The Association for Frontotemporal Degeneration

AFTD CEO Susan Dickinson was joined by Emma Heming Willis at AFTD's 2024 Education Conference to discuss how her family’s lives have changed since Bruce was diagnosed with FTD.

A Fireside Chat with Susan Dickinson and Emma Heming Willis

Watch the Fireside Chat

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

"Any time I have knowledge of what to do next, it’s because of AFTD.

– Channing Clifford (right), with her mom, Valerie, who is living with FTD

Your gift today will be matched dollar for dollar, up to $25,000, thanks to our generous partner, the Milburn Foundation.

Support groups
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an outlet, and a place
to connect with others
who understand.

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Resources for Diagnosis Support Groups

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News & Events

Volunteer Update: How Can a Meet & Greet Help?

Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family members. Information about the disease and how to manage its symptoms guidance can…

AFTD announces 2023 Pathways for Hope Pilot Grant recipients

AFTD’s Pilot Grant program – our longest running funding opportunity – provides seed funding for innovative FTD research, laying the groundwork for additional follow-on support from a larger funder. Pathways…

Tips & Advice: Dealing With the Loss of Empathy

One of the most distressing symptoms of FTD is a loss of empathy, which can cause persons diagnosed to become uncharacteristically indifferent towards other people, including loved ones. This loss…

U.K. Researchers to Conduct Nationwide Trial Evaluating Blood Test for Dementia

Researchers in the United Kingdom are preparing to conduct a nationwide trial evaluating blood tests for biomarkers of dementias like FTD and Alzheimer’s disease, according to a recent article by…

Dear HelpLine: Brain Donation

Dear HelpLine, How do we learn more and start the process of arranging a brain donation for FTD research? Brain donation can be a difficult topic to consider and discuss,…

Case Report Discusses Symptoms and Diagnosis of Progressive Supranuclear Palsy

A case report published earlier this year in the journal Radiology Case Reports discusses the symptoms and features of progressive supranuclear palsy (PSP) and explores different ways to diagnose it.…

FBLI April 2024 Social and Legal Challenges in Familial FTD

Perspectives in FTD Research Webinar: Navigating Social and Legal Challenges in Familial FTD

Prof. Jalayne Arias, a researcher focused on policy, ethics, and law, and genetic counselor Laynie Dratch join this Perspectives in FTD Research Webinar to discuss important considerations for families impacted by…

Advancing Hope: AFTD and Registry Staff attend Neurology Meeting

AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April 13-18 in Denver. Will Reiter, Ray Frattone, and Shana Dodge from AFTD joined…

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