The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Tips & Advice – Navigating FTD-ALS

In 2011, researchers discovered that variants of the C9orf72 gene are the most common cause of both genetic FTD and amyotrophic lateral sclerosis (ALS). Nevertheless, it is important to recognize…

Coya Therapeutics Reports Positive Interim Results in Clinical Trial for Experimental FTD Therapy

Coya Therapeutics announced positive interim results for its clinical trial for a potentially disease-modifying treatment course for FTD, citing data showing that it helped to prevent cognitive decline. Therapeutics Address…

AviadoBio Announces Completion of Second Cohort in ASPIRE-FTD Trial at AFTD Education Conference

Gene therapy company AviadoBio announced the completion of the second cohort of its phase 1/2 clinical trial of a potential genetic FTD treatment at the 2025 AFTD Annual Education Conference…

Celebrating 20 Years of AFTD’s Pilot Grant Program

Over the past 20 years, AFTD’s Pilot Grant program, which supports early-career researchers or new ideas, has funded $2.8 million in innovative FTD research. In 2005, AFTD founder Helen-Ann Comstock…

Advancing Hope: FTD and ALS Joint Initiatives

Did you know that certain cellular changes that occur in FTD are also observed in Amyotrophic Lateral Sclerosis (ALS)? In some cases, neurodegeneration in ALS and FTD is linked to…

The Lived Experience of FTD: Managing Anxiety

The following article was written by Chris Tann, a member of AFTD’s Persons With FTD Advisory Council. You can learn more about Chris and the other members of the Council…

Two Drugs Selected for Evaluation in Platform Trial for PSP

A pair of drugs has been selected for evaluation in a platform trial that aims to accelerate the development of treatments for progressive supranuclear palsy (PSP). The trial is being…

Text: Dear HelpLine - Hospice Care for FTD | Background: A healthcare provider holds someone's hands during an appointment

Dear HelpLine: Hospice Care and FTD

Dear HelpLine, My sister has had FTD for a few years, and her doctor recently told us we should consider moving her to hospice. What does hospice care involve? How…

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