Food for Thought

Although frontotemporal degeneration (FTD) is a devastating disease for all whose lives it touches, it remains far too little known and poorly understood. If you would like to help to change that, AFTD’s Food for Thought (FFT) campaign is for you.

Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the world host bake sales, restaurant benefit nights, happy hours and much more.

FFT event hosts tell their stories, making people personally aware of FTD, while serving some food and raising funds to support AFTD’s mission. Hosts can hold any type of event—even an online “virtual” one—as long as food and FTD education are involved.

Hungry to Make a Difference?

If you’re ready to take a bite out of FTD, we have the resources to make it happen. Simply follow the steps below and you’ll be well on your way to putting your state on the map and aid in nationwide resolved against FTD!

Host Toolkit: first, a guide, from start to finish, on how to be a FFT host.

Contact Form: next, complete this to be connected with a trained, volunteer FFT Liaison for one-on-one support throughout the campaign.

Event Details Form: then, submit this once you’ve finalized your plans to request educational and awareness materials for your event.

Classy: finally, create your online fundraising page to streamline donations at your event and further spread FTD awareness.

Post Event Form: after you have hosted your event, fill this out by October 22nd and your name will appear in our Fall 2018 Newsletter!

 

Join Food for Thought 2018 

Public FFT Events:

Host: Sharon DeFelices
Date: 9/23/2018
Location: New Hope, PA
Event: I will be offering quarts of soup for pre-sale from September 23 – October 7. Pick up of ordered soups will be Friday November 2 – Sunday November 4, 2018. Location has not been decided but will be in the New Hope, PA area. Soup ingredients and preparation will all be covered and all sale proceeds will be donated to AFTD.
Contact: sdefelices@gmail.com

Host: Chrissy Pikos
Date: 9/23/2018
Location: Home of Chrissy Pikos (132 Rutledge Road, Wethersfield, CT 06109)
Event: I have a Traveling Vineyard consultant coming to sell wine. She pairs them with food so guests can enjoy the wine and food. 20% of sales will be donated to AFTD.
Contact: greekdonut@cox.net

Host: Jennifer Morabito
Date: 9/23/2018
Location: Aunt’s house (Dayton, MD)
Event: We are having our fourth year of Cindy’s Cakes! We will be taking orders in advance for mini-sized Hot Milk Cakes, which we will bake and deliver on September 23rd. Regular cakes are $4 each, gluten-free are $5 each, and we will ship! As all supplies are being donated, the gross profits are all being given directly to AFTD’s Food For Thought Campaign.
Contact: jcmorabito@yahoo.com

Host: Cindy O’Dell
Date: 9/23/2018
Location: Online
Event: Cindy will be taking orders for FTD ball caps until 9/23. After that campaign ends, she will be taking orders for matching t-shirts.
Contact: cindyo13@aol.com

Host: Nicole DeLeve
Date: 9/26/2018
Location: Teocali (2512 Holmes St, Kansas City, MO 64108)
Event: Let your server know you are dining for Food for Thought or for FTD and Teocali will donate 20% of sales to AFTD.
Contact: ndeleve@gmail.com

Host: Colleen Franzreb
Date: 9/26-9/29
Location: Osterville, MA
Event: A portion of sales from Cape Cod Foodie Tours will be donated to AFTD.
Contact: cfranzreb@gmail.com

Host: Susie Brooks
Date: 9/27/2018
Location: The Arbors at Shelburne (687 Harbor Road, Shelburne, VT 05482)
Event: The Arbors will be providing a recipe a day for the entire week to visitors to our community as well as on our Facebook page. People will be able to purchase (donate) to have these special recipe cards for themselves.
Contact: sbrooks@benchmarkquality.com

Host: Karine Adalian
Date: 9/27/2018
Location: Grapes and Hops (454 E Main Street, Ventura, CA 93001)
Event: Kelly’s Lot and Friends will be performing acoustic originals and covers. The restaurant will be donating the food. Tickets will be $50 for the gourmet cheeses, salads, meats, and desserts. A glass of white, red or sparkling wine will be included. If people come for the performance, the restaurant owner very generously will donation 25% of the wine and beer people order.
Contact: k.adalian@att.net

Host: Terry Pontious
Date: 9/27/2018
Location: Roseland Bowling Alley (Broadway Road, Oakwood Village, OH)
Event: We will be doing this for 3 Wednesdays; this is done while my husband (who has FTD) bowls.
Contact: angels9762@aol.com

Host: Steph McLain
Date: 9/27/2018
Location: The Yogurt Experience (200 University Blvd., Suite 230, Round Rock)
Event: Present this flyer and 20% of sale during the fundraiser date and time will be donated to AFTD.
Contact: fibrorat@live.com

Host: Cheri Connely
Date: 9/28/2018
Location: Panera 600601: Kirkwood – Greentree Center (10221 Manchester Rd, 63122)
Event: This is a restaurant give back event. Panera will donate 20% of total food sales.
Contact: cherisheshe@yahoo.com

Host: Susan Butterfield
Date: 9/28/2018
Location: Premier Meat Pies (1001 Alaskan Way, Pier 54 Seattle, WA 98104)
Event: The restaurant will be hosting this event as their Grand Opening. They will have a soft opening in the weeks prior to our event. They will provide appetizers and drinks. The Seattle area AFTD community will be invited as well as other members of the community for this event. A donation page will be create and the restaurant will be accepting donations directly during this event.
Contact: suselenae@gmail.com

Host: Elizabeth Soriero
Date: 09/28/2018
Location: Elizabeth’s house (Westfield, NJ)
Event: I am serving food and my stepmother’s (who has FTD) brownies and BeautyCounter company is coming to sell beauty and skin care products. They are a company who use the most natural and healthy ingredients, and they campaign for more transparency in personal care item ingredients to promote wellness in the industry. The BeautyCounter rep is donating all of her commission to AFTD, as well as creating a raffle item to create more donations. We are also putting together care baskets of beauty and skin care products to deliver to FTD patients in local memory care facilities.
Contact: elizabethsoriero@hotmail.com

Host: Tam Smith
Date: 09/28-29/2018
Location: Kenilworth Apartment Clubhouse (4120 W. 94th Terr., Prairie Village, KS 66207)
Event: Part of community wide Garage Sale, FTD awareness, free snacks and recipe
Contact: rsofan@aol.com

Host: Ryan Windhorst
Date: 9/29/2018
Location: Southern Central Illinois at numerous Dairy Queen Restaurants
Event: A percentage of food sales from numerous Dairy Queen Restaurants.
Contact: nitrdri@hotmail.com

Host: Terry Pontious
Date: 9/29/2018
Location: Parma, OH
Event: This event will be a pasta dinner. There will be basket raffles as well.
Contact: angels9762@aol.com

Host: Shana Nissen
Date: 9/29/2018
Location: The Loft Coffee Shop (6260 US Hwy 281 N, Spring Branch, TX 78070)
Event: We will be offering tasty desserts and coffee for a donation. Hosted at a lovely, cozy coffee house in Spring Branch. This will be a time for learning more about FTD, its effects on the diagnosed and those that love them. Planning on having a guest speaker from the UT Health Sciences Neuropsychology, Dementia Care Department.
Contact: shana_nissen@yahoo.com

Host: Terry Walter
Date: 09/29/2018
Location: JAYJAY Gallery (5520 Elvas, Sacramento, CA)
Event: Food, wine and art event.
Contact: terwalter@gmail.com

Host: Mary Anne Upham
Date: 09/29/2018
Location: Riviera Restaurant and Brunches Restaurant (North Dale Mabry, Tampa, FL)
Event: Outside table with information and jar for donations.
Contact: maupham1@verizon.net

Host: Valerie Matney
Date: 9/29/2018
Location: Compund CrossFit (905 Live Oak Drive, Chesapeake, VA 23320)
Event: After the Saturday workout, I will be offering frittatas and baked protein oatmeal that I make for sale to those attending the workout, and anyone else who may be interested 100% of sales will be donated to The AFTD Food for Thought campaign.
Contact: vjmatney@gmail.com

Host: Sarah DeLuca
Date: 9/30/2018
Location: Rusted Route Farms (5739 State Highway W, Jackson, MO)
Event: Event in my Dad’s memory that includes bands, activities, and food trucks. We have sponsors to help with event, but minimum donation of $10 for adults and $5 for kids at the door.
Contact: sedeluca01@yahoo.com

Host: Jennifer Morabito
Date: 10/01/2018
Location: Online
Event: This is an online Pampered Chef fundraising show. It will be open to anyone who is interested in ordering from October 1st – 7th. Orders will all be shipped directly to folks, and includes all 48 continuous United States. A percentage of the total sales will be donated directly to AFTD.
Contact: jcmorabito@yahoo.com

Host: Donna Wert
Date: 10/2/2018
Location: Joy’s House Adult Daycare (2028 E. Broad Ripple Avenue, Indianapolis)
Event: This event is for the Indiana FTD Caregiver Support Group. Pitch-In meal and informational meeting for friends and other loved ones to join and learn.
Contact: dwert@iupui.edu

Host: Jerry Horn
Date: 10/2/2018
Location: Atlanta Bread Company (3680 Dauphin St, Mobile, AL)
Event: Invitees are asked to RSVP at our special GroupRasie page at www.groupraise.com/events/68878. We must have 20 people RSVP or the event will be cancelled. The restaurant agrees to donate 15% of all receipts during our event time/date based on diners who identify themselves as having RSVP’d to our event. Invitees who are unable to attend will be given the opportunity to donate to AFTD.
Contact: jerryhorn@bellsouth.net

Host: Chuck Anastasia
Date: 10/02/2018
Location: Not Your Average Joe’s (Seekonk, MA)
Event: This restaurant location will donate, directly to AFTD, 15% of food receipts from patrons who present our event certificate to their server, or indicate to their server that they are there to support AFTD through the Not Your Average Cause program.
Contact: chuck.anastasia@gmail.com

Host: Nicole DeLeve
Date: 10/3/2018
Location: Barley’s Kitchen and Tap (11924 W 119th St, Overland Park, KS 66215)
Event: Let your server know you are dining for Food For Thought or FTD and Barley’s will donate 25% of sales to AFTD.
Contact: ndeleve@gmail.com

Host: Lynda Ares
Date: 10/03/2018
Location: Outback Steakhouse (Hwy 72, Huntsville, AL)
Event: There will be a table set up to give donations. The restaurant will be giving gift cards for drawings.
Contact: Lyndares1962@att.net

Host: Lisa Radin
Date: 10/03/2018
Location: Lou Ruvo Center for Brain Health (888 West Bonneville Ave, Las Vegas, NV 89106)
Event: The Lou Ruvo Center for Brain Health is featuring FTD as part of their weekly Lunch & Learn Education Series. Lisa will share her personal story as an FTD caregiver.
Contact: lradin@iglide.net

Host: Eliana Fischel
Date: 10/04/2018
Location: Home of Eliana Fischel and Eric Abbott.
Event: We will host a dinner party. There will be a minimum donation of $20 to attend. Eliana will tell her family’s FTD story and provide information about how people can get more involved. All proceeds of the event will go to AFTD.
Contact: efischel@gmail.com

Host: Samantha Meadows
Date: 10/4/2018
Location: Weill Cornell Medicine, Room TBD
Event: Caretakers and researchers will come together over dinner to bridge the gap between the research community and the patients effected by FTD. This event will give caretakers an opportunity to learn about some current research in the field and more importantly, it will help scientists learn about FTD from the patient/caretaker perspective.
Contact: smm2011@med.cornell.edu

Host: Lucy Carter
Date: 10/4/2018
Location: Online
Event: Porter Road Butcher will provide a percentage (to be determined) of their online sales to AFTD. The website and social media will promote the event with a link to the AFTD website.
Contact: lcarter@kraftcpas.com

Host: Barbara Loewy
Date: 10/04/2018
Location: Green Goddess Natural Foods (2051 Saranac Ave, Lake Placid, NY 12946)
Event: This will be an open house with refreshments and an information table about AFTD. I will speak briefly about my experiences and give some non-technical information about FTD.
Contact: bmloewy@gmail.com

Host: Jamie Gordon
Date: 10/5/2018
Location: Reams Food Store (2640 W 9000 S, West Jordan, UT 84088)
Event: My family put together a Bake Sale again! So we will be selling donated baked goods.
Contact: jamiegordon416@gmail.com

Host: Kayla Boehmer
Date: 10/06/2018
Location: St Henry Catholic Church (221 W Olive St., Marshalltown, IA 50158)
Event: This event is a bake sale that will be held after each weekend mass (after 5pm on October 6 and after 8am and 10:30am on October 7).
Contact: kayla_boehmer@hotmail.com

Host: Natalie Ahotaeiloa
Date: 10/6/2018
Location: 9747 S 1600 W. South Jordan, UT 84095
Event: We are doing a Hawaiian plate sale fundraiser. We will be selling plates of Hawaiian food that consists of kalua pork, katsu chicken, teriyaki chicken, rice, and mac salad. All donations and money will go directly to AFTD to help with research, support, education, awareness, and advocacy.
Contact: nataliedey@yahoo.com

Host: Vickie Eubank
Date: 10/6/2018
Location: Home of Vickie Eubank (122 Worthing Lane, Fairburn, GA, 30213)
Event: This event will be a chili supper with fall desserts.
Contact: Lizzy3811@gmail.com

Host: Kathy and Sara LaFone
Date: 10/6/2018
Location: Nash Street Tavern (250 S Nash St, Hillsborough, NC 27278)
Event: This event will be held in memory of Tim LaFone. The event will include raising FTD awareness with educational materials from AFTD, personal sharing about Tim and his FTD journey, live music from Radio Blue, and comfort foods. Donations to AFTD will be accepted.
Contact: mirage.onyx@gmail.com

Host: Nanci Anderson
Date: 10/09/2018
Location: Olives Fresh Pizza (287 Water Street, Excelsior, MN 55331)
Event: A separate section of the restaurant for the event will be reserved. It is open to the public. We will provide a pizza buffet however, beverages must be purchased. There will be tables set up with materials about FTD/AFTD. There will be donation baskets to give contributions on the tables. This event is being held on the same night as a FTD Support group. Many of the support group members will be joining us.
Contact: nanci_anderson@mchsi.com

Host: Diane Cole
Date: 10/09/2018
Location: Coach’s Bar & Grill (2528 W Glenlord Road, Stevensville, MI 49127)
Event: This event is a restaurant/bar giveback. Coach’s Bar and Grill will donate 10% of all food and beverage sales to AFTD from 11:00AM – 11:00PM.
Contact: dianecole@comcast.net

Host: Jennifer Zucati
Date: 10/11/2018
Location: 777 N Crusey Street, Suite 101
Event: We are going to have an open community event where we will have food, games, coloring for children, and just fun socializing.
Contact: jennifer@linksprc.org