The Association for Frontotemporal Degeneration

AFTD CEO Susan Dickinson was joined by Emma Heming Willis at AFTD's 2024 Education Conference to discuss how her family’s lives have changed since Bruce was diagnosed with FTD.

A Fireside Chat with Susan Dickinson and Emma Heming Willis

Watch the Fireside Chat

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Thursday, June 20, 2024 | 3-4 p.m. EDT

HEALTHCARE PROFESSIONAL WEBINAR

FTD & ALS

A Collaborative Approach to Diagnosis & Care

Suma Babu, MD

Mark Eldaief, MD, MMSc

Esther Kane, MSN, RN-CDP

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"Any time I have knowledge of what to do next, it’s because of AFTD.

– Channing Clifford (right), with her mom, Valerie, who is living with FTD

Your gift today will be matched dollar for dollar, up to $25,000, thanks to our generous partner, the Milburn Foundation.

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to connect with others
who understand.

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News & Events

Advancing Hope: AFTD Attends 2024 Target ALS Annual Meeting

AFTD attended the 2024 Target ALS Meeting on May 7-9 in Boston, Massachusetts. There were over 800 people who attended the meeting in-person or virtually. Attendees were comprised of scientific…

Graphic: The new FTD Disorders Registry Platform is Now Live

Help & Hope: The new FTD Disorders Registry Platform is Now Live!

The FTD Disorders Registry announced the launch of their updated platform at the AFTD 2024 Education Conference in Houston, TX. By joining the FTD Disorders Registry, you are counted as…

Study Discovers How Variations in TMEM106B Gene Influence Risk and Severity of FTD

In a study published earlier this year in the journal Science Translational Medicine, researchers from Mayo Clinic share their discovery of the ways inherited variations in a specific gene can…

Graphic: NY State Senator Hinchey Introduces Bill to Create State FTD Registry

N.Y. State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry

New York State Senator Michelle Hinchey introduced and sponsored a bill to the state Senate that, if approved, would create a statewide registry of FTD diagnoses. Sen. Hinchey announced the…

New York State Senator Michelle Hinchey Introduces First-in-the-Nation Legislation to Create FTD Research Registry

ALBANY, N.Y. — Today, New York State Senator Michelle Hinchey unveiled legislation (S7874/A9938) to establish the country’s first statewide Frontotemporal Degeneration (FTD) Research Registry. The registry would help educate doctors…

Volunteer Update: How Can a Meet & Greet Help?

Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family members. Information about the disease and how to manage its symptoms guidance can…

AFTD announces 2023 Pathways for Hope Pilot Grant recipients

AFTD’s Pilot Grant program – our longest running funding opportunity – provides seed funding for innovative FTD research, laying the groundwork for additional follow-on support from a larger funder. Pathways…

Tips & Advice: Dealing With the Loss of Empathy

One of the most distressing symptoms of FTD is a loss of empathy, which can cause persons diagnosed to become uncharacteristically indifferent towards other people, including loved ones. This loss…

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