FTD bliver ofte fejldiagnosticeret som Alzheimers, depression, Parkinsons sygdom eller en psykiatrisk tilstand. I gennemsnit tager det i øjeblikket 3,6 år at få en præcis diagnose.

Partnere i FTD Care

AFTD's Partners in FTD Care er udviklet af et udvalg af kliniske sygeplejersker, undervisere, socialarbejdere og familie- og professionelle omsorgspersoner, med bidrag fra eksterne specialister for at fremme større viden og forståelse af FTD og dele bedste plejepraksis.

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AFTD-ressource: Hvad skal man gøre ved palliativ pleje til FTD

Palliative care is specialized medical care for people facing serious illnesses and can be particularly valuable for people with FTD and their families. Its goals are the assessment, management, and, when possible, prevention of illness-related distress, whether physical, spiritual or psychological. Palliative approaches emphasize effective communication and multidisciplinary treatment of symptoms throughout the illness. AFTD…

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Symptomindsigt: Anvendelse af palliative plejetilgange

Palliative care has its roots in hospice care, which emerged in the 1960s and primarily focused on the needs of patients with cancer.1 In 1990, the World Health Organization recognized palliative care as a distinct specialty focused on relieving suffering and improving quality of life for people with life-limiting illnesses or serious injuries. It identified the…

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Plejemetoder: Bedste praksis for palliativ pleje

The University of Colorado’s Neurology Supportive and Palliative Care Clinic is another innovative model of palliative care for individuals living with incurable neurological diseases, like FTD and PPA, and their families. This outpatient clinic was founded in 2012 by Dr. Benzie Kluger, an assistant professor of neurology and the chief of the Neurology Supportive and…

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En plejepartners perspektiv: FTD Care Takes a Village

By Sharon Hall, FTD Care Partner “You have frontotemporal degeneration, or FTD. It is a progressive disease, and there are currently no treatments. Get your legal affairs in order.” Hearing these words from a doctor is a gut punch, and it does not get easier from there—I call the first year after my husband’s FTD…

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Plejetilgange: Palliativ pleje - Berettigelse og adgang

Palliative care is specialized and individualized care for people living with a serious medical condition. In FTD, it can be pursued at diagnosis or any point thereafter—unlike hospice, which can only be pursued at the end of life. One can receive palliative care while being treated for other coexisting conditions, and its availability does not…

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Casestudie: Gentænkning af palliativ pleje – en ny tilgang til håndtering af FTD

Palliative care is specialized medical care for people facing serious illnesses. It can be used at any stage of the disease to promote quality of life for both individuals living with FTD and their care partners. (Palliative care during the final stages of a progressive disease is known as hospice care.) Because the use of…

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