Food for Thought

Although frontotemporal degeneration (FTD) is a devastating disease for all whose lives it touches, it remains far too little known and poorly understood. If you would like to help to change that, AFTD’s Food for Thought campaign is for you.

Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, Food for Thought encompasses World FTD Awareness Week. During this time, people across the world “Take Time with Friends and Family. Take Action.”

COVID-19 Update:

This year, although the campaign will take place in circumstances dramatically altered by COVID-19, the people we serve need our work more than ever – and the central focus of our campaign is unchanged. With health and safety as top priorities, we encourage you as a first choice to host a virtual Food for Thought event or choose another creative alternative. In some communities, in accordance with local and state guidelines, it may be possible to host a small gathering, if your own comfort and sense of safety permit. By focusing on food, fun and connection, your event can help to bring others together – and inspire them to make a difference – during an isolating year.

Hungry to Make a Difference?

If you’re ready to take a bite out of FTD, we have the resources to make it happen. Simply follow the steps below and you’ll be well on your way to putting your state on the map and aid in nationwide resolve against FTD!

Host Toolkit: first, a guide from start to finish, on how to be a successful Food for Thought host.

Contact Form: next, complete this to be connected with a trained, volunteer Food for Thought liaison for one-on-one support throughout the campaign.

Event Details Form: then, submit this once you’ve finalized your plans to request educational and awareness materials for your event.

Classy: finally, create your online fundraising page to streamline donations at your event and further spread FTD awareness.

Post Event Form: after you’ve hosted your event, fill this out by October 19th and your name will appear in our Fall 2020 Newsletter!



Public FFT Events:

Host: Terry Pontious
Email: [email protected]
Date: 9/24/2020
Location: Facebook
Event: Selling cookies

Host: Nicole DeLeve
Email: [email protected]
Date: 9/27/2020
Location: Online via Facebook and Email
Event: Will be selling a PDF collection of her famous “FTD Cupcakes for Dad” recipes. All proceeds go to AFTD. Recipe collections will be sent via email. For more information please visit or email [email protected]

Host: Theresa Walter
Email: [email protected]
Date: 9/27/2020
Location: Virtual via Eventbrite, Sacramento California. Will leave the ad up for a week with all donations coming directly to AFTD.
Event: Hosting a virtual event via Eventbrite. Will be asking for donations to AFTD in place of our usual Wine and Art Event. Will be using the same platform as in previous years where people could purchase their tickets.

Host: Katherine Haynes
Email: [email protected]
Date: 9/27/2020
Location: Local Park in Boothbay Harbor, ME.
Event: Coffee/tea and baked goods. Grab a drink at the Red Cup and gather with masks and socially distant at local park.

Host: Domenica Toscani and Laura Bolstad
Email: [email protected]
Date: 9/27/2020
Location: Philadelphia Pickle Company and Fishtown Pickle Project
Event: 1) LIMITED BATCH PICKLE #1: In partnership with Darling Nikki’s BBQ, we’re releasing a limited amount of “The Smokey Dom;” this pickle was cold-smoked and then brined in Fishtown Pickle Project’s Zesty Sweet Garlic pickle brine. Fishtown Pickle Project is donating a portion of ALL pickle sales from now through October 11th to AFTD.
2) Collab with Kismet Bagels: @kismetbagels will be selling pickle-spiced bagels and pickle flavored schmear using Fishtown Pickle Project ingredients.
3) #openinPHL podcast! Fishtown Pickle Project cofounders Mike and Niki did a podcast with #openinPHL podcast, with Danielle Kocher, a Philly Food Entrepreneur & owner/producer of Plants on Fire, a delicious, plant-based superfood ball!
4) Pickle Cupcake: A gourmet pickle cupcake will be coming out at our friend’s bakery: Sweet T’s Bakeshop in Haddonfield, NJ. Toni (the owner) was a regular on the TV show Cake Boss.
5) Collaborations with Food Trucks: Farmstead Foods will be selling tempura-battered pickles and Byz Empire will be making and selling Cuban sandwiches, both using Fishtown Pickle Project pickles!
6) We kicked off our “Pickles for Pick’s Disease” events last night with an Instagram Live performance by local musician @Eric13000. Eric interviewed Niki about the fundraiser and her father Dominic who is living with FTD. Eric played some of Dom’s favorite songs and invited listeners to donate through our page.

Host: Colleen Franzreb
Email: [email protected]
Date: 9/27/2020
Event: The Costello family will be sharing a different recipe each day for 15 days with anecdotes and pictures of why/how it relates to their loved one, Ed who suffers with FTD. They will then be creating a hardcover cookbook from the compilation to share with family.

Host: Jerry Horn
Email: [email protected]
Date: 9/27/2020
Location: Facebook, email and direct contact
Event: Throughout the duration of the beginning of the Food for Thought campaign period (9/27-10/2), Jerry will be asking friends, family and acquaintances to donate to AFTD by purchasing a Digital Dozen Krispy Kreme glazed donuts. A box of one dozen will sell for $10 with $5 going to AFTD. He will begin promoting sales within the next two weeks using the theme “Sweet Food for Thought by the Dozen”.

Host: Darcie Moningka
Email: [email protected]
Date: 9/27/2020
Location: Instagram Live
Event: I will be holding an online fundraiser selling handmade clay earrings. They will be designed and made by myself and close friends, and we will have them up for sale through Instagram.

Host: Corey Esannason
Email: [email protected]
Date: 9/28/20 – 10/11/20
Event: Use the code AFTD at checkout to donate to AFTD’s mission. A portion of sales using the AFTD code will help support AFTD’s mission. Awareness materials will be included in each order. Shipping is available nationwide.

Host: Grace Ademola-Sokoya
Email: [email protected]
Date: 9/28/2020
Location: Zoom and Whatsapp
Event: 1) Radio discussion program
2) Placement of AFTD posters in strategic locations in the hospital
3)Posting of AFTD posters in WhatsApp group for SLP and others
4) Any. Other idea that comes up later

Host: Rene Simmons
Email: [email protected]
Date: 9/29/2020
Event: Virtual Bake Sale- participants will pre-order baked goods during the FFT fundraiser and pick up at a later date.

Host: Marian Grems
Email: [email protected]
Date: 10/3/2020
Location: Zoom
Event: Zoom Cooking Class
Donation: No set fee
Class will be recorded
Welcome and thank you email
Recipes, shopping list, etc. emailed one week prior to October 3rd
Reminder email two days prior
Follow-up email after class
Emails will include info on FTD and pictures/stories of Jeff

Host: Lucy Carter
Email: [email protected]
Date: 10/04/2020
Location: Zoom
Event: Online cooking class

Host: Zoy Kocian
Email: [email protected]
Date: 10/5/2020
Location: My event will be completely online via Facebook and maybe Instagram. I will use my personal FB page and whichever AFTD and/or FTD Facebook pages promoting FFT.
Event: Each day from October 5-11, I will post one of my mother’s recipes (my favorites of course), how FTD has affected my family and a little bit about the AFTD. I will use FB fundraising and/or Classy whichever AFTD prefers.

Host: Corey Compa
Email: [email protected]
Date: 10/07/2020
Location: Facebook Live cooking tutorial event.
Event: Artis Senior Living will be using their culinary team to lead a cooking tutorial live on Facebook! This will be promoted through the company Facebook page so that families of the residents and outside supporters can join in the fun. During the tutorial, they will be sharing some of the residents cherished recipes and honoring the residents who have been lost to FTD.

Hosts: Kathy & Sara LaFone
Email: [email protected]
Date: 10/10/2020
Location: Multiple
Event: TIMFEST 2020
TIMFEST Countdown
Daily Facebook posts and email blasts from 10/5 – 10/9. Servings of bite-sized information, starting with 5 facts about frontotemporal degeneration (FTD). Feel free to engage by sharing this information with others or by reaching out with any thoughts or questions!
TIMFEST Drive-Thru
2:00 PM – 5:00 PM
Gold Park Picnic Shelter (415 Dimmocks Mill Road, Hillsborough, NC 27278)
Kathy and Sara will be at the Gold Park Picnic Shelter from 2 to 5pm… Masked and handing out goodie bags filled with a few of Tim’s favorite things and accepting donations for The Association for Frontotemporal Degeneration (AFTD). Tim’s infamous leg (his last prosthesis) will be making an appearance as well. Thanks to all for helping to put FTD on its last leg!
TIMFEST, Music from Orange County Lockdown 
6:00 PM – 8:00 PM
Video streaming including music from Orange County Lockdown and some other surprises on YouTube and on the TIMFEST Facebook page so that everyone can participate comfortably (singalong, dance, hoot, holler, etc.) from the location of their choice.
TIMFEST Facebook page –

Host: Melanie Thompson
Email: [email protected]
Date: 10/11/20
Location: Facebook page
Event: Melanie plans to share a recipe and FTD fact daily the week before 10/11/20 on a FB site and then on Sunday afternoon (10/11) she will host participants to a zoom meeting where they can share a family story or recipe or a video-recording of themselves enjoying a food they made.

Host: Kathryn Caruso
Email: [email protected]
Date: 10/19/2020
Location: Throughout local Main Line/King of Prussia area:
Event: Kathryn started her own grocery delivery business and plans for the week of 10/19 through 10/25 to change her typical 20% delivery fee to be a 20% donation to AFTD with a request and option for individuals to donate more. Flyers with AFTD info will be included in every order and based on availability Kathryn may also offer restaurant delivery services for dinner time using the same 20% minimum donation format.