A Message from AFTD’s CEO

Susan Dickinson

I hope that this finds you and your family safe and connected during these last weeks of summer.

We know that for many, the COVID-19 pandemic has brought new challenges. Stress and uncertainty are weighing on us differently these months.

Know that you aren’t alone in your journey. AFTD offers expert information and resources, tailored to the challenges of this time. Our HelpLine (1-866-507-7222, info@theaftd.org) can provide guidance and connect you with resources. Virtual and in-person support groups led by AFTD volunteers can provide guidance and connection. And our private Facebook groups can connect you with peers who understand.

With scientists and leading organizations across our field, AFTD is working to fund, catalyze and sustain research to better understand this disease, and advance the first treatments. While COVID-19 has brought new challenges to many research institutions, we remain hopeful about progress and breakthroughs in the months and years to come.

In a time of isolation for some, I want to encourage you to reach out and become part of this work. AFTD will be offering webinars throughout the year, to provide the latest information. We will also be providing new ways to get involved as a volunteer.

I’d especially ask you to consider taking part in one or more of several online campaigns we’re planning for World FTD Awareness Week (September 27 through October 4, 2020). Host a virtual Food for Thought event, or a small gathering with your friends and family if safety permits. Join a 24-hour World FTD Marathon, featuring webinars and presentations from around the world.

During that same week, a group of volunteers will be unveiling a special new FTD challenge designed to raise funds within our community and beyond it, and to share stories from families affected. Stay tuned to learn more in the coming weeks!

If you have the means, please consider making a donation in support of one of these events and campaigns this September. I know that, for our volunteers around the country, it will be gratifying to know that they’ve reached out to others beyond their local communities. Any donation you make in support of AFTD’s mission – whether through one of these campaigns, or by clicking here – can share hope with others, bringing our programs to thousands of families in 2020 and beyond. 

AFTD was founded through the resilience of families who faced FTD. In their resolve, they found a community and a shared purpose: to advance a future free of FTD. I hope that you will draw strength by being part of this community, and from making your actions and your voice heard within our mission.


Susan L-J Dickinson, MSGC

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