Posts by Julie Sullivan
UK Resident Shares Challenges, Fears of FTD Journey
For 28-year-old Jess Crawford, her mother’s recent FTD diagnosis has led to challenges and fears, leaving her to question if she too could develop the disease one day. In an…
Read MoreNew Research Suggests Autoimmune Diseases in FTD/ALS Linked to C9orf72 Mutation
The findings of a new study focused on the C9orf72 mutation could help to explain why some people who develop FTD and/or ALS are seemingly more susceptible to autoimmune disorders.…
Read MoreNext Avenue Emphasizes Financial Impact of Dementia Care Amidst COVID-19
In a recent article, Next Avenue highlights the impact the COVID-19 pandemic has had on those caring for a loved one with dementia, emphasizing the increased need for care as…
Read MoreYoung Caregiver Speaks to Finishing College While Caring for Loved One with Dementia
For recent college graduate Lumiere Rostick, the decision to move in with their grandparents to help care for their grandfather, who has slow-advancing dementia, was a given. The 22-year-old recently…
Read MoreStudies Co-Authored by AFTD MAC Member Reveal 3D Tau Structure Unique to FTD
In a comparison of protein filaments extracted from brain tissue donated by persons with FTD and other neurological disorders, scientists have revealed unique 3D structures of tau that vary by…
Read MoreFTD Research and Clinical Trials during the COVID-19 Pandemic
The past few years have been what we hope is the start of a groundbreaking time for discovery in clinical trials aiming to treat and prevent frontotemporal dementia (FTD). Large…
Read MoreJournalist Explores Impact of Death and Loss in FTD During COVID-19
In a personal account of her own family’s journey with progressive supranuclear palsy (PSP), Post-Star reporter Kathleen Moore explores the challenges of navigating death and loss during COVID-19. The three-part…
Read MoreTake Action Today: Host a Virtual Meet & Greet
In response to COVID-19, AFTD has developed a new volunteer activity to keep people in the FTD community connected while remaining at home: Virtual Meet & Greets. During a time…
Read MoreA Message from AFTD’s CEO
I hope that this finds you and your family safe and connected during these last weeks of summer. We know that for many, the COVID-19 pandemic has brought new challenges.…
Read More“Zoey’s Extraordinary Playlist” Brings FTD Awareness to National TV
Zoey’s Extraordinary Playlist, which concluded its first season on NBC in May, is helping to shine a light on FTD, bringing awareness to a national stage and helping to create…
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