South Central Region

Arkansas, Kansas, Louisiana, Missouri, Oklahoma, Texas

AFTD Regional Coordinator Volunteers

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or info@theaftd.org and an AFTD staff member will be happy to assist you.

South Central Regional Coordinator Volunteers

Zoy KocianZoy Kocian

Texas and Oklahoma
zkocian@theaftd.org

Rachel Castellanos

Louisiana, Arkansas, Missouri, Kansas
rcastellanos@theaftd.org

Research and Medical Centers with FTD Focus

  • Houston Methodist Hospital
    Frontotemporal Degeneration Unit
    Nantz National Alzheimer Center
    Houston Methodist Hospital
    6560 Fannin St.
    Scurlock Tower, 8th Floor
    Houston, TX 77030
    www.houstonmethodist.org
    Contact: Victoria Arbones, RN, Clinical and Research Coordinator – 713-441-7650
  • Washington University, St. Louis
    Memory and Aging Project
    Alzheimer’s Disease Research Center
    4488 Forest Park Ave., Suite 101
    St. Louis, MO 63108
    alzheimer.wustl.edu
    Contact: Dr. John Morris, Director – 314-286-2683
  • University of Kansas Alzheimer’s Disease Center
    University of Kansas Alzheimer’s Disease Center
    Clinical Research Center
    4350 Shawnee Mission Parkway, MS 6002
    Fairway, KS 66205
    www.kualzheimer.org
    Contact: 913-588-0555 or 913-588-6820 for the clinic appointment line
  • The University of Texas Southwestern Medical Center, Dallas
    Memory Research Unit Alzheimer’s Disease Center
    5323 Harry Hines Blvd. J4.140
    Dallas, Texas 75390-9129
    www.utsouthwestern.edu/patientcare/medicalservices/neuro/memory.html
    Contact: Kyle Womack, M.D. – 214-645-8800
  • University of Texas, Austin
    The Aphasia Research and Treatment Lab
    Moody College of Communication
    300 W. Dean Keeton (A0900)
    Austin, TX 78712-1069
    Phone: (512) 471-3420
    Email: AphasiaLab@austin.utexas.edu
    Website: moody.utexas.edu/aphasialab
    Maya Henry, PhD, CCC-SLP, Director

Support Groups in this Region

Denotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

ARKANSAS
AR –  Little Rock
*(MSA, CBD, PSP)
Jan-Oct meets 4th Thurs. @ 11am
Nov & Dec meets 3rd Thurs. @ 1pm
Alzheimer’s Arkansas
Randi Halley, ph:870-703-6417
Faith United Methodist Church
9820 W. Markham St.
Little Rock, AR 72005
KANSAS
KS – Kansas City area


1st Wednesday of the month from 2 p.m.–3:30 p.m. Tam Smith
913-645-5254
rsofan@aol.com
KU Clinical Research Center
Alzheimer’s Disease Center
4350 Shawnee Mission Pkwy
Fairway, KS 66160
(Meetings are held in Suite 1200)
MISSOURI
MO – St. Louis
4th Wednesday of each month at 5:30-7:00 p.m. Sandy Cannon
sandracannon47@gmail.com
314-313-0023
St. Louis County Library (East Room)
1640 S. Lindbergh Blvd.
St. Louis, MO 63131
OKLAHOMA
OK – Tulsa area (*PPA Caregiver Group)
3rd Tues of each month at 6 p.m. Tiffany Turner
therapy@tulsasnr.com
918-928-4700
Swallowing & Neuro Rehab
2121 S. Columbia Ave.
Suite 470, Lower Level Conference Room
Tulsa, OK 74114
TEXAS
TX – Austin
2nd Tuesday of the month from 1 p.m.–3 p.m. Stephen Fenoglio
512-347-9944
jsfenoglio@fenogliolaw.com
Austin Groups for the Elderly (AGE)
3710 Cedar St.
Austin, TX 78705
TX – Dallas
2nd Saturday each month (except December) at 11:30 a.m. Doris Booth
dbooth@authorlink.com
214-802-9324
Celebration Restaurant
4503 West Lovers Lane Dallas, TX 75209
www.celebrationrestaurant.com
TX – Dallas area 4th Tuesday of the month, from 2:00-3:30 p.m. Jane Kovacs
972 437-2940
janekovacs@friendsplaceads.com
Conference Rm.
1960 Nantucket Dr.
Richardson, TX 75080
TX – Fort Worth area 1st Saturday of every month at 10 a.m. Brenda Geeslin
817-295-0858
ggfourboys@aol.com
Contact facilitator for details.
TX – Cedar Park
1st Saturday of the month, 11 a.m.-1 p.m. Barbara Loewy
518-765-2198
bmloewy@gmail.com
Steph McLain
(425) 686-5708
Steph.FTD@gmail.com
Silverado Memory Care Community
800 C-Bar Ranch Trail
Cedar Park, TX 78613
*Respite available. Call 512-986-7202 to RSVP
TX – Houston area
Fourth Tuesday of each month from 7:00 p.m.–8:30 p.m. Chris Ward
713-253-5936
caward901@gmail.com
Asad Abbasi
281-710-7811
Hope and Healing Center
717 Sage Road
Houston, TX 77056
TX – San Antonio

4th Friday of the month, at 10:30 a.m. Dionne Coston
210-627-4726
mail4dna@yahoo.com
Shana Nissen
aftd.sanantonio@gmail.com
210-787-9189
Alzheimers Association Building San Antonio
10223 McAllister Fwy
Suite 100
San Antonio, TX 78216
PHONE GROUP
*(Phone based for adult children affected by FTD) 3rd Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC
415-476-8613
jfong@memory.ucsf.edu
National phone-based support group. Contact facilitator for access number.

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