Maratona di Detroit
Two participants in the Detroit Marathon will be adding onto their marathon experiences by fundraising for AFTD’s mission while they train and run in the race. Glenna Sikdar Creek is running in honor of her mother Carla who is currently living with FTD and Kelly Collins is also running in honor of her mother who…
Per saperne di piùMezza maratona di Chicago Life Time
Ana Gaither and some members of her family will be running in the 2025 Life Time Chicago Half Marathon this fall in memory of Ana’s aunt Erin Lynch- McNulty who was diagnosed with FTD and recently passed away.
Per saperne di piùCorsa a staffetta Hood to Coast
Elica Sharifnia and her relay team are participating in the race and fundraising in memory of Elica’s father Hamid Sharifnia.
Per saperne di piùJersey Freeze Ice Cream Party
AFTD Advocacy Coordinator Lauren Pelaia is hosting a sweet fundraiser at Jersey Freeze on July 10th. A portion of the sales that day from the ice cream parlor and restaurant will be donated to AFTD’s mission in memory of Lauren’s mother. Make sure to mention the event when you order to get a portion of…
Per saperne di piùGentile HelpLine: Comstock Grants
Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more? Living with FTD brings significant changes for both persons diagnosed and their care partners. As symptoms emerge — behavioral changes, language challenges, cognitive shifts —…
Per saperne di piùPromuovere la speranza; AFTD partecipa alla conferenza globale Tau
In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS), MAPT Frontotemporal Degeneration, Alzheimer’s Disease, and other neurodegenerative disorders. This conference was co-hosted by the Alzheimer’s Association, CurePSP, and the Rainwater Charitable Foundation. It brought…
Per saperne di piùPatologia cerebrale compatibile con la FTD riscontrata in circa 351 casi di malattia del motoneurone in uno studio recente
According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes diseases like ALS. Abnormal protein clumps were detected in 90% of the samples studied, with participants classified as having both FTD and motor neuron disease…
Per saperne di piùLa promettente terapia genica FTD di AviadoBio presentata sul Guardian del Regno Unito
In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101, targets the specific genetic form FTD-GRN, caused by mutations that create a deficiency in progranulin, a protein essential for healthy brain cells. The treatment represents…
Per saperne di piùFTD Science Digest: aiuta a far progredire la scienza iscrivendoti al registro aggiornato dei disturbi FTD
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
Per saperne di piùRiflettori sulla ricerca FTD: un nuovo portale per i ricercatori e altri aggiornamenti dal registro dei disturbi FTD
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
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