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Middle Atlantic
Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region
Upcoming Events
Bill’s Best BBQ Sauce Raises Money for AFTD: Bill’s Best BBQ, a company selling a homemade BBQ sauce created by Bill Fehon (now affected with FTD), will donate 10% of all sales to AFTD! It’s organic, sold on Amazon.com and at several other locations, and will soon be in Whole Foods! Check it out on Facebook.
“Cocktails with a Cause” Event: Members of the Leifer family will host a “Cocktails for a Cause” fundraiser benefitting AFTD on May 11, 2013 at EVR Lounge in New York City. Tara Leifer’s father recently passed away from FTD. The event runs from 7 – 11 p.m. There is a $25 donation. RSVP to Tara Leifer at tleifer1@aol.com.
“Safety and Efficacy Study Evaluating TRx0237 in Subjects with Behavioral Variant FTD”: On May 16 at Beacon Pointe Memory Care Community, 1 Emma Lane, Clifton Park, NY, Dr. Richard Holub, a neurologist in Albany, NY with 25 years’ experience with FTD and related dementias, will present information on an upcoming clinical trial evaluating the drug TRx0237 in people with bvFTD at 7 p.m. Learn more about the drug and its possible effects, eligibility for participation and more. For more information contact Lauren Jacobi, Beacon Pointe Marketing Director at 518-371-2200.
University of Pennsylvania Frontotemporal Degeneration Caregiver Conference: The University of Pennsylvania is hosting its Caregiver Conference on Friday, June 7, 2013. The conference is open to anyone with an interest in FTD and will cover topics including the genetics of FTD, drug development and caregiver resources. The keynote address will be given by AFTD’s founder, Helen-Ann Comstock. For more information and to register to attend, please see the UPenn Conference Flyer.
AFTD Regional Network Coordinator
Research and Medical Centers with particular FTD Focus
Alzheimer’s Disease Research Center at Mount Sinai Medical Center
Martha Stewart Center for Living & Klingenstein Clinical Health Center
1440-1450 Madison Avenue
New York, NY 10029
Director: Mary Sano, Ph.D.
http://www.mssm.edu/research/centers/alzheimers-disease-research-center
Contact: Julia Diaz at 212-241-9382 OR 212-241-1844
Columbia University
Sergievsky Center, Taub Institute
630 W. 168th St., P&S Box 16
New York, NY 10032
http://www.cumc.columbia.edu/dept/taub/pc-mdc.html
Contact: Jill Goldman, CGC, at 212-305-7382 or jg2673@columbia.edu
NYU Silberstein Alzheimer’s Institute at Langone Medical Center
The Pearl Barlow Center for Memory Evaluation and Treatment
145 East 32nd Street, 2nd Floor
New York, NY 10016
Clinical Director: James Galvin, M.D.
Associate Director: Melanie Shulman
http://aging.med.nyu.edu/the-barlow-center
Contact: 212-263-3210
Drexel University College of Medicine
Memory and Cognitive Disorders Program
245 N. 15th St
Philadelphia, PA 19107
https://www.drexelmed.edu/Home/AboutOurFaculty/CarolLippa.aspx
Contact: 215-762-6915
Johns Hopkins University
Johns Hopkins FTD Center
600 N. Wolfe St.
Baltimore, MD 21287
http://www.hopkinsmedicine.org/Psychiatry/geriatric_neuropsychiatry/frontotemporal_dementia/
Contact: Mary Anne Wylie, M.S., RN, APN, at 410-502-2981
University of Pennsylvania
Center for FTD
3400 Spruce Street, 3 W Gates
Philadelphia, PA 19104
http://www.uphs.upenn.edu/ftd/
Contact: Marianna Diloyan, RN, at 215-349-5725
University of Pittsburgh
The Alzheimer Disease Research Center
UPMC Montefiore
4th Floor (Suite W-421)
3459 Fifth Avenue
Oakland, PA 15213
Contact: 412-692-2700
Support Groups in this Region
Delaware – Rehoboth area
Meeting time:
Every other Tuesday, 4 to 5:30 p.m.
Location:
Henlopen Junction Mall
715 Rehoboth Avenue
Rehoboth Beach, DE
Contact:
Dr. Judith E. Pierson at 302-227-6745 to verify the date
of the next meeting or for additional information
Delaware – Wilmington area
Under the auspices of the Alzheimer’s Association Delaware Valley Chapter
Meeting time:
Last Friday of the month, 12 p.m. (attendees are welcome to bring lunch)
Location:
Christ United Methodist Church
6 N. Clifton Street
Wilmington, DE
Contact:
Carol Lovett at 302-475-0496
Maryland – Baltimore area
Under the auspices of Johns Hopkins Medical Institutions, FTD Clinic and the Alzheimer’s Association, Maryland Chapter
Meeting time:
Second Wednesday of the month, 11 a.m. to 12:30 p.m.
Location:
Alzheimer’s Association
1850 York Road, Suite D
Timonium, MD 21093-5143
Contact:
Johns Hopkins FTD Clinic at 410-502-2981 or George Amoss at daruma@qis.net or 410-254-5918.
Maryland – Metro DC area
Sponsored by Arden Courts of Kensington
Meeting time:
4th Monday of the month; informal networking at 6 p.m., meeting from 6:30 to 7:30 p.m.
Meeting location:
Arden Courts Kensington
4301 Knowles Court
Kensington, MD 20895
Contact:
Elaine Rose at errose36@gmail.com
New Jersey – North Jersey / Hackettstown
Meeting time:
The first Tuesday of every month, 7 p.m.
Meeting location:
House of the Good Shepherd (in their library on the first floor)
798 Willow Grove St.
Hackettstown, NJ 07840
908-684-5900
Contact:
Susan Rebholz at 908-399-2090 or skrrn@comcast.net, or Greg Wilson at 908-832-7322 or wgregw3@juno.com for more information.
New Jersey – Southern Delaware Valley
Under the auspices of the Alzheimer’s Association Delaware Valley Chapter
Meeting time:
Fourth Thursday of the month, 6:30 to 8 p.m.
Location:
3 Eves Drive
Marlton, NJ 08053
Contact:
Sidney Williams at 856-797-1212 or Sidney.Williams@alz.org
New York – Albany area
Meeting time:
Please contact group facilitator Lauren Jacobi for information on the meeting time and date.
Location:
Beacon Pointe Memory Care Community
1 Emma Lane
Clifton Park, NY 12065
Contact:
Lauren Jacobi at 518-371-2200 or ljacobi@peregrine-companies.com
New York – Albany area
Meeting time:
Last Wednesday of the month, 5:30 - 7:30 p.m.
Location:
Standish Community Center on the campus of Eddy Village Green 421 W. Columbia Street, Cohoes, NY
Contact:
Nancy Cummings at 518-262-0800 or cumminN@mail.amc.edu
New York – New York City area
Under the auspices of Columbia University and the NY chapter of the Alzheimer’s Association
Meeting time:
First and third Thursday of each month
Location:
Midtown Manhattan
Contact:
Jill Goldman, MS, MPhil, CGC, at 212-305-7382 or jg2673@columbia.edu
Pennsylvania – Allentown area
Meeting time:
First Thursday of the month, 7 to 8:30 p.m.
Location:
The School House at Richland Friends Meeting House
Mill Road and Main Street
Quakertown, PA 18951
Contact:
Susan Miller Abbott at 610-346-1937 or NASIsma@aol.com
Pennsylvania – Hershey area
Under the auspices of the Penn State Hershey Medical Center Memory and
Cognitive Disorders Clinic
Meeting time:
Third Thursday of the month, 6 to 8 p.m.
Location:
Hershey Medical Center
30 Hope Drive, Room 1019
Hershey, PA 17033
Contact:
Claire Flaherty Craig, PhD at (717)531-1804 or cflahertycraig@hmc.psu.edu
Pennsylvania - Philadelphia
Targeted to younger adult children in their 20s, 30s and 40s caring for a parent diagnosed with dementia
under the age of 65. Under the auspices of the Delaware Valley Chapter of the Alzheimer’s Association.
Meeting time:
Third Wednesday of the month, 6:30 to 8:30 p.m.
Location:
Ralston Penn Center, Room 346
3615 Chestnut St.
Philadelphia, PA 19104
Contact:
Call at 800-272-3900 or Gary Radin at gary@garyradin.com
Pennsylvania – Philadelphia, Western suburbs
Under the auspices of the Delaware Valley Chapter of the Alzheimer’s Association
Meeting time:
Second Thursday of the month, 7 to 9 p.m.
Location:
Main Line Reform Temple
410 Montgomery Avenue
Wynnewood, PA 19096
Contact: Sandy Karger – via email: 98sandra@comcast.net or via phone at 610-647-2842
Sylvia Gentry – via email: sogentry115@comcast.net or via phone at 267-323-2089
Pennsylvania – Pittsburgh area
Meeting time:
Second Tuesday of the month, 11:30 a.m. to 1:00 p.m.
Location:
Kings Restaurant (Room #2)
105 Vip Drive
Wexford, PA 15090
Contact:
Jim Rodgers at 724-776-1205 or via email at: jrodgers7@zoominternet.net
Pennsylvania – Royersford
Under the auspices of the Alzheimer’s Association Delaware Valley Chapter
Meeting time:
Second Thursday of the month, 2 to 3:30 p.m.
Location:
Riverview Adult Day Health Services at Parkhouse Family Room
1600 Black Rock Road
Royersford, PA 19468
Contact:
Riverview Adult Day Health Services at 610-792-2399
