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Dear HelpLine: Brain Donation
Dear HelpLine, How do we learn more and start the process of arranging a brain donation for FTD research? Brain donation can be a difficult topic to consider and discuss,…
Perspectives in FTD Research Webinar: Navigating Social and Legal Challenges in Familial FTD
Prof. Jalayne Arias, a researcher focused on policy, ethics, and law, and genetic counselor Laynie Dratch join this Perspectives in FTD Research Webinar to discuss important considerations for families impacted by…
Advancing Hope: AFTD and Registry Staff attend Neurology Meeting
AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April 13-18 in Denver. Will Reiter, Ray Frattone, and Shana Dodge from AFTD joined…
The Lived Experience of FTD: Frustrations of FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council work to share the insights of persons diagnosed to help guide AFTD on…
FTD Advocate Discusses Isolation and Housing Concerns Faced by Family Care Partners
In a column published by the digital periodical Next Avenue, FTD advocate Aisha Adkins, MPA, CNP, discusses how care partners and people living with conditions like FTD often face overlapping…
First Participant Treated in AviadoBio Phase 1/2 Clinical Trial for FTD-GRN Gene Therapy
AviadoBio announced on April 15 that the first participant has been treated in its Phase 1/2 ASPIRE-FTD trial evaluating the gene therapy AVB-101 as an intervention for FTD-GRN. “There is…
Tips & Advice: Roaming vs. Wandering
In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving the same route repeatedly. While their lengths may vary, the distance of these…
Not All Forms of PPA Are FTD, as Recent High-Profile Case Highlights
Not all forms of primary progressive aphasia (PPA) are caused by the same disease pathology with logopenic variant PPA (lvPPA) capable of being associated with either FTD or Alzheimer’s disease.…
May 22, 2024: In-Person Meet & Greet in Bristol, Pa.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Pa., located at…
AFTD Ambassador Honors Daughter by Spreading FTD Awareness: “FTD Didn’t Win in the End”
In a recent interview with WTHI AFTD Ambassador Dawn Kirby recently shared her daughter’s FTD journey with WTHI-TV in Terre Haute, Ind., explaining how she turned her family’s pain into…