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Managing FTD Care with Kids in the Home During the COVID-19 Pandemic: April 2020
The most common dementia under 60 can afflict people in their 40s, 30s, and even 20s. For too many, the challenges of living with FTD combine with the stresses of…
Young FTD Caregiver Speaks to COVID-19 Challenges in Washington Post
In a Washington Post article about the impact of COVID-19 on young caregivers, a woman whose mother has FTD speaks to how social isolation is not a new experience for…
FTD Depicted in New Film Starring Javier Bardem
The director of a new feature film that stars Javier Bardem as a man living with FTD shares how her personal connection to the disease inspired the story in an…
Messages of Hope
#MessagesOfHope #FTD #DementiaUnder60 #ThinkFTD #endFTD #youngonset #earlyonset #dementia #earlyonsetdementia #youngonsetdementia #raredisease #NotRareEnough #AFTD #FindHelpShareHope #findhelp #sharehope #help #hope #quote #quoteoftheday #inspiration #inspirational #encourage #encouragement #encouraging #wise #wisdom #wordsofwisdom #DollyParton
COVID-19 Creating “Perfect Storm” for Families Grappling with FTD
The situation surrounding the COVID-19 pandemic can place extraordinary strain on persons diagnosed with FTD and their caregivers, creating what AlzForum refers to as the “perfect storm” for families facing…
Teepa Snow Discusses Managing Dementia Care During COVID-19
In a recent conversation with Being Patient, dementia-care education specialist Teepa Snow shares advice for families and caregivers in the time of COVID-19. Over the course of the 30-minute interview,…
Biotech Company Receives FDA Fast Track Designation for FTD Gene Therapy Program
The biotechnology company Prevail Therapeutics, Inc. has announced that the U.S. Food and Drug Administration granted Fast Track designation to its experimental gene therapy program to slow the progression of…
Washington Post Highlights Challenges of FTD Care
In a personal and stark description of the difficulties of FTD caretaking, the Washington Post sheds light on the unique challenges of the disease and the impact on young couples…
COVID-19, Hygiene and FTD
Hand-washing and hygiene are more important than ever due to COVID-19. But many of the symptoms of FTD as it progresses can make attentiveness to hygiene a challenge. The following…
Maintaining an FTD Care Routine During the COVID-19 Pandemic
Individuals and families already dealing with the stress of FTD now face even greater uncertainty and isolation during the COVID-19 pandemic. While social distancing has been mandated to help contain…
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