The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

"Any time I have knowledge of what to do next, it’s because of AFTD.

– Channing Clifford (right), with her mom, Valerie, who is living with FTD

Your gift today will be matched dollar for dollar, up to $25,000, thanks to our generous partner, the Milburn Foundation.

April 26, 2024
3:00 – 4:00 p.m. ET

Perspectives in Research Webinar

Navigating Social and Legal Challenges in Familial FTD

May 3, 2024
Houston, TX

AFTD 2024
Education Conference

Learn More

Connect · Learn · Engage

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Advancing Hope: AFTD and Registry Staff attend Neurology Meeting

AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April 13-18 in Denver. Will Reiter, Ray Frattone, and Shana Dodge from AFTD joined…

The Lived Experience of FTD: Frustrations of FTD

The following column was written by members of the Persons with FTD Advisory Council. Members of the Council work to share the insights of persons diagnosed to help guide AFTD on…

FTD Advocate Discusses Isolation and Housing Concerns Faced by Family Care Partners

In a column published by the digital periodical Next Avenue, FTD advocate Aisha Adkins, MPA, CNP, discusses how care partners and people living with conditions like FTD often face overlapping…

First Participant Treated in AviadoBio Phase 1/2 Clinical Trial for FTD-GRN Gene Therapy

AviadoBio announced on April 15 that the first participant has been treated in its Phase 1/2 ASPIRE-FTD trial evaluating the gene therapy AVB-101 as an intervention for FTD-GRN. “There is…

Tips & Advice: Roaming vs. Wandering

In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving the same route repeatedly. While their lengths may vary, the distance of these…

Not All Forms of PPA Are FTD, as Recent High-Profile Case Highlights

Not all forms of primary progressive aphasia (PPA) are caused by the same disease pathology with logopenic variant PPA (lvPPA) capable of being associated with either FTD or Alzheimer’s disease.…

AFTD Ambassador Honors Daughter by Spreading FTD Awareness: “FTD Didn’t Win in the End”

In a recent interview with WTHI AFTD Ambassador Dawn Kirby recently shared her daughter’s FTD journey with WTHI-TV in Terre Haute, Ind., explaining how she turned her family’s pain into…

Balancing Safety and Autonomy When Persons Diagnosed Leave the Home

In recent days, national media outlets have reported on the disappearance of Edmond Bradley Solomon III, a 66-year-old South Carolina man living with an FTD diagnosis, in Mexico. Mr. Solomon…

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HelpLine:

News & Events

Advancing Hope: AFTD and Registry Staff attend Neurology Meeting

The Lived Experience of FTD: Frustrations of FTD

FTD Advocate Discusses Isolation and Housing Concerns Faced by Family Care Partners

First Participant Treated in AviadoBio Phase 1/2 Clinical Trial for FTD-GRN Gene Therapy

Tips & Advice: Roaming vs. Wandering

Not All Forms of PPA Are FTD, as Recent High-Profile Case Highlights

AFTD Ambassador Honors Daughter by Spreading FTD Awareness: “FTD Didn’t Win in the End”

Balancing Safety and Autonomy When Persons Diagnosed Leave the Home

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