Posts by Julie Sullivan
Washington Post Details Impacts of COVID Isolation on Families Facing Dementia
As families facing FTD continue to also contend with the challenges of navigating the COVID-19 pandemic, the Washington Post sheds light on the devastating effects of care facility isolation during this difficult…
Read MoreAlabama Family Shares FTD Journey, Speaks to Importance of Connection
Although FTD has robbed Gene Guy of the ability to talk, he still communicates with his daughter, Amber, every day. While he may be unable to tell her he loves…
Read MoreResearchers Explore Mechanisms Behind TDP-43 Clumping, Test Investigational Drug
A team of researchers has shown for the first time how toxic proteins produced by the mutated C9orf72 gene stimulate protein clumps that can result in the neurological decline associated…
Read MoreMembers of AFTD Community Featured on Caregiver Solutions Show to Raise FTD Awareness
Members of the AFTD community, including staff and a volunteer, were featured on the Caregiver Solutions Info Show to shed light on FTD and current awareness events. Hosted by Marcia…
Read MoreAFTD Awareness Ads Featured in New York Times Introduce #FTDhotshotchallenge
A recent set of awareness ads featured in the New York Times highlights the stories of families touched by FTD and introduce the #FTDhotshotchallenge. On Sunday, September 27, the print…
Read MoreMaine Family to Host AFTD Food for Thought Campaign, Raise FTD Awareness
For the Beal family, AFTD’s Food for Thought campaign presents an opportunity to share their journey with FTD and raise awareness while (safely) enjoying food with friends and family. A…
Read More“Zoey’s Extraordinary Playlist” to Resume Production, Set to Air in 2021
Zoey’s Extraordinary Playlist is heading back into production this week, as revealed during E! Entertainment’s virtual “Red Carpet” coverage of the 72nd Emmy Awards. Branded as a “dramedy,” the new…
Read MoreUCSF Researchers Identify Brain’s Immune System as a Driving Force Behind FTD
For years, researchers have been trying to solve the puzzle of just how FTD starts to break down and damage brain cells. Now, thanks to new research out of UC…
Read MoreVery Rev. Tracey Lind to Open Photo Exhibit, Donate Portion of Sales to Support AFTD
The work of Very Rev. Tracey Lind will be on display at Foothill Galleries, located in Cleveland Heights, OH, in a solo photography exhibit opening September 15, titled “Eroded Beauty:…
Read MoreWisconsin Woman Takes to TikTok to Share Mom’s FTD Journey
For Nicole Petrie, who has been sharing her mom’s journey with FTD on the popular social media app TikTok, music has been instrumental in helping with moments of anxiety. In…
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