Inlägg av Julie Sullivan
Washington Post detaljerad inverkan av covid-isolering på familjer som står inför demens
As families facing FTD continue to also contend with the challenges of navigating the COVID-19 pandemic, the Washington Post sheds light on the devastating effects of care facility isolation during this difficult…
Läs merAlabama Family Shares FTD Journey, talar om vikten av anslutning
Although FTD has robbed Gene Guy of the ability to talk, he still communicates with his daughter, Amber, every day. While he may be unable to tell her he loves…
Läs merForskare utforskar mekanismerna bakom TDP-43-klumpning, testar utredningsläkemedel
A team of researchers has shown for the first time how toxic proteins produced by the mutated C9orf72 gene stimulate protein clumps that can result in the neurological decline associated…
Läs merMedlemmar av AFTD Community presenteras på Caregiver Solutions Show för att öka FTD-medvetenheten
Members of the AFTD community, including staff and a volunteer, were featured on the Caregiver Solutions Info Show to shed light on FTD and current awareness events. Hosted by Marcia…
Läs merAFTD Awareness Ads Featured in New York Times Introduce #FTDhotshotchallenge
A recent set of awareness ads featured in the New York Times highlights the stories of families touched by FTD and introduce the #FTDhotshotchallenge. On Sunday, September 27, the print…
Läs merMaine Family to Host AFTD Food for Thought Campaign, Raise FTD Awareness
For the Beal family, AFTD’s Food for Thought campaign presents an opportunity to share their journey with FTD and raise awareness while (safely) enjoying food with friends and family. A…
Läs mer"Zoey's Extraordinary Playlist" för att återuppta produktionen, släpps 2021
Zoey’s Extraordinary Playlist is heading back into production this week, as revealed during E! Entertainment’s virtual “Red Carpet” coverage of the 72nd Emmy Awards. Branded as a “dramedy,” the new…
Läs merUCSF-forskare identifierar hjärnans immunsystem som en drivkraft bakom FTD
For years, researchers have been trying to solve the puzzle of just how FTD starts to break down and damage brain cells. Now, thanks to new research out of UC…
Läs merVery Rev. Tracey Lind öppnar fotoutställningen, donerar en del av försäljningen till stöd för AFTD
The work of Very Rev. Tracey Lind will be on display at Foothill Galleries, located in Cleveland Heights, OH, in a solo photography exhibit opening September 15, titled “Eroded Beauty:…
Läs merWisconsin Woman Takes to TikTok to Share Mom’s FTD Journey
For Nicole Petrie, who has been sharing her mom’s journey with FTD on the popular social media app TikTok, music has been instrumental in helping with moments of anxiety. In…
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