Jag hoppas att detta kommer att finna dig och din familj trygga och sammankopplade under dessa sista veckor av sommaren.

We know that for many, the COVID-19 pandemic has brought new challenges. Stress and uncertainty are weighing on us differently these months.

Vet att du inte är ensam på din resa. AFTD erbjuder expertinformation och resurser, skräddarsydda för den här tidens utmaningar. Vår hjälplinje (1-866-507-7222, info@theaftd.org) can provide guidance and connect you with resources. Virtual and in-person support groups led by AFTD volunteers can provide guidance and connection. And our private Facebook groups can connect you with peers who understand.

Med forskare och ledande organisationer inom vårt område arbetar AFTD för att finansiera, katalysera och upprätthålla forskning för att bättre förstå denna sjukdom och föra fram de första behandlingarna. Medan covid-19 har medfört nya utmaningar för många forskningsinstitutioner, är vi fortfarande hoppfulla om framsteg och genombrott under de kommande månaderna och åren.

I en tid av isolering för vissa vill jag uppmuntra dig att nå ut och bli en del av detta arbete. AFTD kommer att erbjuda webbseminarier under hela året för att ge den senaste informationen. Vi kommer också att erbjuda nya sätt att engagera sig som volontär.

I’d especially ask you to consider taking part in one or more of several online campaigns we’re planning for World FTD Awareness Week (September 27 through October 4, 2020). Host a virtual Food for Thought event, or a small gathering with your friends and family if safety permits. Join a 24-hour World FTD Marathon, featuring webinars and presentations from around the world.

During that same week, a group of volunteers will be unveiling a special new FTD challenge designed to raise funds within our community and beyond it, and to share stories from families affected. Stay tuned to learn more in the coming weeks!

If you have the means, please consider making a donation in support of one of these events and campaigns this September. I know that, for our volunteers around the country, it will be gratifying to know that they’ve reached out to others beyond their local communities. Any donation you make in support of AFTD’s mission – whether through one of these campaigns, or by klicka här – can share hope with others, bringing our programs to thousands of families in 2020 and beyond. 

AFTD was founded through the resilience of families who faced FTD. In their resolve, they found a community and a shared purpose: to advance a future free of FTD. I hope that you will draw strength by being part of this community, and from making your actions and your voice heard within our mission.

Vänliga hälsningar,

Susan LJ Dickinson, MSGC
AFTD VD