine, I have FTD and have enrolled in a research study at a major medical center. My care partner and I travel to the site twice a year and…

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AFTD Ambassador Advocates on Behalf of the Older Americans Act

By Julie Sullivan | December 16, 2024 | 0
AFTD Ambassador Advocates on Behalf of the Older Americans Act Judy Bearer smiles into the camera. She has dark blonde hair and is wearing a deep red turtleneck and multi-colored glasses.

AFTD Ambassador Judy Bearer advocated for the reauthorization of the Older Americans Act (OAA) in a December 8 opinion article published on the website Cleveland.com. Ms. Bearer, who has been…

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New York Software Company Awards AFTD Gift to Honor Employee’s Late Cousin

By Julie Sullivan | December 11, 2024 | 0
New York Software Company Awards AFTD Gift to Honor Employee’s Late Cousin Description: Kelsey Kolar and her cousin, Billy, stand side-by-side, sandwiched between two women. The women are dressed in coats, and Billy is wearing a football uniform with large shoulder pads, and he has black smudged under his eyes. The group smiles for the camera.

AFTD has been selected as one of three organizations to receive a gift from Mindex, a software-development company in Rochester, N.Y., in honor of the latter’s 30th anniversary charity initiative.…

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AviadoBio CEO Emphasizes Collaborative Approach for Treating FTD

By Julie Sullivan | December 9, 2024 | 0
AviadoBio CEO Emphasizes Collaborative Approach for Treating FTD CEO Lisa Deschamps smiling with long, brown hair parted in the middle, wearing a red dress

In October, U.K.-based gene therapy company AviadoBio, Ltd., and pharmaceutical company Astellas announced an exclusive option and license agreement for an investigational therapeutic, AVB-101, which is currently in a Phase…

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Persons with FTD Advisory Council Special Article: Holiday Madness

By Julie Sullivan | November 26, 2024 | 0
Persons with FTD Advisory Council Special Article: Holiday Madness Photo of Cindy Odell smiling and wearing a gray, charcoal, black, red, and burgundy sweater.

This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can…

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All in the Family to end FTD: Colonial Electric’s Food for Thought Event Clears More than $1 Million Since Inception

By Julie Sullivan | November 22, 2024 | 0
Patricia "Trish" Bellwoar, who had FTD, smiles as she sits in a wheelchair being pushed by her husband, Joseph Bellwoar.

AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD…

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